Response to Shortfalls in Federal Bill

An article was posted on a FB page by someone trying to show what she thinks the shortfalls of the new Lyme bill are so people will go to the Washington DC protest in May to "Storm the Halls of Congress" to try to kill our new federal Lyme bill.


Don't get me wrong- I love protests! What I don't love is inaccurate information (lies), people attacking others and people trying to kill a good project with no justification for doing so.


Note- My response below, sorry to say, may seem harsh or inappropriate, but my original comments are always backed by the facts, which is why my answers to people's questions were deleted from the Lyme Army FB page and I was blocked from posting there. So much for discussion and transparency.


My responses are directed at those who continue to put out inaccurate/false information about good people & groups in the Lyme community that they see as obstacles in the way of them reaching some sort of imaginary Queen Bee status. (I honestly don't understand their problem.)


They have been doing terrible things for a REALLY long time though and it needs to stop. For those who haven't seen this going on over the years- be grateful and feel blessed that you were spared.


Link here to the article I am responding to... https://www.linkedin.com/pulse/shortfalls-hr-220-national-lyme-tick-borne-diseases-control-osborn/?published=t&fbclid=IwAR0krh5VONIeOXm9SwEVRWBpzaG63aBUQTwrqfTY7aafoR6ayLNzHq5Obp8


I'd bet the farm this article was based on information provided or generated by Jenna Luche Thayer, Karen Forschner, Mayday Project and/or a few others. They have a long history of being extremely disruptive, slack on facts, and not being able to work well with others (to put it mildly).


The original comments from the article are in plain font below.

My responses to the comments are in BOLD font.


***


Shortfall 1: Ignoring Past Mistakes- It appears this Lyme bill was written under the assumption that prior research and previous actions were accurate and appropriate.


RESPONSE- No one who has chronic Lyme and knows about Lyme and tick borne diseases would think "that prior research and previous actions were accurate and appropriate". This is especially true for our non-profit organizations, dedicated patient advocates and experienced legislators.


Recommendation 1: Correct History- This bill should call for a congressional investigation of the actions of any and all entities which resulted in the mis-management of the epidemic.


RESPONSE- First of all- we've already had a Congressional hearing and it was presented on a global level. You really need to keep up with our legislative events and know the history if you plan to be in the political arena representing patients and our doctors.


Second, you are putting the cart before the horse. You need a bill, then if written to your favor abd passed, you comply with its instructions.


Once there is a verifible list of the problems and the corruption we've faced, which is exactly what this bill instructs the "Office of Oversight" to create, THEN you try get an investigation based on those facts, if warranted.


Despite our current political climate, normally you just can't call for an investigation out of the blue with no solid evidence to support one.


And to get a Congressional hearing, if you could, often takes months or even years to accomplish.


The question then is.... why kill a good bill in the meantime because it isn't demanding a hearing that has already taken place?


Individuals that are identified as accountable for inappropriate and/or unethical behaviors, should be permanently barred from participating in any actions spelled out in this bill. This investigation should include a re-examination/recertification of any laboratories involved in handling of infectious pathogens for diagnostics, therapeutic or research and development studies.


RESPONSE- Some of the actions you are demanding, and I am thrilled to see them and agree, will have to be handled by way of seperate actions at another time and place.


The first step to determining what actions should be taken (criminal charges, medical board actions, etc.) against those who have done us harm, and where they should come to light, is to first officially determine and document what was done, how it was done and who is responsible.


If you can't produce a detailed legal document that is sanctioned by someone like Congress, as this bill calls for creating, what are you going to charge who with, and where is the evidence needed to make the charges stick?


The point being missed here is this bill requires the newly formed (by way of this bill) Office of Oversight to do the research required to be able to prepare an official report as explained above so actions can then be taken.


Just try to remember- the cart comes after the horse, the cart comes after the horse...


Shortfall 2: The Lyme bill’s language and proposals rely heavily on input and outcomes of the Federal Tick Borne Disease Working Group (TBDWG). Unfortunately, there are issues with TBDWG. Including conflicts of interest, violations of sunshine laws and anti-patient biases.


RESPONSE- If you have problems with the TBDWG please bring it up with them. True, some people, like the ones behind this latest mess here, tried, but their efforts failed because their repetative whining and complaining were most likely considered to be inconsequential, unsubstantiated and in some cases I know their demands violated or were not permitted by the federal code of regulations (law).


