2019 Notes Phone Conference 2/19/19 Senator & Delegate Sponsors
It is medical problems we need addressed. We need doctors to treat and not be afraid of Hopkins/IDSA and Board of Physicians.
Too much bureaucracy--- not enough direct action.
At best this bill is a roadblock in our attempt to make progress.
Document no one will read- Guidelines for the Submission of Reports to the Maryland General Assembly in accordance with § 2-1246 of the State Government Article.
Patents Johns Hopkins Borrelia
Compositions and methods for controlling microbial growth
http://patft1.uspto.gov/netacgi/nph-Parser?Sect1=PTO2&Sect2=HITOFF&p=1&u=%2Fnetahtml%2FPTO%2Fsearch-bool.html&r=1&f=G&l=50&co1=AND&d=PTXT&s1=Borrelia&s2=Hopkins.AANM.&OS=Borrelia+AND+AANM/Hopkins&RS=Borrelia+AND+AANM/Hopkins
Methods of modulating immune function
Applicant:
NameCityStateCountryType
The Johns Hopkins University
Baltimore
MD
US
Assignee:
The Johns Hopkins University (Baltimore, MD)
Family ID:
43297014
Appl. No.:
14/456,457
Filed:
August 11, 2014
In a specific aspect, presented herein are methods for preventing, treating, and/or managing an infectious disease, comprising administering to a subject in need thereof an effective amount of an Immunostimulating Therapeutic Agent or a composition thereof. In a specific embodiment, an Immunostimulating Therapeutic Agent or a composition thereof is the only active agent administered to a subject.
Bacterial diseases caused by bacteria ... that can be prevented, treated and/or managed in accordance with the methods described herein include, but are not limited to, mycobacteria rickettsia, mycoplasma, neisseria, S. pneumonia, Borrelia burgdorferi (Lyme disease), ...
Parasitic diseases caused by parasites that can be prevented, treated and/or managed in accordance with the methods described herein include, but are not limited to, chlamydia and rickettsia.
Lyme, Bartonella & Babesia
Compositions and methods for modulating an immune response
Applicant:
NameCityStateCountryType
THE JOHNS HOPKINS UNIVERSITY
Baltimore
MD
US
Assignee:
The Johns Hopkins University (Baltimore, MD)
Family ID:
41265231
Appl. No.:
14/282,338
Filed:
May 20, 2014
Babesia- Inhibitors of DXP synthase and methods of use thereof
Applicant:
NameCityStateCountryType
The Johns Hopkins University
Baltimore
MD
US
Assignee:
The Johns Hopkins University (Baltimore, MD)
Family ID:
53774367
Appl. No.:
14/618,589
Filed:
February 10, 2015
Babesia- Small molecule malarial Aldolase-TRAP enhancers and glideosome inhibitors
Applicant:
NameCityStateCountryType
NEW YORK UNIVERSITY
THE JOHNS HOPKINS UNIVERSITY
New York
Baltimore
NY
MD
US
US
Assignee:
New York University (New York, NY)
The Johns Hopkins University (Baltimore, MD)
Family ID:
48168482
Appl. No.:
14/353,438
Filed:
October 25, 2012
Babesia- Anti-H7CR antibodies
Applicant:
NameCityStateCountryType
Amplimmune, Inc.
The Johns Hopkins University
Gaithersburg
Baltimore
MD
MD
US
US
Assignee:
The Johns Hopkins University (Baltimore, MD)
MedImmune, LLC (Gaithersburg, MD)
Family ID:
50979316
Appl. No.:
14/654,109
Filed:
December 23, 2013
Babesia- Anti-human B7-H4 antibodies and their uses
Applicant:
NameCityStateCountryType
MEDIMMUNE, LLC
The Johns Hopkins University
Gaithersburg
Baltimore
MD
MD
US
US
Assignee:
MedImmune, LLC (Gaithersburg, MD)
The Johns Hopkins University (Baltimore, MD)
Family ID:
49917300
Appl. No.:
14/654,074
Filed:
December 19, 2013
Babesia- Membrane activated chelators and use in the prevention and treatment of parasitic infection
Applicant:
NameCityStateCountryType
THE JOHNS HOPKINS UNIVERSITY
Baltimore
MD
US
Assignee:
The Johns Hopkins University (Baltimore, MD)
Family ID:
48044409
Appl. No.:
14/349,677
Filed:
October 5, 2012
PCT Filed:
October 05, 2012
Rickettsia & Hopkins (spotted fevers)
PAT. NO.
