Participant in Research Experience Survey (PRES)

Welcome to the PRES!

As you will be aware, the NIHR East of England RRDN began on Tuesday 1 October 2024. As part of the transition from the CRN to the RDN, network boundaries have changed, which means we welcome six more Trusts into the East of England.

The PRES programme of work has not changed, and partners are still asked to give out the survey to all participants who take part in NIHR portfolio studies. However, with the formation of the RRDN, there are a number of changes to site/survey links and where to go for support with the PRES. 

The RRDN East of England PRES team consists of the following people:

• Anne Kirby, Study Participation Inclusion Manager, e: anne.kirby@nihr.ac.uk  

• Ann Rampling, PPIE Administrator, e: ann.rampling@nihr.ac.uk 

PRES Printed Surveys

• Please note that the printed fold and stick survey will continue to be used until December 2025. If  you are new to the East of England, please continue to use the paper surveys you have in stock from your old LCRN. You do not need to make any alterations to the surveys, the data processing company is aware that your organisation is now part of East of England RRDN.

• The paper fold and stick design includes a pre-paid return address. Completed paper surveys must be properly sealed and returned by post to the pre-printed address, central processing company for data input. 

• The following versions can be used (these have not changed):

  • Adult survey

  • Children & young people, 0-6 years survey

  • Children & young people, 7-11 years survey

  • Children & young people, 12-15 years survey

  • Visual impairment survey

  • Easy-Read survey

• You can order printed paper surveys by emailing: ann.rampling@nihr.ac.uk 

PRES Online Surveys 

Study Specific Online PRES Surveys 

• To date, the EoE SPI team have created study specific online PRES links and QR codes on request.  Currently we are unable to create any new Study Specific surveys.

• All existing links and QR codes for study specific PRES have been recreated for the RRDN. These were available from 1 October 2024..

• If you are new to the East of England and have existing study specific online PRES links set up, they will need to be updated. Please let us know which studies you have them set up for by emailing ann.rampling@nihr.ac.uk.

• All new study specific online PRES links and QR codes can be accessed through these spreadsheets:

• We can add your site if there is an existing Study Specific Link, to submit your request to do this please use Request to add sites to study specific surveys  form

  • Adult Study Specific Online PRES Links

• Children's Study Specific Online PRES Links (all age Groups)

Standard Online PRES Surveys 

• We also have a standard adult and children’s online survey, for use with studies where a study specific online PRES has not been created.

• Please note that the participant will need to be provided with the study name, number and site so that they can complete this themselves at the start of the survey.

• You can use the links below:

  • RRDN EOE ADULT PRES ONLINE SURVEY 25/26  (or you can copy and paste this URL: https://forms.gle/muVJNC2eURCURRKX8 )

  • RRDN EOE CHILDRENS PRES ONLINE SURVEY 25/26  (or you can copy and paste this URL: https://forms.gle/PgB7dvxkzJHK5o1YA )

PRES Flyers

We will no longer be creating PRES Flyers for every study specific online PRES, as we have found they haven’t been used. For each study specific online PRES, we will provide a URL link and QR code which you can insert into an email, letter, flyer, poster and/or text. 

If you do require a flyer for a specific study, please contact ann.rampling@nihr.ac.uk and we can create these on a case by case basis. 

East of England RRDN PRES Dashboard 

We have an East of England PRES dashboard to support you to access near to live results of the PRES for your organisation. This was relaunched on 1 October 2024 to include the organisations who are transitioning over to the East of England RRDN. 

You can filter the results by Trust or by site (using a site code), so please ensure you include the correct site code on your paper surveys, before giving them to participants. You can also filter the results by quarter, by financial year, by specialty, by study and by question. To view the free text comments for questions 8 & 9 you must filter by study as well as by site and/or year.

You can access the dashboard using the links below.

East of England RRDN PRES Dashboard

This dashboard will include all organisations within RRDN East of England. If you notice an error on the dashboard, or you have a query, please email: ann.rampling@nihr.ac.uk 

• Local PRES Dashboard Adults - East of England 

• Local PRES Dashboard Childrens - East of England

National PRES Dashboard

If you would like to access the national PRES dashboard to review PRES results here is the link: https://shorturl.at/WcV5k (you will require an NIHR email address to sign in). 

This dashboard is managed by the RDN Coordinating Centre team and is a useful tool to look at results across the whole of England. Please be aware that the data is updated quarterly so there is a delay in accessing results.

PRES Working Group 

The East of England RRDN runs a PRES Working Group, which is a group made up of PRES Leads from partner organisations. The meeting takes place bi-monthly and oversees the development and delivery of the PRES across the East of England region.

After each meeting, a PRES Update is sent to all PRES Leads for wider circulation. This includes:- 

• National and local updates given at the meeting

• Answers to any questions raised in/outside of the meeting

PRES leads are welcome to share the meeting invitation to any of their team who they would like to attend. For more information about the PRES Working Group please email: ann.rampling@nihr.ac.uk.

PRES E-Learning Modules

We have developed 2 short online learning modules, which are available on NIHR Learn. We encourage all staff who are involved in supporting the delivery of PRES to complete these modules. Some Trusts have made these training modules part of core training for all new research staff.                     

• Participant in Research Experience Survey (PRES): Delivering the Survey 

Link to training on NIHR Learn: https://shorturl.at/Q3Dkr. This module explains how to deliver the survey to your participants, including when to give it out and methods for delivery.

• Participant in Research Experience Survey (PRES): Responding to the Results

Link to training on NIHR Learn: https://shorturl.at/Bbgl1. This module explains how you could respond to the results of the survey and includes a guide to getting the best out of the PRES Dashboard.