I don't normally send out this newsletter out to everybody twice in a row, but I want to let everybody know that we received a $2,000 donation from Tulalip Cares. YAAY!! We welcome their donation and will use it wisely to go after our goals. This is the first major donation we have received and anticipate many more. Thank you very much!
There are 2 things I want to bring up that are not directly related to the project, but they part of the community we want to build. I have run across at least 3 families that have adult with disabilities and no benefits. For what ever reason they have not signed up for Social Security, guardianship or DSHS. These are people from 26-38. If your adult child with disabilities has been disabled before the age of 22, they should qualify for benefits. Check out this site for eligibility:https://www.usa.gov/social-security-disability. And when you do get social security, it mostly likely will be Social Security Insurance (SSI). Make sure when the parent retires you can reapply for SSDI. And then their is another benefit once the parent passes. With the SSDI also comes with Medicaid. for DSHS refer to this website: https://www.dshs.wa.gov/esa/community-services-offices/how-apply-services. If they were under a IEP in school or you have doctors proof of disabilities there should be sufficient evident that they were disabled before the age of 22. So my advise is to look into getting services and funds for your adult disabled son or daughters. Its never to late. It will benefit them in future.
My other point I want to bring up is how will this look for some families to move into this project. After talking to a dad the other day and he expressed his dependency on the payments he is receiving from his disabled child, meaning he could not be able to survive where he is living right now, if his daughter left with all of her services and money to live in our project. I can come up with two possible scenarios. The obvious would be that the dad could no longer live in his present house with his disabled child, so he would have to move into the community. They could move into the community and get a 2 bedroom unit together and nothing changes in the way of money. The other possibility is if the dad moves into his own unit and the daughter her own unit in the special apartment. All will be on a sliding scale so he should qualify. I feel it its important for older people with of disabilities to have their own lives apart from the parents, not unlike our typical children. Who wants to live with theirs parent anyway?? I can see a challenge with money that we as a community can work out.