Title
1
Compositions and methods for controlling microbial growth
2
Synthetic antiserum for rapid-turnaround therapies
3
Method of determining, identifying or isolating cell-penetrating peptides
4
Methods of modulating immune function
5
Compositions and methods for modulating an immune response
6
Compositions and uses thereof for the treatment of wounds
Previous Task Force Info
Ultimately, it was recommended that DHMH and its partner agencies enhance provider and patient education in the following areas:
- Primary care providers in endemic areas should be familiarized with all aspects of this disease and should understand both the characteristics and limitations of the laboratory tests commonly used to diagnose Lyme disease.
- Primary care providers should be made aware of challenges in the clinical recognition of the erythema migrans rash and its varying manifestations in ethnic and minority patients.
- Patients and providers should be made aware of and should communicate about available treatment options; physicians should exercise clinical discretion and should individualize medical decision-making.
No consensus was reached by the subcommittee on recommending use of either of the two treatment guidelines discussed. It was determined that the role of DHMH is not to recommend a specific treatment protocol to providers, except in those cases where adequate treatment could prevent further dissemination of disease (i.e. tuberculosis). LD is not considered as such a communicable disease.
The subcommittee discussed several guidelines currently used by medical practitioners to determine the best treatment approach for LD. The wide variation in strategies for treatment has created controversy among physicians and among patients as well.
The spectrum of treatment approaches is anchored by two well-known guidance documents: the Infectious Diseases Society of America (IDSA) guidelines2 and the International Lyme and Associated Diseases Society (ILADS) guidelines3. These two sets of guidelines represent examples of the variety of resources and guidance that individual providers may utilize in formulating individual care plans for their patients.
In addition to these differences in approach to use of medications for patients with ongoing manifestations of symptoms, these guidelines vary in their reliance on laboratory diagnostic tests, diagnosis and treatment of other tick-borne co-infections, and their use of complimentary or supportive therapies including diet, probiotics, vitamins and other supplements, physical therapy, joint infusions, surgery, and acupuncture.
Presentation of prolonged or recurrent infection in Lyme disease can be identical or similar to that of other multisystem disorders. The current debate within the medical community over issues concerning management of patients with recurrent, chronic or post-Lyme syndrome demonstrates that the practice of medicine is not an exact science. As illustrated by the controversy surrounding Lyme disease diagnosis and treatment, a pressing need exists for the medical community to improve its understanding of approaches to addressing the complications of Lyme disease.
Howard County Study- 2008
Vaccine Expert From Yale Global Health helped with study, Dr. Saad Omer
Lyme patients 1-83 years old
66% Male & 44% Female
Need County Wide Prevention Initiative
If you have these symptoms your case of Lyme can not qualify for a "case" report.
Non-confirmatory. Non-confirmatory signs and symptoms include:
Fever, sweats, chills, fatigue, neck pain, arthralgia, myalgia, fibromyalgia syndromes, cognitive impairment, headache, paresthesia, visual/auditory impairment, peripheral neuropathy, encephalopathy, palpitations, bradycardia, bundle branch block, myocarditis, or other rash.
Global Leadersip Council- Assisted with Lyme vaccine (sometime before winter of 2002)
"...biotech firms,in its development of a Lyme Disease vaccine."
https://eng.umd.edu/html/media/e-at-m/02_e@m_Winter_sm.pdf
mention of student who had Lyme
https://mse.umd.edu/sites/mse.umd.edu/files/newsletters/Techtracks-Spring2014.pdf
acorns and Lyme- 2 lines of other researchers work
https://bioe.umd.edu/~artjohns/books/biology-for-engineers/09-Part-IIIa-BRIC-pp396-454.pdf
Techniques to Monitor Nerve Damage- PATENT- that may help track nerve damage.
https://eng.umd.edu/~neil/siddharth/childrens/Katims_Neurometer_7634315.pdf
Maryland DOH Secretary
Robert L. Neall, a veteran public official who has held many roles in government, to run the Maryland Department of Health.
