2010 General Info
Lyme Conferences 2010 General Information
Patients, doctors and support group leaders often ask us for information about the Lyme disease conferences. Each year after the conferences we write reports on the highlights to share with the public.
This year, 2010, ILADS decided to have their own conference, so there will be two separate Lyme conferences, at different times and in different states. We have researched information concerning both and are sharing our thoughts below based on a "typical" patient's health and money concerns.
To note- there are good speakers scheduled for both conferences, however, the cost for the Lyme Disease Association/Columbia University Scientific Conference is approximately 1/2 of what it would cost to attend the ILADS conference.
ILADS Conference in NJ on Oct 15, 16, 17, 2010
The doctor-oriented ILADS Lyme conference will be longer than it has been in years past. ILADS announced its intention to have its own separate conference on the last day of the 2009 combined conferences and have extended it to 2 1/2 days.
Patients please remember- you'll have to be able to handle sitting quietly, listening and taking notes. There can be a lot of confusion, limited breaks, bright and dim lights (fluorescent lighting in the main conference rooms, cement floors, high ceilings, divider curtain walls separating conference rooms), and some noise with possible difficulty hearing.
There will be a fair amount of walking/running between rooms and floors (elevators) from your hotel room, exhibit areas, the Enterprise Room (2nd floor), the Newport Room (3rd floor), the Liberty Room (2nd floor), rest rooms, foyers, food courts and other areas where events are scheduled on different days. This can be both confusing and exhausting for the typical patient. If you are limited in your walking ability or energy is a concern, we highly recommend bringing a wheelchair.
If you do nothing but attend the sessions all day, you (and your brain) will have to function for 30 hours at a high level for the 60 hours of conference time allotted (start to finish). Then you need to plan time to shower, dress and go somewhere to get supper each night (not included), etc.
The three conference days back to back can be very exhausting, especially after making all the arrangements, packing and traveling. The daily hours scheduled for the ILADS conference are extremely long for patients who are ill and who aren't up to a full days activities.
Thursday- Traveling, check-in at motel, unpack and go get supper.
Friday (10.5 hours scheduled) 7 AM till 5:30 PM. Up early then afterward go get supper.
Saturday (12.5 hours scheduled) 7 AM till 7:30 PM. Up early then afterward go get supper.
Sunday (5 hours scheduled) 7 AM till noon, plus arranging check out from your room, packing up and traveling home.
The absolute bare basics while at the ILADS conference- $395.00 early bird conference rate- plus hotel room ($680.58 for 3 nights- cheapest rate based on availability) and supper, drinks and snacks each day (ILADS provides a "box lunch"- on request the hotel stated you can get a chair to use in the foyer area) will cost one person a minimum of about $1,225.00, which again, only includes the cheapest room at the cheapest rate, patient-rate conference fees and your supper/snacks/drinks each day.
PLUS... you need to figure on plane fare (round trip) and baggage fees, cab/tram fees and tips to hotel- or gas for your car, meals on the road and travel time. You may need money for parking fees/tips (they can be pretty pricy), bellboy tips, extra meals and snacks, spending money, and misc tips and taxes.
The "unofficial" dress code is normally suit and tie for men, dresses or nice pant suit outfits for ladies. Total additional costs for the above listed extras generally come to about $400.00-$500.00 (if driving from the east coast- flying can be more).
Note- ILADS will allow patient advocates to attend this year. As of August 7, 2010 the hotel stated they only had a few rooms available at the ILADS early bird rate... so you may not be able to get the cheaper room rate, which can add a considerable amount to your cost.
For more information:
For those too sick or too short on money to attend the ILADS conference, see the option directly below and/or the information on the LDA/Columbia conference below.
For $40.00 (2009 price) plus $2.50 shipping you may be able to buy an ILADS CD-Rom and watch it over and over if you want, at your leisure. If you are near a support group maybe they could buy a copy and let folks share it.
(Edit 8/21/10- It was recently suggested by ILADS that we not recommend people "copy and distribute" the proceedings of the ILADS meetings they have for sale (mentioned above), which we don't believe we did; however, to be clear - from what we understand, you can purchase the ILADS material from them, but they do not want you to copy the material you've purchased to share with others for educational purposes.)
The Lyme Disease Association/Columbia University Scientific Conference in PA on October 2-3, 2010. Patient and Advocate workshops (optional) on October 1, 2010.
The LDA/Columbia University scientific conference is scheduled for Sat and 1/2 day Sun (early bird patient rate) is $175.00. Add on the hotel room at early bird rates ($169.00 plus tax, each night for 2 nights = $360.00 approx.) plus supper, drinks and snacks for 2 days, and it brings the minimum cost to attend to about $635.00 (includes cheapest room rate, patient conference fee and supper/drinks/snacks each day).
PLUS.... remember there will be additional costs for plane fare or gas, cabs, tips, meals, parking and taxes, etc (as stated above). The unofficial dress code is a bit more casual than what has been observed at ILADS, but your Sunday go-to-meeting clothes are probably most appropriate.
The approximate cost for the LDA/Columbia conference is about 1/2 of what ILADS would be.
