Living with Fibromyalgia – How Can I Live with Fibromyalgia Pain?

Living with Fibromyalgia

Fibromyalgia is a chronic and painful condition that is extremely hard to diagnose. The main symptoms are constant pain and stiffness in the musculoskeletal parts of the body, soft tissue tenderness and sleep disturbances leading to extreme tiredness. The pain is mostly felt in the neck, back, pelvic girdle and hands, though any other parts of the body may be affected.

This disease is very hard to diagnose because so many of the symptoms are similar to other problems like chronic fatigue, rheumatism and arthritis. Doctors must rely a great deal on their patients’ description of symptoms.

Diagnosis: Fibromyalgia Test

There is a manual standardized test that can be given to discover if there is pain at specified points of the body. If 11 out of 18 of these specified points are tender, and the patient has had pain in all four quadrants of the body for at least three months then Fibromyalgia is certainly suspected.

A compounding problem is that these symptoms can come and go from week to week. Numbness, tingling and burning may also be present and the pain can be affected by emotional stress, trauma and also by weather conditions such as humidity and cold. Too little or too much activity can also play a part in the amount of pain experienced.

Sometimes fibromyalgia can be triggered by an illness or injury, but it is also thought to be genetic. New research has shown that it may be caused by an interpretive defect of the central nervous system that causes abnormal pain perception.

Treating Fibromyalgia Symptoms

Once the condition has been diagnosed, there is much the patient can do to relieve the symptoms. Certainly the advice of a medical health-care provider should be sought and followed, but there are many alternative treatments that offer relief from the symptoms and most doctors agree that sufferers of fibromyalgia should put into place a multi-faceted treatment regimen that includes nutrition, exercise, dietary supplements, acupuncture, aroma-therapy, relaxation techniques and even the use of hot-cold therapies and humor to aid in pain relief.

Over the counter pain relief medication such as ibuprofen can be used, while low doses of anti-depressants from the doctor can certainly help the sufferer to get better sleep. Lidocaine injections into tender pain points may also be needed for relief. Gentle exercise and stretching will prevent the muscles from wasting away and is also beneficial in reducing pain and stiffness

Fibromyalgia Help and Support

Because living with a chronic illness such as FM can be so debilitating, sufferers need emotional support as well as physical. Joining a fibromyalgia support group can provide helpful insights into the disease, while counselling sessions with a trained professional can open communication with friends and family who often cannot understand the extensive disabilities caused by fibromyalgia.

If you are a fibromyalgia sufferer, it is important to keep a hopeful attitude even in the face of debilitating pain, because this disease does tend to improve over time and there are always new and different treatments being discovered.

The Difficulties of Living with Fibromyalgia

It's not easy to live with fibromyalgia. It is not easy due to the fact that, like myself, you have no knowledge about how you are going to feel when you wake up in the morning. One day there's pain beyond belief and the next you can feel as if you are walking on clouds, no pain and a day full of activity.

My day normally starts with about 20 minutes of trying to stretch out my muscles and have them functioning normally again. Then I have to pick up my little girl from her bed, and that can be a painful experience. After that it's time to change her diaper, and that is also a huge problem for me as my fingers normally are not working properly. Fortunately, my daughter has learned already to be patient with me. After about half an hour it's time to try out clothes and see if it's going to be a good day or a bad one. A bad day is a no tight clothes day. Then it's breakfast time but normally I can't eat breakfast due to stomach problems also caused by my fibromyalgia.

Then the day goes on. If I have the strength, I will try to go out and do the shopping and also take out my kids. The worse thing about fibromyalgia is that one gets so tired. The pain can be so hard that nothing works and even if you have had a good night's sleep, you can wake up feeling as if you have never slept at all. It takes control over every little thing you like to do. One day I have all the strength I can ever use and the next day I have no strength at all.

Fibromyalgia takes all the good in you, and makes you feel horrible if you do more than your body can take. I remember once I was at a dance, felt pretty good that evening and had no pain whatsoever. The day after the dance I could not get out of bed, I had to call for help. I have also had to have home assistant, and help with almost everything for some periods of my illness. It's been so bad that I haven't even been able to take my kids out to play.

The weather is also a big problem for almost everyone with fibromyalgia. For me that means that when the temperature is between 0-15 degrees Celsius, I'm in severe pain. Those days, I can do hardly anything, and that means for me about 6 months a year. There are a few things that you, who don't have this illness can do:

1. Remember that even if someone has fibromyalgia, it doesn't mean you can see it. We have no evidence on our bodies that prove our illness and too often we get to hear that we are lazy, and "How can you be ill, it doesn't show". Those words hurt. Because we have often had to fight a battle with our doctors to make them realize that we have fibromyalgia and prove it to far too many people.

2. Also think about the fact that sometimes even a soft touch can hurt, so don't pat us on the back saying "you'll get better!". It's an illness that is there for life.

3. Don't make demands on us, because what we can do today, we might not be able to do tomorrow.

This is just a little about fibromyalgia and I will probably write much more about it.

Watch this video - Living with Fibromyalgia - Fibromyalgia ruined my life...how I manage

Living with Fibromyalgia - Where to Find Special Fibromyalgia Support Groups

When dealing with something like fibromyalgia, it is important to have a support system of some sort in place. Finding support for a unique condition like that, though, is sometimes difficult. If you know where to look, though, and you know how to research the organizations, you soon discover where to find special fibromyalgia support groups. Here are a few tips that may help you in your search so that you can share your experience, share the experience of others, and learn how to get support through supporting others.

A great place to start your search for where to find special fibromyalgia support groups is online. The internet is a wealth of knowledge and many of these support groups add to that by having their own websites. The best way to find them is to start with a search engine.

Finding a fibromyalgia support group is really no different than finding anything else online. Start by searching for fibromyalgia and a location. You will, in most every case, get back several responses that fit your search. So, your next step then would be to make a decision on which support group best works for you.

The internet will not only tell you where to find special fibromyalgia support groups, but also how to get in contact with them. Once you have found a group online that seems to fit your need and schedule, you should contact them. Talking to a representative of the group can often give you a feel for whether or not it is going to be a good fit for you.

The internet is not the only place suited to help you with where to find special fibromyalgia support groups. Another fantastic resource for you is the local hospitals. If you call the hospital and ask, most all of them will have support groups for all sorts of conditions and situations. They should be able to give you information on special fibromyalgia support groups that will fit your schedule. They should be able to tell you when the groups meet, where they meet, and how to get into contact with them.

So, if you are not “computer savvy” and still needs to know where to find special fibromyalgia support groups, then contact your local hospital and they should be able to help you. If not, they should be able to direct you to another organization that certainly can.

Finally, if all else fails, then you can find where to find special fibromyalgia support groups by contacting Fibro-Friends. This is a group that supports and advocates for those who have fibromyalgia. They can help you find support groups, organizations, and other contacts in your area so that you do not have to be alone.

Knowing where to find special fibromyalgia support groups can be a big part of dealing with it. By going online, through your local hospital, or talking to Fibro-Friends, you can get the support system you need to deal with this condition day in and day out.

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