Previously- Schrader, 64, a former Republican councilman in Howard County, had a tumultuous tenure during his year in charge of one of the state’s largest agencies. He was appointed in late 2016 after Secretary Van Mitchell left the post. Schrader’s time as secretary was marked by the firing of several high-level officials and a civil contempt finding against him for the department’s delays in providing beds for accused offenders referred to state psychiatric hospitals under court orders. The department is appealing that ruling by Baltimore Circuit Judge Gale E. Rasin.
https://www.baltimoresun.com/news/maryland/politics/bs-md-neall-schrader-20171221-story.html
Robert Neall- Hopkins related
Vice-President for External Affairs, The Johns Hopkins Health System, 1987-90. Director of Finance, The Johns Hopkins Hospital and Health System, 1997-2004. (US Navy)
Also- Member of Senate (Democrat),* representing District 33, Anne Arundel County, December 1996 to January 8, 2003. Member, Budget and Taxation Committee, 1996-2003 (capital budget subcommittee, 1997-2003; chair, education, business & administration subcommittee, 2000-03). Member, Task Force to Study County Property-Tax Setoffs and Related Fiscal Issues, 1997; Special Joint Committee on Pensions, 1997-99; Special Committee on Gaming, 2001-02; Spending Affordability Committee, 2001-03; Joint Committee on the Selection of the State Treasurer, 2002; Legislative Policy Committee, 2002-03; Task Force to Study the State's Retiree Health Insurance Liabilities, 2002-03. [*(changed party affiliation from Republican to Democrat, Nov. 12, 1999, & from Democrat to Republican, June 2006).]
https://msa.maryland.gov/msa/mdmanual/16dhmh/html/msa11605.html
Wiki Robert Neall
https://en.wikipedia.org/wiki/Robert_R._Neall
MDH has four major divisions - Public Health Services, Behavioral Health, Developmental Disabilities, and Health Care Financing. In addition, the department has 20 boards that license and regulate health care professionals; and various commissions that issue grants, and research and make recommendations on issues that affect Maryland’s health care delivery system. We depend on a staff of more than 6,500 and a budget of more than $12 billion to provide needed services to Maryland communities.
In 2009, functions of the Community Health Administration, including oversight of local health departments, transferred to the Infectious Disease and Environmental Health Administration. In July 2009, oversight of local departments of health was placed directly under the Deputy Secretary for Public Health Services. Today, local health departments in Maryland's twenty-three counties and Baltimore City are overseen by the Public Health Services of the Maryland Department of Health.
Each local health department administers and enforces State, county and municipal health laws, regulations, and programs. Public health programs tailored to community needs provide preventive care; immunizations; health education; drug and alcohol abuse counseling; and rabies and communicable disease prevention. Information about these and all other health-related State programs may be found by contacting local health departments.
https://msa.maryland.gov/msa/mdmanual/01glance/html/healloc.html
- Allegany County Health Department
- Anne Arundel County Health Department
- Baltimore City Health Department
- Baltimore County Health Department
- Calvert County Health Department
- Caroline County Health Department
- Carroll County Health Department
- Cecil County Health Department
- Charles County Health Department
- Dorchester County Health Department
- Frederick County Health Services Division
- Garrett County Health Department
- Harford County Health Department
- Howard County Health Department- refers to CDC
- Kent County Health Department
- Montgomery County Department of Health & Human Services
- Prince George's County Health Department
- Queen Anne's County Health Department
- St. Mary's County Health Department
- Somerset County Health Department
- Talbot County Health Department
- Washington County Health Department
- Wicomico County Health Department
- Worcester County Health Department
https://msa.maryland.gov/msa/mdmanual/01glance/html/healloc.html
Example- Howard County- 87% of people got Lyme at their own residence.
