PROJECT

 "DEVELOPMENT OF SUPPORTIVE PACKAGES FOR PARENTS AND TEACHERS OF CHILDREN WITH CEREBRAL PALSY (03-18 AGE GROUP)"



Lifelong Learning Programme (Grundtvig Multilateral Project) of the European Commision.




CEREBRAL PALSY

Cerebral palsy (CP) describes a group of permanent disorders of the development of movement and posture, causing activity limitation, that are attributed to non-progressive disturbances that occurred in the developing fetal or infant brain. The motor disorders of CP are often accompanied by disturbances of sensation, perception, cognition, communication, behaviour, by epilepsy and by secondary musculoskeletal problems. (Rosenbaum, Peter et. Al. 2006 )


BACKGROUND


The prevalence of CP shows a variable rate, ranging from 1,5 to 3 per 1000 live births. Every year 10.000 children in the European Union are diagnosed with CP.
The ginger group, from Projects Coordination Team in Ankara Provincial Directorate for National Education, Turkey, behind the present project wished to investigate how parents and teachers of children with CP coped with this task. An internet search was carried on and the related research and literature were investigated. Meanwhile, discussion groups and face-to-face interviews were carried out as a preparation for the project. 20 teachers working at schools with CP pupils participated in the discussion groups once a week for 6 weeks. In addition, face to face interviews were conducted with 5 teachers and 15 parents at a school which mainly has pupils with Cerebral Palsy. According to these; it showed that parents as well as teachers lacked knowledge and competencies to assist the children at home and at school. Besides, they lacked information on services and possibilities of assistance. Parents also expressed the need to share their feelings, hopes and fears for their children as well as the need for leisure time and privacy. Furthermore, research illustrates that the Quality of Life (QoL) of children with CP in terms of participation, social, attitudinal and physical environments is poor and parental stress index is often high. It should be stressed, however, that the factor QoL is primarily contingent on the environment in which a CP child is raised and thereby involves access to services and resources at local and national level. Therefore, QoL is also directly linked to national and social infrastructure, which differs from country to country. In some EU countries, this infrastructure requires further development in order to support the CP population more adequately and effectively. The conclusion is that parents and teachers of children with cerebral palsy need support in many ways taking into account the adequacy of their environment.
As a result of these analyses, CP-PACK project was developed by communication, co-ordination and collaboration of 7 various institutions from 6 different countries in order to support parents and teachers of children with cerebral palsy in the scope of their needs.


AIM AND OBJECTIVES

The aim of 'Development of Supportive Packages for Parents and Teachers of Children with Cerebral Palsy (03-18 age group) (CP-PACK) project is to improve actual approaches in supporting parents and teachers to cope with children with CP.
Objectives of the project are;
to obtain reliable data on the needs of parents and teachers regarding CP,
to improve acceptance of CP children by family members and teachers, by taking into consideration their actual abilities, skills and problems,
to be competent parents and teachers of children with CP, with the necessary knowledge and skills required to support the disabled child effectively at home and at school,
to develop a web-based information platform to support teachers and parents of children with CP,
to contribute to raise awareness among decision-makers in education, parents and educational staff.

TARGET GROUP
Target group of the project is parents and teachers of children with CP (03-18).

MAIN OUTCOMES
  1. Training modules for parents and teachers of CP children in English and partners’ languages,
  2. Project Website,
  3. Web-based Information Tool,
  4. Leaflet, articles and e-newsletters.

DURATION

The project is implemented between 01 November 2010 and 31 October 2012.

Contacts


1 RUKİYE PEKER Coordinator Institution - Turkey +90 (312) 221 02 17 +90 (312) 212 36 17
2 RUI TELES Partner - Portugal +351 22 507 34 60 +351 22 507 34 64
3 STEFANO COBELLO Partner - Italy +39 348268198 +39 045 2109960
4 ELENI RODITI Partner - Greece +30210 96 22 290 +30210 96 44 330
5 MIMTAZE KEREM GÜNEL Partner - Turkey + 90 312 3052525/154-175 +903123051220
6 PÎRVU IONICĂ Partner - Romania +40213100815 +40213100816
7 KARINA RIISKJAER RAUN Partner - Denmark +45 3965 8500

Ċ
Rui Teles,
5 Nov 2012, 01:35
ĉ
Rui Teles,
5 Nov 2012, 01:36
ĉ
Rui Teles,
5 Nov 2012, 01:37
Comments