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June 2018
NEW YORK- GIVING MORE MONEY TO THE WRONG PEOPLE BY WAY OF SOME OF THE 45 LYME RELATED LEGISLATIVE BILLS INTRODUCED THIS SESSION...
Public Hearing Brings Experts and Patients to State Capitol
Now that you New Yorkers have gotten a MILLION DOLLARS, where is the money actually going?
Yes, it looks nice and neat in a fancied up press release in the Senator's Pre-Election Flash Announcements...
But what that self-serving blurb doesn’t tell you is WHO exactly is getting more money, why and what for?
For over 30 years (since 1986) the development of a good Lyme vaccine has been in the works. Today there are over 1,000 published Lyme vaccine related studies (and even more test related studies).
Who knows how much of the TAX-PAYERS money has been invested in these failed efforts?
At a time when money needs to stop flowing into the wrong pockets...
More money was just given, via the NY Bills, to those who have failed to give us a good test and a good vaccine even though they have been getting tons of funding to do just that for the past thirty years!
The biggest portion of the latest MILLION DOLLARS goes to...
Stoney Brook- $175,000 to have an INFECTIOUS DISEASE LAB
Their Scientific Advisory Panel Includes...
Benjamin- I can’t believe they keep falling for this stuff- Luft
He is a 2000 IDSA Lyme Disease Guideline Author! One of the reasons, the main reason, you are sick!
He has over 30 published studies related to a Lyme vaccine and/or tests, dating back to 1993. [Like the Energizer Bunny- he keeps going and going if the money keeps flowing and flowing.)
No good Lyme test yet either, and a miserably failed vaccine, but with all this new money we will give him maybe he can keep working on it for another 25 years to see if he will eventually make some progress?
Luft has published over 30 times with Wormser, Dattwyler and/or Halperin (other IDSA Lyme disease guideline authors)
Luft- this additional money will surely compliment whatever you get from your friends with the 129 Lyme related patents and your own patents.
IT DOESN'T TAKE A GENIUS TO SEE
THERE ARE MAJOR PROBLEMS HERE!
WHO IN NY WAS SUPPOSE TO DO THE RESEARCH?
WHY DIDN'T THEY?
Then there is...
Steven- I’m ONLY in it for the money honey- Schutzer
Published multiple times with Luft. And over 40 times he has published since 1993 on Lyme related vaccines and tests- and we still don’t have either!
If we keep giving him our hard earned money maybe in the next 30 years we will have a new test that we can say is "accurate"?
His MILLIONS in grant money from other sources is enough to make a hippo choke. But, herrrreee Stevieeee, let's give you more!
It will surely compliment whatever you get from your friends with the 57 Lyme related patents and your own patents.
Patrica Coyle
Coyle is also an IDSA Lyme Guideline Author (2000). Hello? https://www.ncbi.nlm.nih.gov/pubmed/10982743
She published on the Lyme vaccine multiple times since 1994 too.
Also published multiple times with Wormser, Steere, Shapiro, Luft, Schuzter, Dattwyler and/or other IDSA & CDC supporters.
Coyle- this additional money surely compliment whatever you get from your friends with the 88 Lyme related patents and your own patents.
NOT ONLY IS THE MILLION DOLLARS BEING WASTED
AS USUAL
IT WILL BE USED AGAINST US!
Cornell University- $130,000
They have no specialists in ticks or tick borne diseases. In fact, in last year's annual report they simply mentioned how to properly remove a tick. That’s it! So they are getting $130,000 for what exactly?
Cornell Cooperative Extension- $26,000 for a series of regional Lyme and TBD forums
Enter the word “Lyme” in their search bar. NOTHING!
http://cce.cornell.edu/search/google/Lyme
Their organizational chart states they have a Board of Directors, a professional staff and 45,000 volunteers, so do they really need $26,000 MORE in tax-payers money to do a few educational Lyme talks?
And being a government agency, where do you think they will get their Lyme information from when prepping their government program?
New York State Department of Health – $60,000
We all love the health departments, don't we?
The NY Commissioner of the Department of Health is ZUCKER who is directing this fiasco.
Partial background- he has ties to and has trained at Johns Hopkins Hospital, the Hospital at University of Pennsylvania, the Children's Hospital of Philadelphia and the Children's Hospital Boston/Harvard Medical School. https://www.health.ny.gov/commissioner/bio/
Can there possibly be any worse of a combination of places to be from when it comes to being in charge of patients with chronic Lyme disease?
NY County Health Departments- $112,000
The No Nothings/Do Nothings on Lyme disease are getting more in educational funding! MORE? $112,000 MORE? Is this based on the wonderful job they have been doing in the reporting of cases? Only missing 9 of every 10 cases they are. Most people would be fired for that, but they are being rewarded?
Check for yourself! Type "Lyme" in their search bar and see what comes up about Lyme disease that would be available to help the public. NOTHING!!!! Absolutely NOTHING!!! Not just bad info- NOTHING!
http://www.nysacho.org/i4a/search/search.cfm
New York State Department of Health – $25,000 MORE to continue database mining
TOTAL SO FAR TO HEALTH DEPARTMENTS- $197,000
This tax-payer money is going to the NY Health Department just from this one bill. So deserving too they are- oh my! They’ve done such a great job in making a positive difference in New Yorker's lives so far. Haven’t they? Or not? Who is running this show?
SUNY Adirondack– $100,000 for laboratory research on lesser-known TBDs
No experience and no public information on Lyme & TBD provided at all. A search on “Lyme” on their website brings up 3 names of people who donated from $50 to $249 for Lyme research.