https://health.maryland.gov/phase/Documents/MargaretDoll.pdf
Case reports 2000-2016
https://phpa.health.maryland.gov/OIDEOR/CZVBD/Shared%20Documents/2000-2016%20LymeDisease.pdf
Dept of Agriculture & NR- Study on mice with little collars
https://agnr.umd.edu/news/combating-lyme-disease-maryland
HOPKINS, etc. Antiscience and ethical concerns associated with advocacy of Lyme disease
Dr Paul G Auwaerter MDa, , , Johan S Bakken MD, PhDc, Prof Raymond J Dattwyler MDd, Prof J Stephen Dumler MDb, Prof John J Halperin MDf, g, Edward McSweegan PhDh, Prof Robert B Nadelman MDe, Susan O'Connell MDi, Prof Eugene D Shapiro MDj, Prof Sunil K Sood MDk, Prof Allen C Steere MDl, Prof Arthur Weinstein MDm and Prof Gary P Wormser MDe
QUOTE- "Advocacy for Lyme disease has become an increasingly important part of an antiscience movement that denies both the viral cause of AIDS and the benefits of vaccines and that supports unproven (sometimes dangerous) alternative medical treatments. Some activists portray Lyme disease, a geographically limited tick-borne infection, as a disease that is insidious, ubiquitous, difficult to diagnose, and almost incurable; they also propose that the disease causes mainly non-specific symptoms that can be treated only with long-term antibiotics and other unorthodox and unvalidated treatments.
Similar to other antiscience groups, these advocates have created a pseudoscientific and alternative selection of practitioners, research, and publications and have coordinated public protests, accused opponents of both corruption and conspiracy, and spurred legislative efforts to subvert evidence-based medicine and peer-reviewed science. The relations and actions of some activists, medical practitioners, and commercial bodies involved in Lyme disease advocacy pose a threat to public health."
Some changes in Surveillance Criteria- new 2018 reporting form
Page 2, second section- Case Surveillance
This surveillance case definition was developed for national reporting of Lyme disease; it is not intended to be used in clinical diagnosis.
Page 2, about middle of page…
Exposure. Maryland is considered a high incidence Lyme disease state. Exposure is defined as living in the state of Maryland.
Last section page 2...
Additionally, synovial fluid is not currently a validated specimen source for Lyme disease surveillance purposes and therefore should not be considered as laboratory evidence of infection.
Maryland's Algorithum for Diagnosing Cases
https://phpa.health.maryland.gov/OIDEOR/CZVBD/Shared%20Documents/Lyme%20Algorithm.pdf
- Johns Hopkins Lyme Disease Clinical Research Center Opens
- APRIL 1, 2015
The Center at Hopkins will enable the groundbreaking SLICE program (Study of Lyme disease Immunology and Clinical Events) to be strengthened and expanded, with the goal of advancing the understanding of disease mechanisms and improving diagnostics, treatments and patient outcomes.
We are participating with the following insurance payors:
- Aetna Health Plan
- Beech Street PPO
- Blue Cross Blue Shield
- CareFirst BlueChoice HMO
- CIGNA
- Coventry Healthcare
- EHP
- First Health
- Great West/One Health PPO
- Humana Choicecare
- InforMed/CHP
- Kaiser
- MDIPA HMO
- Maryland Medical Assistance
- Medicare Part B*
- Multiplan PPO
- NCAS
- One Net PPO
- Optimum Choice HMO
- Priority Partners MCO
- Private Healthcare Systems (PHCS)
- Tricare Reserve Select
- Tricare Standard
- United Healthcare
- US Family Health Plan
*We do not participate with out-of-state Medicaid or Medicare Advantage/Replacement plans
Steere et. al. study describing chronic Lyme- 1994
What Constitutes Appropriate Treatment of Post-Lyme Disease Symptoms and Other Pain and Fatigue Syndromes?