I tried multiple times to explain to them their wild and crazy actions wouldn't do anything more than annoy those they were attacking on the Tick Borne Disease Working Group, but they wouldn't listen. They were not able, after months of trying, to make any changes at all. And actually, their actions were embarassing to those who were following the procedings.


Bottom line- we have two basic choices. Work with a federal TBD group that has some of our dedicated patient representatives on it (for the first time ever) who are fighting harder than anyone I've ever seen and are making progress, OR....


Continue with the status quo where only CDC, IDSA, NIH, HHS and their representatives are making all the rules.


And yes, certainly there are horrible toads on the TBDWG, but that is to be expected. We are in their house trying to change their rules. And they really don't like us, so what did you expect?


Surely we need to deal with these powerful toads who have contributed to unbelievable amounts of misery for patients as harshly as possible, but not by kicking our own bill or our own people who are fighting for us in the process.


Not sure what makes some people unable to grasp that point?


The TBDWG’s key patient representative heads Lyme Disease Association (LDA) a 501c organization whose sources of funding are redacted on the 990 tax filing and therefore are unknown to the general public ... and individuals accountable for any potential corruption and unethical practices are identified and charged accordingly.


RESPONSE- How dare anyone insinuate there is any wrong doing here and lie about it too!


I just looked to be absolutely sure, and I don't see anything redacted on the LDA's 990 tax form. And for those who spend their miserable lives scratching through other people's underwear drawers looking for some dirt to try to use against them, GROW UP and GET A LIFE! Use your ugly snoop time to do REAL research on real topics.


You know, shaking my head, I have been doing this work for over 30 years and have not known anyone in the Lyme community to be more hard working and dedicated than Pat Smith, President of the LDA. To falsely accuse her of doing anything that is even slightly off-key or questionable, especially with money, is just another serving of the Forschner & Thayer's Special of the Day- A Big Bowl of Crap.


If you have concerns about LDA's tax filings, which are prepared and or checked by an officially registered Board of Directors, AND prepared and checked again by a professional outside entity (licensed CPA), as well as the IRS itself- or you need anything else on this planet concerning the LDA you simply need to contact the President and ask.


Here is her email address. Do yourself a favor and use it to get the facts.


LymeLiter@aol.com



LDA will be able to financially benefit from the bill as described on page 19 of the bill under the section called “GRANTS” which states: “The Secretary may award grants to or enter into contracts or cooperative agreements with, public or private nonprofit entities to carry out activities under the paragraph."


RESPONSE- ARE YOU KIDDING ME? This is not a bad thing like you are portraying it to be. This is what patients and others want- to stop the one-way overflow of money going ONLY into the pockets of the bad boys!!!


It is GREAT news that some of our non-profit organizations will possibly have access to federal funds if the bill passes! They haven't had access in the past couple of decades, making every dollar needed having to come from the pockets of sick patients who have been donating to support the research and educational programs, etc.


If the bill passes with that wording, for the FIRST time ever it will allow federal grant money to get directly to OUR researchers & doctors who need it, and not just the idiots! Zippity do dah, a dream come true!


It would be a great day when we won't need to totally depend on YOUR donations to help further our cause and help patients, our labs and our doctors.


And no, as they are eluding to, Pat Smith will not personally benefit from any money coming from federal grants if LDA actually applies and is awarded some. (Neither will I.) It is so strickly regulated that if she were to want to do something kinky, which she absolutely doesn't, she couldn't. And she doesn't need to!


To note- the LDA has an excellent record, being awarded a GOLD STAR for transparency, even higher than ILADS with its BRONZE STAR rating, and LDA has kept this status up for many years!


Were you aware that LDA has distributed 115 scientific grants since 1992 in eighteen different states, with results that have been published in 50 journals! Who else has done anything like that from our side? No one! See for yourself...


https://lymediseaseassociation.org/grants/research/lda-awards-103-research-grants-since-1992/


LDA has also provided 138 additional educational grants to OUR people in 22 States and 2 foreign countries. At least 65 grants were awarded to help sponsor our sides educational conferences that took place in multiple states. See for yourself...


https://lymediseaseassociation.org/grants/education/prior-ed-grant-award-descriptions/


My favorite one, closest to my heart, are the grants LDA has given to families in financial need so they can get their sick children diagnosed and treated. A true blessing!