From what we understand, the LDA/Columbia conference will be set up so attendees won't be running all over the hotel to get to scheduled programs on time (like last years ILADS conference- and this years ILADS schedule indicates they booked different rooms on different floors again). Since the LDA/Columbia conference is one day shorter than ILADS, it should be more "patient" friendly for those who have difficulty with their energy levels, concentration and walking ability.
You can attend the patient advocate workshop on Friday (9AM-3PM) if you'd like, for about $60.00. You'll already be booked in the hotel for the LDA conference to be held the next morning (unless you plan to drive/fly at night to be there by 7 AM Saturday). Information on the patient workshops is below.
For more information www.LymeDiseaeAsociation.org
OR.. if you can not attend the LDA conference and assuming they do it again this year, perhaps you could buy the DVD's- LDA's 3 DVD set (2009 price) plus compendium sells for $55.00.
Lyme Advocates Workshop- This will be held at the same place and on the same weekend as LDA/Columbia conference and is where you can meet other patients and advocates from across the country.
Friday October 1, 2010 at the Hyatt Regency Penns Landing in Philadelphia- (the day before & the same hotel as the LDA/Columbia 2010 Scientific Conference)
9 AM to 3 PM
Cost: $60 per person (includes lunch and afternoon snack) FEE SUBJECT TO CHANGE (lower, we hope).
The third annual Advocates Workshop is a nuts-and-bolts discussion of the topics of greatest interest to those who are considering starting a Lyme disease group of their own, or for groups already established who want to learn more.
The most experienced leaders in the Lyme community will help you in such areas as how to start a new group; determining your focus; legal issues; fundraising; child advocacy; how to provide education to the public in your community; setting up web sites and other on-line resources; recruiting, training, and managing volunteers; state Lyme legislation advocacy; and more.
All sessions will be interactive, so bring your questions and share your experiences.
On-line registration and a complete program will be published soon. (The Hyatt Penns Landing hotel will honor the special LDA/Columbia conference rate for Thursday night if you want to stay an additional night.)
Organized by the Lyme Disease Association of Southeastern Pennsylvania, Inc. (LDASEPA)
For the latest information, and registration (coming soon):
Money Saving Tips
There are good speakers scheduled for both conferences, however, the cost for the Lyme Disease Association/Columbia University Scientific Conference is approximately 1/2 of what it would cost to attend the ILADS conference.
Lyme Disease Association/Columbia University Conference
REGISTER- Register for the conference early to save money.
Regular Registration (NO CME Credits)
$175 (by 09/09/10);
$195 (after 09/09/10);
$210 (if space available, door)
HOTEL- They have a deal at the Hyatt Regency hotel for several people staying together. This is NOT in the "block of rooms" that were set aside for the conference.. but perhaps a decent deal anyhow.
One bedroom suite- king bed (they said it sleeps 3 people together in that one bed- and yes, I did ask if it was designed for the Walton's or regular people) and a pull out sofa - $350.00 per night for Friday and Saturday night (higher for Sunday night).
Junior suite- 2 double beds and a sofa bed- $350.00 for all 3 nights (F, Sat, Sun).
To register for the Lyme Disease Association conference or book a hotel room:
*** Check out the special event in Philly called "First Friday", scheduled for the evening of Friday, October 1, 2010. http://www.visitphilly.com/events/philadelphia/first-friday/
Lyme Disease Association/Columbia University Conference
Alternate Hotels to Consider
Holiday Inn Historic District- 3/4 mile from Conference- $134.00 - $154.00
Best Western Independence Park Hotel- 0.92 Miles from Penns Landing- $179 – $215.00
235 Chestnut Street, Philadelphia, Pennsylvania 19106-2813
Sheraton- Society Hill Hotel, Society Hill - $ 170.00- $197.00 (Ask for Senior rate if applicable)
One Dock Street (2nd and Walnut Streets)
Society Hill Hotel Bed and Breakfast- This looks about 1000 feet away from the conference but
probably could not be walked from any hotel due to major highway in between (I-95). The hotel
portion of this site is still in operation. There are about a dozen rooms available for under $200/night.
If you're in the mood for staying at a place that has a bit of history to it, in the middle of everything,
look no further.
301 Chestnut Street, Philadelphia, PA - (215) 923-3711 or (215) 925-1919
Comfort Inn Downtown / Historic Area- Rates $99 to $129 – In the shadow of Ben Franklin Bridge
"A family-friendly hotel property adjacent to Penn’s Landing"
100 N. Chris. Columbus Blvd., Philadelphia, PA, US, 19106
Phone: (215) 627-7900
From website: “Located on Penns Landing, this hotel is easily accessible from Philadelphias International Airport and all major roadways. All 185 spacious rooms have views of the Delaware River or Center City skyline. ... Conveniently located along the Delaware River near the Historic Area, guests are in walking distance to the Liberty Bell Center, Independence Hall, Elfreth’s Alley, Betsy Ross House, Penn’s Landing and the swaths of restaurants and nightlife options in the Old City neighborhood.”
