I feel that I need to restate some of our proposals at this point. First off, why do I want to or you want to do this? It is a simple answer, to build a place where our loved ones can live out the rest of their lives in a safe and rewarding environment. What does that mean? A place that is affordable, and large enough to promote independence, work, entertainment, social connections, and owner occupied to control cost. A place where caregivers, family and friends can live with their loved ones at a lower cost. I want to live there.
Cost is the biggest hurdle to get over. I would like to see it built around the model of The Hogeweky Village from Holland, which is designed around small cottages of 6-7 people living together like a family home. This could be a community of 200-300 people that would have to sign a contract of Cooperative living to make sure that everybody has to work within the community to make it work. So again you might think this is a crazy idea. But thinking about all the houses, townhomes, retirement that are being built all over the place, somebody is investing into these now. If we have a unique idea, based on an existing model and get a developer or somebody with the means to fund it, then we can do it.
At this point I have 36 people that have signed up for the newsletter. To me this means they care enough to take an interest. Whether they read it or not. Not many have stepped up to help. But when you think about this, out of the 36 people, if just 25 have loved ones that need housing in the future, that represents one half of the 50 slots that will be available for people with disabilities if we have a 200 unit place and use a 25% cut off for people with disabilities. My idea will be to open up the community when we are a little further along, and the ones that get the newsletter, board members and committee members will be first to be notified. Once somebody is signed up, we will encourage other people that they know to sign up to live in the community with them. This is one way that I feel we could lower costs and take better care of our loved ones. To even get to the point of inviting members to join, we have a lot of things to do. First and foremost we need another board member, then taxes exemption, then apply for grants. Then we will need to look into how to finance the place. Once we have that in place we can invite people to join a LLC as a member, people with disabilities as well, since we should all own it.
Think about it this way: how can a community of people build something they feel is best for their loved ones with out any experience? For example money wise, if we had 200 units, this would mean about 300 people (couples and kids) all together, and if we were all to be charged $200,000 each for our units ( this is rally cheap in this market, but we have to make it affordable),times 200 units this would be 40 million dollars. A lot of money, yes, but that is what it may cost. I realize there are other expenses, and some of us would be paying full price and some less, but let's use this as an example. Ohana is building 60 homes for 24 million, Bode Thrive built their apartment building for 20 million which includes land. It appears we can do this, but it only works if we do it the least expensive way to control cost.
I need a place where my daughter can live out the rest of her life when I am not there anymore, without the fear of having to move or lack of funds. This might be the best option for all of us other than AFHs.
What do you think? Do you think this might work, and if it does would you be interested in living there or have your loved one live there?
I have started a one page pamphlet to use as a proposal. This is only a draft, but it is the beginning. If we use DVA Dementia as a consulting firm, they have a proposal book called a BidBook which will include most things we will need to go after funding.
I apologize for my lack of work this year. I wanted to do more but we had a medical emergency in our household that took up 2 ½ months of my time and then I will be out of the country the month of May. Life gets in the way sometimes. But the goal is still there.
If you are interested in doing something at this point these are areas of interest for us:
Board Member
Committee members of:
a. Grant writing and funding sources
c. web searches to answer these questions: (Send these to me and I'll post them).
1. Find a community in the US or Canada that includes everybody (not just people with disabilities-multi generational and inclusive) like the one we are proposing. Info needed: website, how many people (who lives there), where, cost. There's not many. Here are a few off the top of my head: Building Ohana, Sunridge Ranch, Luna Azul, Big Wave. You don't need to duplicate the ones already posted here: https://www.thenextwaveinhousing.org/comparable-communities/communities
The reason to do this is to affirm how many communities are out there so we can state in our proposal definitely that we would be building a unique community.
3. Find a developer that is sympathetic to building housing for our community.
4. Find wealthy individuals that may be interested in this project
Here's an interesting article that supports the idea of outdoor spaces and independence for our special needs folks: Why a mother decided to let her non-verbal autistic son live independently in Bali
Have a great month!!
Charles Wigle, LMFT, LPCC
The Next Wave in Housing
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