Allen C. Steere and Sheila L. Arvikar
Division of Rheumatology, Allergy and Immunology, Center for Immunology and Inflammatory Diseases, Massachusetts General Hospital, Harvard Medical School, Boston Keywords. Lyme disease; post-Lyme disease symptoms; pain and fatigue syndromes; treatment.
QUOTE- (Steere) "Then, how do we help such patients? We try to begin by remembering the Hip- pocratic Oath, which states, “first, do no harm.” Borrowing from treatment studies of fibromyalgia, multidisciplinary ap- proaches that combine medications with nonpharmacologic therapies are usually best [19]. Possible medications for reducing pain signals include gapabentin, pregabalin, dual serotonin and norepinephrine reuptake inhibitors, or tricyclic antidepressants, such as amitriptyline, which may also aid in restoring sleep cycles. In addition, selective seratonin reuptake in- hibitors may help in the control of coex- istent mood disorders.
Nonpharmacologic approaches include cognitive behavioral therapy in groups with other patients, under the guidance of a trained health professional, which is a valuable way to learn coping skills, particularly stress reduction. Moreover, a number of safe alternative therapies, can be helpful, and in some cases, they may be as or more effective than pharmacotherapy
[20]. For example, 2 randomized, con- trolled trials showed the effectiveness of tai chi, a mind-body practice, in improving fibromyalgia symptoms [20, 21]. Other complementary therapies include medita- tion, yoga, qi-gong, acupuncture, massage, or low-impact aerobic exercise programs, which include walking or aquatic exercise. Finally, as with the treatment of any dis- ease, empathetic engagement by the pa- tient’s physician is a vital component of a successful outcome."
Aucott (HOPKINS) info on PTLDS & Studies listed on Maryland Health Department Website
Center for Zoonotic and Vectorborne Diseases (CZVBD)
https://phpa.health.maryland.gov/OIDEOR/CZVBD/Shared%20Documents/ZDU_PTLS_Aucott.pdf
Call- Center for Zoonotic and Vector Borne Diseases
David Crum, DVM, MPH,
State Public Health Veterinarian
Maryland Department of Health and Mental Hygiene
Center for Zoonotic and Vector‐Borne Diseases
201 W. Preston St., Room 317
Baltimore, MD 21201
410‐767‐5649
Dr. Crum (vet)- spoke to Mary- about 5 employees there. Replaced Katheryn Feldman.
Monitor all commercial labs and state labs for blood work, didn't know which ones.
Been there 1 year and eight months.
David A. Crum- OVERSEEING STATEWIDE SURVEILLANCE, reporting, and outreach programs for zoonotic and vector-borne diseases.
SUPPORTING LOCAL HEALTH DEPARTMENTS in the surveillance of zoonotic and vector-borne diseases, provide training and technical consultation pertaining to case investigation and case definitions. Applies law, regulations and policy as they pertain to zoonotic and vector-borne diseases.
COORDINATING WITH RELEVANT MARYLAND STATE AGENCIES, including the Maryland Department of Agriculture, the Department of Natural Resources, the Maryland Department of the Environment, the Attorney General and others regarding zoonotic and vector-borne disease investigation and surveillance.
COORDINATING WITH THE US CENTERS FOR DISEASE CONTROL AND PREVENTION (CDC) and other relevant federal agencies (e.g., the US Food and Drug Administration) staff responsible for corresponding programs at the Federal level.
PROVIDING CONSULTATION AND TECHNICAL ASSISTANCE to veterinarians, healthcare providers, and the general public regarding zoonotic and vector-borne diseases.
PREPARING AND WRITING AGENCY DOCUMENTS pertaining to zoonotic and vector-borne diseases, including surveillance summaries, press releases, policy statements, presentations, controlled correspondence, training materials, grant applications, regulations, draft legislation, and agency support or opposition to legislation.
https://www.linkedin.com/in/davidacrum/
CSTE
https://www.cste.org/members/group.aspx?id=144262
STEERE STUDY- Test-Treatment Strategies
We considered four test-treatment strategies: 1) no testing-no treatment, in which no testing was done and no antibiotic treatment was given for Lyme disease; 2) testing with enzyme-linked immunosorbentassay [ELISA] followed by treatment of patients with positive results; 3) two-step testing with ELISA followed by Western blot of all specimens with equivocal or positive ELISA results and treatment of patients with positive results on either test; and 4) antibiotic treatment for all patients suspected of having Lyme disease.
