Warming up to Real World Data for Cancer Research:

• It complements focus on FAIR ...

• ... by adding a focus on data that is generated "regardless" - for example, as part of care delivery.

• This session seeks to anticipate/explore real-world data seminar series organized by TDRP.

Journal Club

JAMIA Open. 2022 Dec; 5(4): ooac077.

Published online 2022 Oct 12. doi: 10.1093/jamiaopen/ooac077, PMCID: PMC9555876,PMID: 36247086

Clinical, technical, and implementation characteristics of real-world health applications using FHIR

Ashley C Griffin, Lu He, Anthony P Sunjaya, Andrew J King, Zubin Khan, Martin Nwadiugwu, Brian Douthit, Vignesh Subbian, Viet Nguyen, Mark Braunstein, Charles Jaffe, and Titus Schleyer

-------------------------------------------------------

• https://developer.apple.com/documentation/healthkit/hkfhirresource (for Apple)

• https://smarthealthit.org/

Real-World Database Studies in Oncology: A Call for Standards

Authors: Scott D. Ramsey, MD, PhD https://orcid.org/0000-0001-5972-8280 sramsey@fredhutch.org, Arzu Onar-Thomas, PhD, and Stephanie B. Wheeler, PhD, MPH https://orcid.org/0000-0002-3399-9047AUTHORS INFO & AFFILIATIONS

Publication: Journal of Clinical Oncology

Volume 42, Number 9

https://doi.org/10.1200/JCO.23.02399

Hackathon

Connect authed API/services 

• Daniel has an example for authed data services (no service accounts) 

USPS API

• Davin requested that we look at the USPS API to validate addresses.

• https://www.usps.com/business/web-tools-apis

• https://www.usps.com/business/web-tools-apis/address-information-api.pdf 

• https://www.usps.com/business/web-tools-apis/address-information-api.htm 

• https://developer.mozilla.org/en-US/docs/Web/XML/Parsing_and_serializing_XML 

• https://www.w3schools.com/xml/xml_parser.asp 

• https://developers.google.com/maps/documentation/address-validation/overview 

Earth Engine

• https://earthengine.google.com/

FHIR

• Picking FHIR as an example, recall auth scopes

• Google FHIR

• SMART Apps

• NIH FHIR

• Manual from Auth0: https://auth0.com/resources/whitepapers/best-practices-guide-for-smart-on-fhir/thankyou 

• Checking FHIR endpoints: https://www.healthit.gov/topic/interoperability/investments/lantern-project 

• What happened to projectCrucible?

• Test servers: https://confluence.hl7.org/display/FHIR/Public+Test+Servers  

• http://test.fhir.org/r4 - Grahame's test server

• https://www.npmjs.com/package/fhir 

• https://cloud.google.com/apigee <-- Google APIs

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July Descriptive Epidemiology Working Group Meeting

Wednesday, July 17

2:00-3:00 PM

Room 4E32/34 or TEAMS

Cancer incidence trends in

successive social generations in the United States

Dr. Philip Rosenberg

Senior Investigator

Biostatistics Branch