More about me

Jeroen Van Den Bergh Den Dulck

Org 2013 Updated June 2019

Born in a farmer village, with 5000 residents, close to the big city of Utrecht. Our mother worked and drank at home, while father who was high educated, worked at one of the big utility companies. The daughter run away from house very early, and the son did not no better than to take care of t' mother. Until he became 18. On this moment he has seen everything, and been through a lot. When he entered the army, his view of the world changed even more. He went 4 years camouflaged as a medical assistent & almost finished as a twisted social worker, saw between 15 and 25.000 patients. Drunk doped aggressive or on a stretcher. Sometimes they were really wounded.After this tropical years where he started 合 気 道 aikido, he worked as a temporary worker for + 25 companies while creating dreams Halfway 2004, being 35 years, everything was cut in half by diagnose. in 2004. Joint-wear all over. Not funny. Displaced vortices, Two narrowing in spinal cord pressing on nerves and vessel between shoulders and and hips. Few narrowed interverbral disc spaces. The last means a some what reduced effect of the shock absorbing intervertebal disk. Nicely said.

Are doctors drowning us ? Between 2004 and 2009 i did set a pain frame, for getting to know my body again. 2009 i found an articel on the rheumatic patients organization site, about medical cannabis, provide by the dutch government. My old Gp was against, i asked her mutliple times, while i 'm against pharmaceuticals and syntetics. Not for those which really work or are wanted, but in general. The pillbox and blister are only a single financial concept abused by anyone who wants to makes money. I had to find a new Gp, and i did. First i called all 15 pharmacist's in town, asking questions in the roll of dumb patient. Half of the pharmaceutical assistents told me to go to the coffeeshop,where the cannabis is not "medical" justified. I did get two tips (on 60 Gp's.) from the pharmacist himself. In holland you do'nt have the system like America, Here it is been said, that 1/3 to 1/2 of dutch docters would support prescription of the governments medical cannabis. In real time, this is 1; 30. The new doctor supported me, and i have tried the four different medical cannabis.

About me or... What is wrong with me ? Occupational disease. After my diagnosis, and the anger and depression,i started to get more depressed, my world was about 1 x 1 square meter. I could move carefully, or lay for weeks on a couch watching television. Till i got my first PC in 2007. Then i used all my knowledge to research the data around my disease, doctors, med, and operations, experimental or not. I found, on base year, people with 100% Labor failure ; 0.02% or 2000 to 4000, and people with sports injuries, 0.5% or 40,000 ended in hospital. With between 700 and 1,400 orthopedic surgeons waiting on them .Although my disc problem started in 1998 and official diagnose was in 2004 i have been re-diagnosed by unqualified / medical untrained people just by looking, p/email or even by phone. Even doctors discuss about terms as work related articular wear, some call it arthrosis, or poly osteoarthritis. I call it Mutiple Diagnosis Syndrom. Don't let this be a warning ( sarcasm )

,, Doing nothing is doing something "

cit.; J. van Gijn, orth.surgeon, Utrecht, the Netherlands

This story is not about medical cannabis. This is about a patient who has no life, and sometimes only has 30 minutes to a few hours living "upright" because his spine and intervertebral discs him mercilessly "knock me out" of pain. Self Managment is a choice, i did not opt for surgery or syntehtische resources. I am Jeroen, 40 years old and chronically ill, with daily pain since 2003, after years of vague complaints since 1998. In 2010 i was 100% disapproved for work incl. an exempt from job obligations. I want a long-term research. Since obtaining the medical marijuana or medical cannabis is really difficult. While it is available, some doctors do not want to prescribe or work with it. Cover, remuneration or reimbursement from healthcare insurance is a necessity for chronically ill, but sometimes a major problem. I had to find a doctor, because the old was against cannabis, and I'm against using synthetic drugs, for myself. It is said that medical cannabis, in 2010, 6700 times has been prescribed for 600, or 1300, patiënts, there is not much clarity. For official information, go to the site of the BMC; Office of Medicinal Cannabis Ministry of Health.

,, The doctor became really good, when he was not longer able to do anything more for the patiënt "

cit. J. van Gijn, orth.surgeon, Utrecht, the Netherlands

About my cannabis use for pain relief. Sometimes i use a cup of tea, something everyone has to try once. Even after 25 years smoking the same herbs, as an recreational drug, this tea worked for 4-5 hours, without side effects. Imagine that with any other painkiller or....When i had a surgery 6 years ago anestesia was not a problem. If you're using painkillers over 25 years, they almost have to shoot you down, before they can operate on you. And that is one of the main reasons to choose cannabis, it will not make you a complete zombie, if you use 0,5 tot 2 g. on a day. It doesnt totaly numb you, you will still feel some pain, and your body. This means, you will feel when something else is going wrong inside youre body. On painkillers you will notice some things 'to late' In daily practice it means also that i feel a pain coming up, and can react to it. In stead of feeling nothing. I dont like to have pain 24/7 but it reminds me i'm alive, here to stay, and not dying. The medical world should listen better to people, and not the other way around.

Not ABout Me

#NotAboutMe

Emma Davie en Morag McKinnon maakten een intieme documentaire die het leven van een normale, maar ook zeker bijzondere man en zijn vrouw volgt in de strijd tegen zijn terminale ziekte. Neil Platt heeft zo zijn eigen manier om met zijn motorneuronziekte om te gaan, de brit start in juli 2008 samen met zijn vrouw Louise een blog: Plattitude. Neil werd begin dat jaar geconstateerd met motorneuronziekte. De blog leidde tot de documentaire Zolang ik leef, een film met scherpe contrasten: we zien beelden van een dertig-jarige jongeman in de bloei van zijn leven, maar enkele maanden laten is hij veranderd in een onbeweeglijke man in een stoel aan beademingsapparatuur, toekijkend hoe zijn zoontje Oscar van één de eerste stappen in het leven zet. Louise en hij proberen Oscar een zo zorgeloos mogelijke omgeving te bieden. Ze weten zich daarbij gesteund door vrienden en de moeder van Neil, die vijftien jaar geleden haar man aan dezelfde ziekte verloor. Neil was toen 22, zijn vader werd 51 jaar. Inmiddels verlamd vanaf zijn nek denkt Neil na over zijn begrafenis – "Kartonnen kisten zijn duurder dan houten. Dat is iets dat ik niet begrijp." Filosofeert hij over het leven - "De zin van het leven en aanverwante kwesties. Interessante titel, vind je ook niet?" - en vraagt zich af wat hij in de brief aan zijn zoontje duidelijk wil maken. Hij verbaast zich erover hoe snel mensen zich kunnen aanpassen als het moet. Hoe gewoon alles voelt. De geluiden van Louise en Oscar die in mijn slaapkamer doordringen. Het is allemaal zo gewoon. Als de situatie verergert maakt hij duidelijk wanneer het voor hem niet meer hoeft. Niet meer kunnen spreken zal voor mij reden zijn dood te willen. De honderdste en laatste blog dicteert hij noodgedwongen aan Louise: "…99, 100. Ik kom, wie niet weg is, is gezien." http://www.hollanddoc.nl/kijk-luister/documentaire/z/zolang-ik-leef.html