For a patient who had myalgic symptoms without rash, the no testing-no treatment strategy dominated the other test-treatment strategies. For a patient who had myalgic symptoms and rash but no tick bite, the no testing-no treatment strategy was associated with the lowest cost-effectiveness ratio. Two-step testing costan additional $7000 per QALY. Other strategies cost more and were less effective (that is, they were dominated.) For a patient who had myalgic symptoms and tick bite but no rash, the no testing-no treatment strategy dominated all other strategies. For a patient who had myalgic symptoms and a history of rash and tick bite, two-step testing was associated with the lowest cost-effectiveness ratio. In this scenario, other strategies were dominated by the two-step testing strategy or were associated with large incremental cost-effectiveness ratios. The difference between the effectiveness of two-step testing and the no testing-notreatment strategy was less than 5% for any analysis of patients with myalgic symptoms.
For a patient who had a typical or atypical rash resembling erythema migrans, empirical therapy with antibiotics was less costly and more effective than any other test-treatment strategy.
For a patient with oligoarticular arthritis and no or one other feature suggestive of Lyme disease, two-step testing dominated other strategies or was associated with an incremental cost of less than $10 000 per QALY. For a patient with oligoarticular arthritis and a history of rash and tick bite, the two-step testing strategy was associated with the lowest cost-effectiveness ratio; other strategies were dominated by two-step testing or were associated with large incremental cost-effectiveness ratios. The difference between the effectiveness of two-step testing and of no testing-no treatment was less than 7% for any analysis of patients with oligoarticular arthritis.
Conclusion: For most patients with a positive Lyme antibody titer whose only symptoms are nonspecific myalgia or fatigue the risks and costs of empirical parenteral antibiotic therapy exceed the benefits. Only when the value of patient anxiety about leaving a positive test untreated exceeds the cost of such therapy is the empirical treatment cost-effective.
http://www.annals.org/cgi/content/full/119/6/503
Global Leadership Council
Members
Mr. Joe Bartenfelder
Secretary of Agriculture
Department of Agriculture
Wayne A. Cawley, Jr. Building
50 Harry S. Truman Parkway
Annapolis, MD 21401 - 8960
Joseph Bartenfelder was named by Governor Larry Hogan to serve as Secretary of Agriculture on December 23, 2014. He was approved by the Senate and sworn in to office in March 2015.
Mr. Bartenfelder grew up on a farm and for more than 35 years has been a full-time farmer and small businessman. His family lives on the home farm in Caroline County, and also owns and operates two other farms in Dorchester County. The Bartenfelder family sells produce at the Baltimore City Farmers’ Market and wholesale, raises poultry, and grows wheat, beans, and corn. (The Bartenfelder family has been farming its original Baltimore County farmsted since 1903.)
From December 1994 to December 2010, he served as a member of the Baltimore County Council, representing District 6, (chair, 1997, 2000, 2005, 2009). He also chaired the Baltimore County Spending Affordability Committee.
Mr. Bartenfelder also served as a member of the House of Delegates from 1983-94, representing District 8 (Baltimore County).
https://www.nasda.org/person/joe-bartenfelder
Mr. Mark Belton- GONE- New Job
Secretary of Natural Resources
Office of Secretary
Department of Natural Resources
Tawes State Office Building
580 Taylor Ave.
Annapolis, MD 21401-2397
Leaving DNR https://www.baltimoresun.com/news/maryland/environment/bs-md-mark-belton-20190108-story.html
Lawsuit filed against him by employee- over her demotion after posting on Facebook.