And a student’s name who volunteers "with community flu clinics and organizations dedicated to Lyme research."
THAT’s IT! $100,000 for those who haven't the experience or proven dedication to do this job? We are helping them build an INFECTIOUS DISEASE lab?
SUNY Adirondack- $100,000
SUNY Adirondack already received over $31 million dollars in grants and support from New York State, Warren and Washington counties to build and renovate their science facilities, build a regional Workforce Readiness Center (WORC), and offer additional support services for their students.
On Sept. 8, 2017, they opened the first of three new and remodeled spaces in Adirondack Hall. The new science addition includes nine labs and prep rooms, a microbiology research room, three classrooms, a greenhouse and aquarium.
Isn't this suppose to be an alumni function (fund raising), or are tax-payer suppose to be paying for renovations to this school with money they are made to believe is to be used for Lyme disease?
https://sunyacc.edu/give/reach-new-heights-campaign
SUNY College of Environmental Science and Forestry – $50,000 to monitor seasonal variations of ticks
In it’s annual report it states…
Research Proposals submitted, but rejected... CDC UO1, Climate Change and Vector - Borne Disease: Predicting the Spread of Blacklegged Ticks and Lyme disease, $ 835,022. PI: Jesse Brunner;; coPIs: Richard S. Ostfeld (CIES) and Justin Calabrese (UFZ, Leipzig, Germany). http://www.esf.edu/search/results.asp?q=Lyme
Do they really need that much money to count ticks and write down some tick facts?
Paul Smith’s College – $30,000 to study ticks they collect
They actually have done a study on ticks, if you want to call it that! For that accomplishment they get $30,000? Hello?
QUOTE- “...Cxxxxx is a senior at Paul Smith’s. He was part of the team that traveled to 13 state parks and forests, dragging cloth flags through the underbrush.
"We would flag for 20 paces and then when you flip over the flag and check it," Cxxxx said. "We would be finding 6 to 8 ticks on some of them in the higher-density areas, which is pretty crazy. You’re thinking somebody could be hiking through the woods and then these amount of ticks could be attaching onto their pants or something."
Town of Shelter Island – $25,000 to help combat the spread of ticks on Shelter Island
Nice gesture, but the $25,000 is a drop in the bucket in this case.
The size of NY State is approximately 30.2 MILLION acres. Shelter Island is approximately 6,000 acres.
Shelter Island has already put out SIXTY 4-poster deer stations. Each station provides coverage for approximately 50 acres of land. They have enough stations to provide coverage for 3,000 acres.
The cost of setting up and maintaining just one 4-poster station is approximatley $5,000- $6,000 per year.
Total current costs= $300,000 to $360,000 per year to provide coverage for 1/2 of Shelter Island. Or $600,000 to $720,00 to cover the entire Island per year. (Plus labor costs.)
That is about $100 per acre per year (plus labor).
For a three year program it will cost Shelter Island approx. $1.8 million to $2.16 million (plus labor) to try to reduce their tick population. (This does not speak to the potential harm to the environment, the deer or those who hunt and consume deer that have been soaked repeatedly with insecticides.)
Total= $5.4 BILLION (plus labor) to provide coverage for NY State to help reduce its tick population.
Keep in mind, NY State had not approved the use of the insecticide or the 4 poster stations in the early years. It may be problematic for those across the state to get permission for this approach elsewhere.
(Stations can cost between $500 and $1,000 each. The cost to purchase bait, rollers, insecticide, etc. is approx. $4,000 per year. Costs to pay staff to maintain the stations, purchase supplies and monitor the results is additional and varies.)
BTW- I know Lyme disease, but I don't do "math". If my figures are off please feel free to email me a nice note with the corrected figures. It would be appreciated.
https://www.shelterislandtown.us/deer-and-tick/
Cary Institute of Ecosystem Studies, Inc. – $192,000 to research community-based prevention methods
Cary Institute of Ecosystem Studies, Inc. – $192,000 to research community-based prevention methods
Yes, the one with Richard S. Ostfeld - who already gets lots of grant money to study prevention methods.
Like the $245,000 PLUS, from people like Phil Baby Baker (the holy terror at the American Lyme Disease Foundation (ALDF), along with Wormser, et. al.)
See some of what Phil Baby Baker has to say about chronic Lyme and all of us... click here.
QUOTE- Ostfeld needs more money ($192,000) to- "...help determine whether neighborhood-based prevention can reduce human cases of Lyme and other TBDs.” HUH?
$192,000 MORE? They’ve been there, done that- look at all the published studies! It's called redundent research and is a total waste! (GH)
Time to take a deep breath.... but, if the Cary Institute- Richard Ostfeld- needs MORE of our tax-payers money to continue to do the same thing over and over again, well, in the spirit of giving, let’s just give all of that money to him to blow, while the rest of us are still waiting for REAL help and are suffering.
NY Senate Press Release
It appears the legislators went forward with the mantra "do something"- that came from Lyme advocates, patients and doctors- so they could have the bragging rights for appearing to be doing something "good" (pre-election). Unfortunately, these actions may just be harmful enough to take the lives of more innocent people.
"I am especially proud to have secured funding that will go directly to our local community."
"My colleagues and I fought hard to secure this funding…”
“… I am very grateful to have helped secure it as part of this year’s budget.”
A MILLION DOLLARS ENDS UP IN THE WRONG HANDS- AGAIN!
What the heck is going on in New York?
Does Anyone Know?
Does Anyone Care?
Lucy Barnes
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