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The Following Sites and Information Contained
Within Are NOT Recommended
There are many articles and websites on the internet providing information about Lyme disease. Unfortunately, some are misleading, outdated, incomplete, questionable or inaccurate. Some were originally initiated or supported by those who have have ties to Lyme tests and kits that are unreliable; the short-lived Lyme vaccine; those who have been involved with or promote questionable research findings based on inaccurate Lyme tests; or the Infectious Diseases Society of America (IDSA) highly contested, "cost-effective", "insurance friendly" Lyme Treatment Guidelines which were determined by the Attorney General in Connecticut (Richard Blumenthal) to have been developed in a biased and unprofessional manner.
Therefore, for a number of reasons, the following articles, opinions and web sites are not generally recommended, especially by chronically ill Lyme patients and their physicians who are experienced in dealing with the devastation caused by improperly diagnosed or inadequately treated Lyme and tick borne diseases.
NOT Recommended:
Infectious Diseases Society of America Lyme Disease Treatment Guidelines
http://www.journals.uchicago.edu/doi/pdf/10.1086/508667
A Critical Appraisal of Chronic Lyme Disease- Paul Auwaerter (Hopkins), Stephen Dumler (Hopkins), Gary Wormser (Previously from Hopkins), Edward McSweegan (Not from Hopkins but listed as such), et al.
http://content.nejm.org/cgi/content/full/357/14/1422
Advocacy Efforts of the IDSA
Working AGAINST improving the Lyme disease situation for patients and doctors
Below are some of the Infectious Diseases Society of America (IDSA) advocacy efforts opposing state and federal legislation designed to: increase research funding to develop more accurate tests, establish task forces and committees to enhance education and communication between agencies and help chronically ill patients and the health care professionals treating them. To see letters listed below, click here:
http://www.idsociety.org/lymedisease.htm#press
IDSA Sends Letter Opposing H.R. 1179 06/25/2009
IDSA Sends Letter Opposing Enactment of Connecticut House Bill No. 5625 02/03/2009
IDSA Sends Letter Opposing Lyme Disease Legislation in House and Senate 3/21/2008
IDSA Sends Letters to the NGA and NCSL Regarding Problematic Lyme Disease Legislation 08/07/2007
IDSA Urges the Massachusetts Joint Committee on Public Health to Oppose House Bill 3768 07/12/2007
IDSA Sends Letter Urging Rhode Island State Senators to Amend Joint Resolution 5676 06/19/2007
IDSA Urges Pennsylvania State Senators to Oppose Enactment of Lyme Disease Legislation 04/10/2007
IDSA Sends Letter to Educate Members of Congress on our Lyme Disease Guidelines 01/07/2007
NOT RECOMMENDED
Manhattan infectious-disease doctors- Laura Fisher, director of the Lyme Disease Center at New York Hospital-Cornell Medical Center (212-746-1771), and Christopher Busillo (212-238-0102) and Chester Lerner (212-238-0106) at New York University Downtown Hospital.
In Westchester, NY: Robert Nadelman (914-493-8865) and Gary Wormser (914-493-8865) at Westchester Medical Center.
In Nassau: Eileen Hilton (516-470-6900), director of the Lyme Disease Diagnostic and Treatment Center, and Sunil K. Sood (718-470-3480) at Long Island Jewish Medical Center.
In Connecticut: Eugene Shapiro at Yale-New Haven Hospital (203-688-4518) and Debra Adler-Klein at Stamford Hospital (203-325-0146).
Bruce Logan at Manhattan's New York University Downtown Hospital (212-608-6634) and Raymond Dattwyler at U Hospital, Stony Brook, in Suffolk (631-444-8364).
Rheumatologists- Thomas Argyros, director of the Lyme Disease Center at Lennox Hill Hospital (212-988-7680); in New Jersey: Leonard Sigal at Robert Wood Johnson Medical School (732-235-7210); in Connecticut: Robert T. Schoen at Yale-New Haven Hospital (203-789-2255).
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