https://www.lexology.com/library/detail.aspx?g=4724a1cc-1982-4d00-a410-a28b6c11b104
Dr. Bonnie Braun
University of Maryland
1142 School of Public Health
Department of Family Science
4200 Valley Drive
College Park, MD 20742
Mr. Jeff Bruff
Rock Garden
2950 NW 74th Avenue
Miami, FL 33122
Dr. Leon Bruner
Executive Vice President & Chief Science Officer
Grocery Manufacturers Association
1350 I Street, Suite 300
Washington, DC 20005
Terron Hillsman
Maryland State Conservationist
Natural Resources Conservation Service, USDA
339 Busch's Frontage Road, Suite 301
Annapolis, MD 21409-5543
Hillsman will oversee the agency's 80 employees in 23 offices throughout Maryland. NRCS provides technical and program assistance to thousands of farmers and landowners on voluntary projects to conserve and protect natural resources. He is responsible for the agency’s $26 million budget in Maryland, including $15 million in federal conservation assistance to the state’s farmers and producers.
https://www.nrcs.usda.gov/wps/portal/nrcs/detail/md/newsroom/releases/?cid=NRCSEPRD355454
Mr. David Crean
Vice President, Corporate R&D
Mars, Inc.
6885 Elm Street
McLean, VA 22101
Senator Adelaide Eckardt
James Senate Office Building
Room 322
11 Bladen Street
Annapolis, MD 21401
Adelaide.eckardt@senate.state.md.us
Mr. Steve Ernst
Ernst Farms
13646 Broadfording Road
Annapolis, MD 21403
Ms. Vanessa Finney
Quercus Management
P.O. Box 818
Brooklandville, MD 21022
Mr. Robert Frazee
President & CEO
Mid Atlantic Farm Credit
713 Lythe Hill Court
Westminster, MD 21158-3021
410.876.5854
Terron Hillsman
Maryland State Conservationist
Natural Resources Conservation Service, USDA
339 Busch's Frontage Road, Suite 301
Annapolis, MD 21409-5543
Ms. Alison Howard
Homestead Farms, Inc.
2250 Millington Road
Millington, MD 21651
Dr. Roger Lawrence
Vice President, Quality Assurance
McCormick & Company, Inc
18 Loveton Circle
Sparks, MD 21152-9202
Mr. Steve Levitsky
Vice President, Environmental Sustainability
Perdue Farms, Inc.
31149 Old Ocean City Road
Salisbury, MD 21804
Mr. Cole Mangum
Bell Nursery USA
3838 Bell Road
P.O. Box 70
Burtonsville, MD 20866
Mr. Mortimer Neufville - APLU
14844 Poplar Hill Road
Germantown, MD 20874
Ms. Joan Norman
One Straw Farm
19718 Kirkwood Shop Road
White Hall, MD 21161
Ms. Jennifer Rhodes
University of Maryland Extension
Queen Anne's County
505 Railroad Avenue, Suite 4
Centreville, MD 21617
Dr. Richard Streett, Jr.
Churchville Veterinary Clinic
2828 Churchville Road
Churchville, MD 21028
Dr. Darius M. Swietlik (Liason)
Director, Northeast Area
Agricultural Research Service
United States Department of Agriculture
10300 Baltimore Avenue, Building 003, Room 223
Beltsville, MD 20705-2325
https://agnr.umd.edu/about/office-dean/global-leadership-council
Maryland Task Force
These recommendations address:
1) enhancements to surveillance for LD and other tick-borne illnesses for a more accurate portrayal of the burden of disease in Maryland,
2) public education about tick population control and the need for additional research on the effectiveness of certain host control measures, and
3) increased information sharing for the public and providers to enhance easy access to current diagnostic and treatment information, and
4) availability of educational materials and programs for school-aged children and campers.
The recommendations also support heightened awareness by providers and patients of the spectrum of treatment approaches, increased provider-patient communications, as well as prompt evaluation, early recognition and treatment of LD signs and symptoms.
Greater clarification to providers is needed about the role of licensing entities (e.g. Maryland Board of Physicians) in regulating practice and licensing matters.
Taken together, these recommendations form the basis for the strategic approach to be taken by DHMH, partner agencies and providers, individuals and organizations on collaboratively achieving enhanced LD prevention and control programs in Maryland.
