Andrew Spilotro (not yet diagnosed with celiac) at age 7 enjoying a glutinous cookie at a Hope College Soccer Match, September 25, 2013, by Danielle Spilotro
The warm loaf of bread at Thanksgiving with its golden-brown crust. The crisp pizza crust topped with gooey cheese that means it's Friday night. The fast food fun of a random road trip stop. These everyday pleasures are things people like me can’t enjoy all thanks to the wheat that lurks inside them.
I’m part of the estimated one percent of people who live with celiac disease (Callahan). People like me have to avoid wheat, rye, barley, and other grains because ingesting these grains can damage the lining of the small intestine, causing improper nutrient absorption (“What is Celiac”). While celiac is not regarded as common, more people have been diagnosed with the disease in recent decades (Catassi). The worst part: I can’t eat any of those delicious wheat-based things, so I miss out on the chewy bounce of doughy bread and cakes, the crunchy outside of a cookie that’s still heavenly soft inside, and the smooth satisfaction of perfect pasta.
Wheat is everywhere in modern society. Since first being cultivated in the Fertile Crescent over 10,000 years ago, wheat has expanded its influence into various cultures around the globe and is an essential ingredient in many places (de Sousa). In my household, however, not so much. Gluten in all its forms has been missing from our family dinner table ever since my sister was diagnosed with celiac in 2010. I was diagnosed with the disease four years later. Living with celiac can be difficult. I remember feeling awkward at team dinners and celebrations when I had to turn down food that was prepared by other families, or when traveling with family or friends and feeling like a burden when we have to find a place where I can safely eat. These moments serve as reminders that what we eat is so much more than just nutrition—it’s a means for connection. Avoiding wheat is not just a physical challenge, but an emotional one too. That said, it’s important to keep perspective.
Gluten free zone at University of Michigan's Mosher-Jordan dining hall, November 22, 2024
The Spilotro family's gluten free thanksgiving dinner, November 29, 2024
Living with celiac disease is a minuscule problem in the grand scheme of things. In fact, it’s almost been a blessing to have celiac disease. Avoiding processed grains, such as wheat, and fatty foods has encouraged me to lead a healthy lifestyle, and living with celiac has allowed me to meet others who have the disease and connect with them. As more people come to realize the potential health benefits of living gluten-free, there’s been an increase in gluten-free products available, as well as more regulations to make eating gluten-free safer. I can recall a time when my sister and I couldn’t trust the labeling on foods because there was no standard for what was considered safe to eat and gluten-free. It wasn’t until August of 2013, (only eleven years ago!) that the United States Food and Drug Administration passed a law defining a “final rule” for a product to be considered gluten-free (“Gluten-Free Labeling of Foods”). Now, the most recent Nobel Prize winners: David Baker, Demis Hassabis, and John Jumper are also leading celiac researchers (“The 2024 Nobel Prize”). It’s very exciting to see how much more attention celiac disease is getting. While I may be crossing my fingers and hoping they can develop a cure, with the lifestyle that having celiac has created for me, I’m not entirely sure if I would want to make a change.
My experience with wheat (as well as food in general) is different from others, but I believe that is what makes it special. Foods show the beauty of the connections we have in society despite our differences. Food, gluten-free or not, is a uniquely common thread that helps us draw connections with others and allows us the opportunity to share experiences between each other.
Works Cited
Callahan, Alice. “Are We Close to a Treatment for Celiac Disease?” The New York Times, 1 June 2022, www.nytimes.com/2022/06/01/well/celiac-disease-treatment.html. Accessed 30 Nov. 2024.
Catassi, Carlo, et al. “Natural History of Celiac Disease Autoimmunity in a USA Cohort Followed since 1974.” Annals of Medicine, vol. 42, no. 7, 10 Sept. 2010. Taylor & Francis Online, www.tandfonline.com/doi/full/10.3109/07853890.2010.514285?scroll=top&needAccess=true#abstract. Accessed 6 Nov. 2024.
de Sousa, Telma, et al. “The 10,000-Year Success Story of Wheat!” Foods, vol. 10, no. 9, 8 Sept. 2021. National Library of Medicine, https://pmc.ncbi.nlm.nih.gov/articles/PMC8467621/#sec2-foods-10-02124. Accessed 6 Nov. 2024.
“Gluten-Free Labeling of Foods.” U.S. Food & Drug Administration, 7 Mar. 2022, www.fda.gov/food/nutrition-food-labeling-and-critical-foods/gluten-free-labeling-foods#:~:text=On%20August%202%2C%202013%2C%20FDA,defined%20standard%20for%20gluten%20content. Accessed 21 Nov. 2024.
Spilotro, Andrew. Photograph of Gluten-Free zone at Mosher-Jordan dining hall University of Michigan. 22 Nov. 2024. Author’s personal collection.
Spilotro, Andrew. Photograph of Gluten-Free thanksgiving dinner. 29 Nov. 2024. Author’s personal collection.
Spilotro, Danielle. Photograph of Andrew Spilotro at age 8 at Hope College soccer match. 25 Sep. 2013. Author’s personal collection.
“The 2024 Nobel Prize in Chemistry Goes to a Leading Celiac Disease Researcher.” Celiac Disease Foundation, 11 Oct. 2024, celiac.org/2024/10/11/the-2024-nobel-prize-in-chemistry-goes-to-a-leading-celiac-disease-researcher/. Accessed 3 Dec. 2024.
“What Is Celiac Disease?” Celiac Disease Foundation, https://celiac.org/about-celiac-disease/what-is-celiac-disease/. Accessed 10 Nov. 2024.