COVID-19 Research PPIE Resources

There are a numerous resources available for research staff recruiting patients for general clinical research and COVID-19 studies.

CRN COVID-19 Research PPIE Hub

The NIHR Clinical Research Network (CRN) COVID-19 Patient and Public Involvement and Engagement (PPIE) Action Group created a website that included PPIE resources for staff across the network, wider NIHR and within Partner Organisations delivering research.

The COVID-19 PPIE HUB aimed to provide quick and easy access to information and resources to support PPIE around COVID-19 research, and the delivery of research in other health and cares areas during the pandemic. 

The COVID-19 PPIE HUB is now offline.

Easy Read Guides

Clinical Trials: An Easy Read Guide is available to help explain what it means to take part in clinical research. Designed for a wide audience, this guide include short, simple sentences and pictures that can be of support to people with additional communication needs, but also anyone who is new to patient data and health and social care research. 

Download the Easy Read Guide (General)

Participant Journey Map

The Participant Journey Map is an interactive map which covers the key timepoints in a participant's journey through a research study. Tips and resources have been embedded to flag potential opportunities for improving engagement and support for participants.

Download the Participant Journey Map

Return to Site Leaflet

Alongside the above video, NIHR CRN East of England have produced a Return to Site Leaflet. The leaflet is a template leaflet that covers common topics participants may want to know when deciding whether they are comfortable returning to health settings. Sites can insert their own local details and processes to tailor the information to cover study/site specifics.

Download the Return to Site Leaflet

Need help?

If you have any questions about PPIE resources please contact donna.coe@nihr.ac.uk or ann.rampling@nihr.ac.uk and we will do our best to help you. 

Delivering research to make patients, the NHS and social care, better