Over $340,000 has been given out for this purpose since 2004 thru LDA's Lyme-Aid-4-Kids program. This has truely been a life saving gift for so many. See for yourself.


https://lymediseaseassociation.org/grants/outgoing/2015-grant-summary-stats/


NOW.... Wouldn't it be nice if the LDA could give out ten times that many grants to our researchers and doctors who are not on the idiot list and currently get nothing from the government, and better yet if the money didn't have to come directly from our pockets?


Lymedisease.org, ILADS and other registered non-profits could also apply for grants too, which would certainly help us move forward even faster.


So why are you portraying that to be a bad thing?


LDA is an all volunteer organization run from home (no fancy rented office space and staff), which keeps their expenses VERY low. The President and Board members do not get paid for their work. Typically about 95% of the annual funds donated go to education, patient support and research. NO ONE has that good of a record.


Now, if you still aren't happy with the legislative bill you can go to Plan B and let all the money keep going to the idiots, while we continue to self-fund our needs.


BTW- This opinion/fact isn't tainted as some have claimed, because although I've helped out on many projects for many groups over the years, with the LDA being one of them, I am not a member of the LDA or any of the other groups. Here is a list of some of the LDA groups, supporters and advocates.


https://lymediseaseassociation.org/about-us/lda-associated-organizations/lda-associated-organizations/



***** EDIT- After I posted the link to this response, Mirenda from Lyme Army, who recently removed all of my responses to patients about the bill, then banned me, and now I've learned has banned and/or told others to buzz off for simply asking questions about the bill, posted in response on at least one site (Parents of Kids With Lyme- the thread has since been removed) the following info.


She publicly thanked me for confirming that I had a financial interest in and would benefit from the bill if it passed. To be clear, crystal clear...


THAT IS ABSOLUTELY NOT TRUE IN ANY WAY SHAPE OR FORM!

This is what I am talking about- spreading bald faced lies and garbage about people to try to discredit them. What's wrong with these people?


Challenge- I welcome anyone on this planet to show (document) how I would personally gain financially from this bill. If there is a way to do it I have no clue what it would be.


But, then again, I'll admit if the bill passes in its current form (I seriously doubt it will), I will get a lot of joy seeing all of our decades of gruelingly, bring you to tears, hard legislative work finally pay off so more people will be able to get help they need.


That is my goal. *****



Recommendation 2: Remove the recommendations of and all references to the TBDWG.


RESPONSE- Who blah blah blah do you think is keeping us afloat these days at the higher up levels? Who is cracking through the cement wall and working really hard one-on-one with the idiots to keep them from crushing us even more? Without our reps on that group we'd still be totally buried and would go back to not having a voice, or a choice.


If the TBDWG with our best reps on it doesn't have official input at this level, everything stays the same and the idiots stay in charge.


Shortfall 3: Tricky Language- Language can be used to convey honesty or deceive.


RESPONSE- Come on Jenna- stop with the crazy inferences and trying to put dirty thoughts in other people's heads.


Since the bill was crafted by our best Congressional Representative- Congressman Smith- and the highly regarded President of the LDA (who is one of the people Jenna/Karen trash and attack on a regular basis), who both have many years of experience with this subject- more so than anyone else- do you REALLY think they purposely wrote the bill to "deceive" or hurt us?


What would be the point in doing this? That's just crazy thinking!


Page 3 of the Lyme bill, lines 3 - 6 states: “Development of treatments to cure or improve the lives of those who are infected with Lyme disease or other tick-borne disease or who suffer from a tick induced disorder.” The wording “other tick induced disorder” appears to be a deception and placeholder for PTLDS. The term “other disorder” is used ten times in the bill.


Recommendation 3: Remove the terms PTLDS and “other disorder”. Replace the terms PTLDS and "other disorder" with late stage disseminated lyme disease, persistent lyme disease or treatment resistant lyme disease.


RESPONSE- First of all, Lyme disease is spelled with a capital "L". Please at least take the time to get that minor point right.


Second, PTLDS is not used anywhere in the bill so calling for its removal is rather, uh, uh, uh, dumb. Who missed that important point when drafting or editing this article?


Additionally, the term "disorder" isn't, as you refer to as a deception and a sneaky replacement for PTLDS, isn't referring to PTLDS at all. Big blooper there!


