Angelman Syndrome is a rare genetic disorder that not many people are aware of, but it is closer to home than one might think. Expressions Dance Company attended the Power of Dance Competition Sunday, March 31 and was able to select a charity they would raise money for. Because a few dancers knew Mr. Justin Bomgren, a teacher at the Fulton Junior High School, they decided Foundation for Angelman Syndrome Therapeutic (FAST) was a perfect fit.

Justin and Kristina Bomgren's son, Evan, has Angelman Syndrome (AS), which affects 1 in 15,000 to 20,000 people. Some misconceptions about AS are that people diagnosed with this disorder are not smart and have nothing to say, but in reality, this is so far from the truth.

There are negative symptoms such as seizures, sleep disorders, lack of speech, and severe developmental delays, but there are positive symptoms, too. A few examples are a contagious laugh and smile, amazing hugs, and an unconditional love for everyone.

Mr. Bomgren said, "We try to focus on the good days, celebrate the milestones Evan makes, and continue our hope for a cure."

The Power of Dance competition is where dancers perform not only for applause, but for a cause. Expressions Dance Company (EDC) was thrilled to be able to raise money for FAST.

Freshman and dancer at EDC Marissa Bowering said, "It was a great experience to be able to dance for something other than myself and to raise money for FAST to help out a local resident."

GRB alum and teacher at EDC Maryssa Woodcock said, "It was so much fun, and such an honor to get on stage and do what we love while supporting a foundation that helps someone so close to home."

Angelman Syndrome is totally curable through gene therapy and they have already cured it in several animal models. They are beginning clinical trials for humans this year. Luckily, the science is there. Now all that is needed is a lot of time and money to help researchers bring the cure to all the Angels, including Evan. That can begin with help from the community.

There are two fundraising opportunities coming up. The first is the Second Annual Angelman Syndrome Walk of Syracuse on May 19. The purpose of this walk is to raise awareness for AS and to also raise funds for scientific research. This walk/picnic will be held at the town of Camillus Park.