The Next Wave in Housing
January 2023 Newsletter
I hope you had a great Xmas and New Year!
I didn’t get a lot done this month since it was a busy time.
This is the end of the first year of my project. It may seem that nothing is getting done, except these newsletters, but the project is moving forward. I have tried to post all my information on the website: The Next Wave in Housing. My goal is to be as transparent as possible, so other people can mimic the design. At this point we have established a non-profit registered in Wa state. I have one person that is interested in becoming a board member, but she won't be available until after March. Thank you very much. I will start filling out the forms for tax exemption so we will be ready once we get one other person to join the board. I realize that this is a big commitment, but we have to start somewhere. Likewise we will need a lot of help organizing and setting up the design and care/supervision. I want this to be from the people that will be living in the community. I do not want to impose my thoughts on everybody else. It needs to be a person first.
That being said I want to establish that I have no preconceived ideas as to how this community will be formed and built. I am very flexible. One mom said why not do it smaller, and I have no problem with that. I don't really care how it is built or operated. I just want a safe place that is affordable and is designed to allow the least restrictive environment for my daughter for the rest of her life. She deserves to be independent and to develop friendships on her terms.
If you have studied Ohana from Spokane you'll find the same principles that I have put together. Hopefully we can use some of their ideas, since they have a 9 year head start. If it is more affordable to build a house or townhouse instead of an apartment building, then I am for it. My only objection to houses, such as Ohana and Luna Azul is how do people get from the house to the rec and restaurant areas without burning up, like in Phoenix or freezing to death in Spokane. My thoughts are we have a central kitchen that provides food 24/7, so we would need comfortable access. So my idea is if we went the ways of townhomes or homes we could connect them with a covered walkway that allows us to come and go in a reasonably safe environment.
In thinking again about Ohana and Luna Azul and cost, it may be less costly if we build connected townhomes or large cottages of 10-12 people with the rec and food in the middle like Ohana.
So our journey starts and stops with us parents. What can we do now? What are our options?
I believe I have already included this, but it is worth putting out again: Housing Options for Adults With Special Needs The Assisted living option is the one that I feel we are headed for. Either a large apartment or cottages. It would provide food service and care when needed. The downside is that it is highly regulated, not unlike AFH, but it means our loved ones will be in a safe environment with just more paper and design work. If we built homes then it could possibly be operated as an AFH.
Another option could mirror Pacifica Senior Living Lynnwood. They have large cottages with 10-12 people. This arrangement might be more cost effective. But I would still like a central rec and food area with a covered walkway.
For now, unless you have a lot of extra money, it is AFH when our loved ones can not be at home anymore. So I started the process of talking to our case worker from DDA about AFH’s. Here is what he said:
The process to refer a client to an AFH, is I would make a referral to the AFH Coordinator for the Snohomish County Region (Region 2) involving several referral forms.
She qualifies for an AFH under her current Basic Plus Waiver.
There is no cost to the family and I think services are paid via a daily rate, which is based on her classification level and the # of personal care hours she is assessed for.
As far as how long it can take to get placed, I will need to check with the AFH Coordinator and let you know this as well. Right now it takes about 2 months to place an applicant. It was a lot longer a year ago.
Typically how it works is I would submit the AFH referral paperwork and based on this info, the AFH Coordinator gives me a list of homes, with openings, and you would check them out at this point.
Individuals that need more care need to have a Core Waiver to get Supportive Living.
I am still very excited about this project and what the outcome can be. I look at the prize and work out the challenges. I give myself one more year. By then I expect to see three board members with tax exemption, and a great proposal to go after grants and loans.
I still feel that going directly to people with money is the fastest way to accomplish our goals. I don't want to fundraise that kind of money, or it will take forever, like Ohana. There is a lot of money out there. We need to connect with the right people that are sympathetic to our cause or maybe they have a loved one that needs a place to live. We can only do this if we as a community come together and work together for a common goal: Housing for our loved ones that is affordable, and enriching and safe and forever. You can help by being a board member, volunteer or just join the monthly newsletter list. Anything helps.
Denis McFadden 425-772-2561 The Next Wave in Housing
Founder and Board Member
As of August 25, 2022, “The Next Wave in Housing” is a registered WA NONPROFIT
CORPORATION.