The term "disorder" is described right in the bill under the 'definitions' section. Had anyone checked, they'd have seen the word "disorder" has nothing to do with post treatment Lyme disease syndrome (PTLDS).


(2) DISORDER.—The term “disorder” means a disorder caused by ticks, but not inducing human infection, such as tick paralysis and Alpha-Gal meat allergy.


If you have questions about the bill, before speculating, especially in a such a negative (and uninformed) fashion, just ask! We are like Radio Shack- You've got questions, we've got answers! ~smile~


So, as suggested by the author of this article, "disorder" does not constitute "tricky language", and is not meant to be a "deception" as she also suggested. It is good solid language designed to be inclusive and help even more patients.


People trying to take down the efforts of others (instead of going after our true enemies) really need to READ and study the bill to know what it says before posting! Legislation isn't for slackers or sissies.


Shortfall 4: The other questionable issue with the bill’s diagnostic research language is the ‘biomarker profile’ language. John Aucott, Chairman of the TBDWG has a patent for biomarker technology. (There is that conflict of interest issue again.)


RESPONSE- Geeze Jenna- THAT again? Dead horse, dead horse!


If you have a problem with John Aucott's supposed patent and his alleged conflicts- I sure do- then go after him through the avenues provided by the TBDWG. Don't try to kill a bill designed to help millions because you don't personally approve of what someone is doing elsewhere.


Again, this is like throwing out your refrigerator because your oven burned the cupcakes.


Recommendation 4: Provide patients with a financial safety net by requiring health insurance companies extend coverage for all diagnostics and treatments.


RESPONSE- The absolute BEST way to kill a Lyme (or other medical) bill is to have the word "insurance" in it.


It alerts the industry, with all their power, money and all their lobbyists, to do all they can to stomp the bill in the ground. That is basic knowledge and those kicking this bill and disrespecting the people involved in it should know that.


Do we need insurance coverage? Most definately! Do we want to risk not passing this bill with so many other things in it that will help all of us just because insurance isn't mentioned directly IN the bill? NO!


BTW- It's called "strategy". You have to have the experience to see and use specific strategies, and you obviously don't.


Is this bill going to somehow be dealing with the issue of insurance? Absolutely!


The Office of Oversight that this bill creates must develop and have extensive research prepared, data bases established, public input, forums, scientific conferences, lists of past and all future activities performed by government agencies, etc.


Do you think someone, somewhere knows that insurance coverage is a priority in our world and should be seriously addressed by the Office of Oversight, whose job it will be to do this exact thing? Absolutely! And it will be done. It's a no brainer.


Shortfall 5: - Censorship Disguised as Collaboration- Page 33 section 8 of the Lyme bill calls for a Common Research Bibliography. News Flash: We already have one. It’s called the internet.


RESPONSE- Obviously some one didn't spend their precious days and nights like many of us did combing through the internet with deadlines approaching trying to find the exact support needed for the statements being made by our doctors and advocates during the TBDWG meetings, or at any other time in history.


And some one obviously didn't spent the better portion of their life trying to find or document, from the scanty research developed bit by bit that is scattered all around on various sites, the abstracts and articles that say exactly what you need them to say to prove a point.


But, I sure have. Our doctors have. Our advocates have. Our politicians have. Even some of our patients have. All of that difficult work is being done to help you!


We really, really need an organized collection of all of the science that we can all have access to for free. This bill makes that possible.


Now, truth be told, we could probably clean the floor of a football stadium with a toothbrush, but its a good bet we'd prefer a more efficient way to do the work.


Having a "Common Research Bibliography" would be a true blessing to many who actually must read the scientific literature, must use it and in turn respond to it. It is a much needed tool.


Please think about this.... Just because I personally don't wear socks anymore doesn't mean I should design or support a bill to ban socks.


This will permit selected individuals to censor research proving infection persistence and congenital infection -both of which are being experience by patients and documented by research worldwide.


RESPONSE- NO! It will include all of that research and open up a long list of documentation for everyone to be able to see and use.


What those few with bad intentions will do with the information available at that point is not controllable. But then, those bad people already have access because they've written most of the bad stuff and they certainly don't want to see or use anything that doesn't prove their point.


I've dubbed this bill "Tattle Tales R-us".


We get to (actually per the wording we MUST) go back so many years and record all of the wrong doings (official federal activities) using an official platform to do so, and then we get to monitor all the work (or not) that the various agencies are doing now and in the future- AND- we get to tell them how to do it!


