2019-07-31 JUL
Discussion of Data Standards (Nicole)
PowerPoint - https://nih.box.com/s/zgv63q93eyemwhbex903ldc74pl1ztqf
Preliminary Data Dictionary - https://nih.box.com/s/1y7vuv53p4o5la4oigrcmoet71y04jcl
Link from Jonas
W3C standard https://www.w3.org/2004/02/skos/
Links from Martin Ferguson - referred to but not discussed
Overall data model: https://gdc.cancer.gov/developers/gdc-data-model/gdc-data-model-components
Modeled as a graph. Each node has attributes, as organized in the data dictionary (next link).
Data dictionary: https://docs.gdc.cancer.gov/Data_Dictionary/viewer/
You will notice that each node on the graph is listed on this page. Click, e.g., on “Diagnosis”. Variables are linked to their NCI caDSR CDE on the right.
UI tool interface to the CBIIT EVS: https://docs.gdc.cancer.gov/Data_Dictionary/gdcmvs/
Try “head and neck”, and then click open “details” combo. Click on a value.
Questionnaires
preparing next week's session: https://observablehq.com/@episphere/questionnaires
Link from Jonas for Firebase A/B questionnaire testing https://firebase.google.com/products/ab-testing/
Module 2 Specs - these were developed by NORC based on the word version of the questionnaire and updated as the Qualtrics version of the questionnaire has been modified. This is the most recent version, but not the final version.