After The Bite
In the early 1980's, a Maryland mother set out to educate the public and health care professionals about a newly emerging infectious disease when her child became ill after being bitten by ticks. She spent years educating legislators, the public, government officials and health care professionals. She approached anyone who would listen and even those who wouldn't.
Her tireless efforts led to the establishment of "May Is Lyme Disease Awareness Month", which is now observed both nationally and internationally. She was also responsible for the first official Proclamation declaring May is Lyme Disease Awareness Month (Maryland- Governor William Donald Schaefer).
Her original volunteer efforts continue today. In her memory After The Bite was established in 1985 and the first Lyme Disease Support Group Meeting in the USA came to be.
As a tribute to her I have continued to do my best to educate and assist patients, health care professionals and other support group leaders.
Thank you mom, so very much! You saved my life!
Lucy Barnes, Director
Lyme Disease Education and Support Groups of Maryland
(3 Minute Video)
2018- Along with continuing educational efforts, website updating (12 sites w/ over 3 million visitors per year) and individual patient support, I am currently assisting, researching and submitting scientific and medical documentation for the newly formed federal Tick Borne Disease Working Group.
I am also involved in ongoing state and federal legislative efforts and have numerous ongoing Lyme related projects I continue to work on and/or that are being developed.
I am assisting with some legal cases, assisting support group leaders nationally and internationally, writing press releases, researching the scientific literature daily and dispursing the information.
Websites By After The Bite- Click Here
2017 Volunteer Activities Report- Click Here
Additional Volunteer Activity Reports- Click Here
Past Educational Efforts & Support- Click Here
Presented Programs For Public, Health Care Professionals- Total- 480
Organized, Founded and Led LD Educational Support Groups- Total- 4
Support Groups (Nationwide)- Assisted With Organization, Research, Providing Materials, Writing Media Announcements- Total- 33
Legal Cases- Initiated and/or Assisted With Research, Documentation, Support, Media Notices, etc.- Total- 25
Conferences Attended (LDA & ILADS, etc.)- Total- 28
Conferences- Assisted Before, During & After- Total- 30
Protests, Rallies Organized and/or Attended- Total- 31
Doctors Medical Board Hearings- Researched, Planned Rallies, Attended In Person- Total- 12
Legislative Bills In Various States & Federal Legislation- Researched, Worked With State Officials, Contacts Directly With Legislators, Letter Writing Campaigns, Submitted Written Testimony, Assisted Support Groups, Media Contacts, Advised Patients & Group Leaders- 56
Select Articles, Letters & Publications
1st Lyme related article published in the USA from a chronically ill Lyme patient and Lyme treating doctors perspective (NOT by IDSA/CDC or their supporters). It was painstakingly researched in the library- involving many trips- and written on a typewriter before the patient had a computer).
It took months to research and compose. The article was also based on personal experiences and from helping others.
It was published by the Record Observer in Centreville, MD in 1998, and then by some of its 'sister papers' on the eastern shore of Maryland. To see the article click here.
Hundreds of additional articles, letters to the editor and
Interviews by Lucy Barnes can be found on this site...
Don't Forget, Do A Tick Check!
Last Updated- April 2019