THIS bill will give us the ammunition needed to help make this craziness stop and to move us forward.


Recommendation 5: No Common Research Repository- The call for a Common Research Repository should be struck from the bill entirely as it is an over-reach of government authority and waste of tax payer dollars. Remove the term “possible persistence” from the bill and replaced with terms such as treatment resistant infection, persistent infection etc.


RESPONSE- This comment of yours is messed up to a point I don't know what you are talking about. Do you mean the Common Research Bibliography of peer-reviewed literature?


Or do you mean the section in the bill that talks about a Biorepository for human specimens and samples? It appears you've mixed up the words?


Anyhow, assuming you may mean the BIOREPOSITORY for human specimens...


Where do you think people like Eva Sapi and her amazing students, and Dr. Allen MacDonald and our other researchers get specimens and samples from to be able to do the work they do? (As my father would say- like money, it doesn't grow on trees.)


Do you have any clue how much our organizations have had to first raise and then pay (from private donations) to create and support a bare bones (no pun intended) biorepository so our smaples could be saved and some of our research could be carried out?


Got to ask... do you have a few tonsils, tissue samples or brains laying around for scientists to work on tonight?


Could you plan your next research project or apply for grants not knowing if you will have the samples needed when the time comes and you are facing a deadline? Think about that.


Having few to no samples, or having to purchase them, or having to wait until samples eventually become available has been something holding us back. We definately need help with this situation.


Shortfall 6 - HHS Control Physician Education & Training- Page 23 section D of the Lyme bill states: “The secretary shall carry out a physician education program that addresses the full spectrum of scientific research related to Lyme Disease and other Tick-borne diseases and disorders….”


This abbreviated quote of yours ends up to be so out of context by leaving off so much of the information that I'll just put the rest of it below for all to see.


Options- We can stay with the physician education situation we have now, which is everyone getting bad information from courses designed by IDSA and CDC that are taught in medical schools, or we can make the necessary changes via this bill.


When looking through this section, ask yourself how many of these points would be presented and supported in an IDSA/CDC training presentation? (Answer- none.)


PHYSICIAN EDUCATION.—The Secretary shall carry out a physician education program that addresses the full spectrum of scientific research related to Lyme disease and other tick-borne diseases and disorders, including—

(i) the role of clinical diagnosis;

(ii) the limitations of serological diagnostic tests;

(iii) enhanced, validated diagnostics available from laboratories certified under section 353 of the Public Health Service Act (42 U.S.C. 263a) that may aid the physician;

(iv) guidelines available on the National Guideline Clearinghouse;

(v) the voluntary nature of clinical practice guidelines;

(vi) the complexities presented by coinfections relating to symptomology, diagnosis, and treatment, including prudently acting in the patient’s interest in non- or low-incidence States; and

(vii) the identification of significant research gaps most impacting diagnosis and treatment, and significant research being conducted to address those gaps.

(E) PROCESS FOR DEVELOPING PHYSICIAN EDUCATION PROGRAM.—The Secretary of Health and Human Services shall

(i) conduct a public meeting to solicit input for the design of the physician education program under subparagraph (D);

(ii) give the public notice of such meeting at least 45 days in advance;

(iii) also solicit input on the design of the physician education program from the Tick-Borne Disease Working Group;

(iv) publish a proposed syllabus for the physician education program not more than 120 days after the public meeting;

(v) allow for a 60-day public comment period before publishing such syllabus in final form; and

(vi) publish on the public website of the Department of Health and Human Services a summary of the comments received from the public under this subparagraph before conducting the first training program under subparagraph (D).


Giving the HHS control of physician education is government over-reach and wasteful use of tax dollars. Physician training should be designed and implemented by Universities that teach medicine.


RESPONSE- REALLY? Do you really want Johns Hopkins School of Medicine to "design" and "implement" doctor training for Lyme disease? How about Yale? Maybe, oh no, Boston Mass? How about Duke, home to another big slime ball?


Well, THAT is how we got into this situation in the first place! That is what is going on now! THE TOADS, at the Universities, are totally controlling the big picture.


And who do you think partially funds these Universities and the idiots who work at them? And who provides the grant money they use to do the "educating"?


Don't look now, but is the same government (CDC, NIH, etc.) using the same tax dollars you say you don't want to be involved!