It has been suggested to take a cab ride from any of these hotels the first day since all are on the other
side of I 95, which parallels the River, but there is a Walkover bridge if you are interested.
For your safety- Please no walking at night in Philadelphia!
Thanks to OMT for researching this information for us.
ILADS Conference Updates
To watch Friday's presentations online (free):
The full 2010 ILADS Lyme Disease Conference program will be available as a CD-ROM for PCs and Macs.
The CD-ROM includes 2 keynotes, 20 plenary sessions and 14 Conference Workshops- nearly 200 pages of written submissions to the July 30, 2009 IDSA hearings in Washington.
The written presentations are by Dr.'s Bransfield, Martz, Horowitz, Burrascano,
Cameron, Stricker, Green, Phillips, and others.
The CD-ROM is fully searchable.
Order the CD-ROM for $40.00 and $2.50 shipping.
The CD will be sent during the week of October 18, 2010
To see information on ILADS sales items, scroll down:
See information on Zenworks sales items:
Tips & Reminders- Things to Consider
Bring snacks and your favorite drinks. If you miss a meal due to the schedule, or need to take meds at an off-time, or want to hang out in your room in your jammies, etc.. you'll need to have a bite of food and a drink and it can be a long walk to get some, not to mention a bit costly.
Bring a coffee/tea pot. They may advertise a pot in the room, but sometimes it is a one cup server thing and not acceptable for regular "good" coffee or tea.
Bring COMFORTABLE clothes to wear while hanging out in your room.
Plan to wear comfortable shoes the entire time.
Go through the conference schedule before it starts and circle the lectures you want to see the most. If you need to rest or something comes up, skip a lecture you didn't circle as a favorite and do so.
Bring a small pull cart (like for luggage) to carry your things on during the day. Running back and forth to your room to get something can be very tiring.
Bring paper (notebook) and pens to take notes.
Don't forget a camera.
Don't forget your meds.
On Saturday night or Sunday morning pack up your extras and let the Bellmen take your things to a storage room Sunday morning so you don't have to rush to pack your things to meet the check-out deadline during the conference.
You may want to carry some cash (in smaller bills) to have ready for tips, machine drinks/snacks, etc.
Two hotel options for the 2010 conference.
10 rooms at the Doubletree at $189- cutoff date 10/4/10 (2 blocks at 455 Washington Blvd)
15 rooms at the Courtyard, rate is $229- cutoff date 10/6/10 (across the street at 540 Washington)
2010 Patient/Advocate Workshop
Friday October 1, 2010 at the Hyatt Regency Penns Landing
(the day before & the same hotel as the LDA/Columbia 2010 Scientific Conference *)
9 AM to 3 PM
The third annual Advocates Workshop is a nuts-and-bolts discussion of the topics of greatest interest to those who are considering starting a Lyme disease group of their own, or for groups already established who want to learn more. This conference follows the highly successful program started by CALDA in San Francisco in 2008 and Washington, D.C. in 2009.
The most experienced leaders in the Lyme community will help you in such areas as how to start a new group; determining your focus; legal issues; fundraising; how to provide education to the public in your community; setting up Web sites and other on-line resources; recruiting, training, and managing volunteers; state Lyme legislation advocacy; and more.
There will be plenty of time to network and socialize with others who are considering forming a group and those who have been running groups successfully. Each session will have a Q&A /discussion period.
Cost: $40 per person (includes lunch and afternoon snack)
(The Hyatt Penns Landing hotel will honor the special LDA conference rate for Thursday night)
Organized by the Lyme Disease Association of Southeastern Pennsylvania, Inc. (LDASEPA)
Workshop Program * (printer friendly program at www.Lymepa.org )
Presented by experienced Lyme advocates. Lunch and afternoon snack are included.
Session I 9 AM - 10 AM
Starting a Lyme Support Group - The Fundamentals
- Determining your focus (support, education, fundraising, etc.)
- Structure (informal, 501(c)(3), or other)
- Officers and Board of Directors
- Insurance issues
- Finding and managing volunteers
Session II 10 AM to 11 AM
Starting a Lyme Support Group - The Details
- Do you need to incorporate?
- Nuts and bolts of the 501(c)(3) process
- Planning programs, getting speakers
- Web site, e-mail list, Facebook, newsletter, publicity
- Printed literature for your group
- Affiliation with a national organization
Session III 11 AM to 12 Noon
Educating the Public
- Public speaking: getting invited, how to prepare, etc.
- Handling inquiries from the public: doctor referrals, education
Lunch and Socializing 12 Noon to 1 PM
- Poolside informal lunch (provided) just an elevator ride away from the conference room
Session IV 1:00 PM to 1:30 PM
- Small or large scale: tips on how to raise money to finance your mission and/or fund research projects
Session V 1:30 PM to 3:00 PM
- Learn from a panel of experts who have achieved (or are working on) Lyme laws at the state level.
- Representatives from MA, CT, RI, PA, MD, MN, and CA -- Q&A
Cost is $40, payable via Paypal or credit card. You do not need a Paypal account to pay with a credit card.