Ultimately, it was recommended that DHMH and its partner agencies enhance provider and patient education in the following areas:
- Primary care providers in endemic areas should be familiarized with all aspects of this disease and should understand both the characteristics and limitations of the laboratory tests commonly used to diagnose Lyme disease.
- Primary care providers should be made aware of challenges in the clinical recognition of the erythema migrans rash and its varying manifestations in ethnic and minority patients.
- Patients and providers should be made aware of and should communicate about available treatment options; physicians should exercise clinical discretion and should individualize medical decision-making.
Notes from Phone call- 2/19/19 4:30 PM
Legislator- has patients coming to her.
Marilyn- Didn’t work in Delaware. Fed group is doing research. 2 years will get you nothing.
Green- So far behind the 8 ball. Other side too far entrenched.
Monte- Virginia raised money and diversity was promised, but never carried through. Failed in VA for Natcap. We actually just found out about this bill recently- bill was put in late. Bring both sides together to have another bill next year.
Senator- Bill usually attracts a lot of attention. How can we pull together a critical mass to get things moving.
Monte- only has one protocol for Lyme.
Schizophrenia it reminds her of it- Senator. We have a lot of passion but hard to provide support. She sends people to NY and PA for treatment. Deer and elk dying due to number of ticks on animals. Scary- could move our way.
Monte- long horned tick- they officials don’t know about this.
Senator- People called they don’t like this bill.
Marilyn- does events and talks one on one- cuouriser and curiouser. She sees change in regular docs. They did 3 CME conferences- no one from Delmarva came.
Senator- Once we get a famous person come down with it then it will get attention.
Green- blah blah Medical Board. If you do practice other guidelines.
Marilyn- Maryland state health dept and big institutes aren’t your friend.
Green- Texas lawsuit- we became hostage to this system. She called “Paul” and persistence.
Monte- there was a task force in Maryland that we sat on. HUH? They quit. Said she has a paper copy. Senator
Senator on task force every 10-15 years for getting more nurses. Nothing ever becomes of it. We need a group together that will actually help. Knows group who want to do an autoimmune study.
Mari- knows them, not impressive. “spectacular”
Senator- raising concerns. If you all just don’t think it is worth the investment and you want to wait till something happens with national group…
Alan- One issue is physicians and fear of medical board. Coming back next year with that bill. Can you work
Fran new nurse at health dept. And Board of physicians.
Green- Med-chi thinks is sympathetic.
Sen- has talked with health department and medical board- has friends there.
Is it worth going forward with hearing to open up discussion.
Green- pleading for years. Doesn’t want to see this happen. We don’t feel it is good.
Sen- I can certainly pull it. Several answered that’s good.
Monte says we are all respectful of each other, for the most part.
Senator will meet with health dept. Med-chi and Board and we will pull bill and some version of other bill.
Pull bill for another year. She will get list of staff to pull all of you (us) together.
We just have to do something about this. Design an intervention.
Off call 5:05 PM.
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Follow up email- Sent 5:57 PM after discussion with LDA rep.
It was mentioned on the call:
1. Task Force Report in Maryland. Monte said the report wasn’t online, but it is here. The DOH removed it from their site.
https://sites.google.com/site/marylandlyme/health-department/strategic-plan
2. You mentioned not being able to find doctors and having to send people out of state. Here is a list of health care professionals for all 50 states and some foreign countries. (Also a page for those who have few if any resources and/or need alternative recommendations.)
Maryland Page- https://sites.google.com/site/lymedoctors/maryland
Main site- www.LymeDoc.org
3. For immediate help after getting a tick bite you might want to check this site. On the main page I have a one page print out that people can take to their doctors to get the most recent treatment protocols. Most doctors actually don’t know what they are. One page is for children, one for adults.
4. This is my children’s site that helps with their special needs.
https://sites.google.com/site/drjoneskids/home
5. And my Maryland Lyme website with hundreds of pages of information…
May I suggest printing out anything you want to keep. All of my websites are being shut down in about a month from now.
Thanks for the call!
Lucy Barnes