You can't have your cake and eat it too!


We need to get the training of medical professionals as far away from the complete control of the University Toads as possible until the climate changes!!


That's one reason the LDA has been offering CME training & credits, but they can't do it all. And yes, ILADS has helped train some medical professionals too, but at the rate they are going I'll estimate it will be about 259 more years, give or take a few decades, before they can possibly train all of them.


Recommendation 6: Demand Medical School Curricula Revisions- the bill should include language that requires all medical schools to set specific measurable educational goals for updating curricula by a specified date to reflect current research discoveries using complete and full access to all scientific research available without censorship. This should include continuing education programs for current licensed physicians.


RESPONSE- Obviously, someone doesn't understand the current medical training system. This is basically how it works already, but it isn't controlled or influenced by a Lyme bill.


That is, however, what this bill basically provides for and what, for an example, the LDA essentially does now. This is also another time when the bibliography and data centers created by this bill come into use, so people can have full access to all of the science.


Killing the bill, not that you actually could, but killing it would be a bad thing to do for many reasons.


Shortfall 7 - Exclusion of Global Expertise- Tick vectored infections are not isolated to the US. It is a global issue. There is no call for involvement of other global expertsor the World Health Organization in this bill.


RESPONSE- Sorry Jenna- totally wrong again. The bill does call for coordination and involvement with those outside the USA, "globally", and the sharing of our information too. Here are a few examples. They are direct quotes from the bill.


Coordination with international bodies to integrate and inform the fight against Lyme disease and tick-borne disease globally.


a strategy for improving interactions, coordination, and partnerships with other Federal agencies, State and local governments, and global entities; and


information on agreements, partnerships, cooperation, coordination, and data sharing with external entities, such as State and local governments, other Federal agencies, working groups, and global entities;



The recent removal of the Congenital Lyme ICD code from WHO ICD Code 11 is evidence that the US and other endemic Nations should pool resources and funds to address the issues collectively.


RESPONSE- Good Grief! Please stop blindly following the words of Jenna Luche Thayer. In my opinion, she is often misguided and has a wicked streak that seriously clouds her vision and has been used to hurt others and/or is used to promote herself. Let's stick with the real facts.


An ICD code for congenital Lyme and other conditions already existed. The new one Jenna promoted to WHO and everyone else was simply a duplicate. That is why it was removed during a standard review process. No big conspiracy here, Jenna just missed it then instead of admitting the mistake she tried to make a big deal about it being removed. I've already written two articles explaining this situation.


Recommendation 7 - Replace the TBDWG with an International Panel- The bill should include the formation of a Global team that would replace the TBDWG upon the conclusion of a Congressional Investigation into the US’s mismanagement of the epidemic.


RESPONSE- We are in the United States of America. Our government agencies are charged with working with/for our citizens and our tax dollars go to support that plan.


Additionally, our Congress does not have power or control over other countries medical and scientific policies or their people.


Wrong venue Jenna!


An international team MIGHT be something to consider later on through a different platform, but it is not going to be a priority in this bill. The fact is there already are considerations for global outreach and cooperation in the bill, which is both amazing and appreciated.


If Jenna wants another panel to sit on (can't seem to bully her way on to our federal TBDWG?) she will need to look elsewhere or do the extensive research and hard work required to design her own bill to accomplish her own personal goals.


In the meantime, if she'd stop trashing good people over and over again (including our own TBDWG members- who are volunteering their time- and those involved with the group at the government level) and stop trying to destroy so many other people in our community and the work they are doing, it might encourage someone to want to work with her or try to help her? Ok, no, not really, but oh well.


One of Under Our Skin's #assets is it calls out prior legislation that enabled this mess to unfold in the first place. If you haven't seen it, I highly recommend you give it a watch.


RESPONSE- Wonderful project! I was there before, during and after. The legislation you referred to above, and I am not sure exactly what you are talking about, but I don't believe it is related to the passing of this or any of our federal bills. (I could be wrong, but have no time right now to sit and watch the movies.)


Conclusion- To those who took time and cared to read this all the way through, and can feel the love I have for our patient community- as I did when I made this short video below- and those who know the love and commitment I still have for them... please enjoy.


https://www.youtube.com/watch?v=xFWTMgcBYSo


Lucy Barnes

AfterTheBite@gmail.com