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Statements Proven False or Counterproductive
CDC- The majority of infections can be cured with use of recommended antimicrobials.
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Alfred I. duPont Hospital for Children- Patients were considered to have Lyme disease only if they met Centers for Disease Control and Prevention criteria (documented erythema migrans and/or positive Lyme serology).
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Boston Children's Hospital- It’s not a chronic disease (Lyme), and when discovered early, is easily treated with antibiotics.
Boston Children's Hospital- The disease is transmitted to humans from contact with the tick—not spread from one human to another.
Boston Children's Hospital- Neurological symptoms of late-stage Lyme disease appear to be rare in children.
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Boston Children's Hospital- The risk of developing Lyme disease after being bitten by a tick is only about 1 percent to 3 percent.
Boston Children's Hospital- It can take up to 48 hours for a tick to transmit Lyme disease.
Boston Children's Hospital- It's not necessary to take your child to a doctor after a tick bite.
Boston Children's Hospital- Lyme disease cannot be spread from human to human.
Boston Children's Hospital- Around 70 to 80 percent of people with Lyme disease develop a rash that is pink in the center and a deeper red on the surrounding skin.
Boston Children's Hospital- In the vast majority of cases, the arthritis eventually goes away on its own.
Boston Children's Hospital- You can only get Lyme disease from being bitten from a tick that is carrying the bacteria.
Boston Children's Hospital- Doctors don’t believe that Lyme disease is chronic, but some children experience what’s called “post-infectious syndrome.”
Boston Children's Hospital- Since post-infectious syndrome is not itself caused by an infectious agent (it follows an infection caused by an infectious agent), doctors generally don’t prescribe antibiotics.
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By adhering to simple guidelines, many potential cases of LD can be prevented.
Children's Hospital of Philadelphia- Misdiagnosis- Lyme disease with clinical features resembling brown recluse spider bites, with a necrotic skin wound. Brown recluse spider bites may be overdiagnosed in some geographic regions.
YALE/SHAPIRO- And a frequently overdiagnosed and overtreated disease (Lyme disease).
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YALE/SHAPIRO- Erythema migrans is found in approximately 90% of patients with objective evidence of infection with B. burgdorferi.
YALE/SHAPIRO- The most common manifestation of early disseminated Lyme disease is multiple erythema migrans.
YALE/SHAPIRO- Carditis, which usually manifests as various degrees of heart block, is rare.
YALE/SHAPIRO- Lyme urine antigen test is inaccurate.
YALE/SHAPIRO- If the result of the ELISA is negative, an immunoblot is not necessary.
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YALE/SHAPIRO- The long-term prognosis for children who are treated appropriately for Lyme disease, regardless of stage, is excellent.
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YALE/SHAPIRO- There is no evidence of increased risk of abnormal outcomes with Lyme disease during pregnancy.
YALE/SHAPIRO- Transmission of Lyme disease via breastfeeding has not been documented.
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YALE/SHAPIRO- For most individuals, even those who live in endemic areas, the overall risk [for Lyme] is relatively low.
YALE/SHAPIRO- The idea that Lyme disease might be the cause of nonspecific symptoms alone, without any objective signs of the illness, has been publicized by patient-advocate groups and augmented by misinformation in the lay press and on the Internet. In some instances, anxious (often misinformed) parents are driven by the fear that their child's nonspecific complaints may be a manifestation of Lyme disease, which, if not detected and treated, could lead to serious, chronic disability.
YALE/SHAPIRO- As mentioned previously, there is a large body of evidence that Lyme disease rarely causes long-term problems.
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German Committee for Infectious Diseases and Vaccinations- In case of Lyme arthritis, the enzyme immunoassay is highly positive for IgG antibodies against B. burgdorferi; the results of which are confirmed byimmunoblot with a multitude of bands.
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German Committee for Infectious Diseases and Vaccinations- The assessment of ticks for borrelial genomic sequences overestimates the importance of a single tick bite, since most tick bites are not recognized by the host.
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Yale- Use of the current method of diagnosis by the two-step approach has proven to be reliable.
Yale- OspA vaccination of children aged 2 to 5 years was shown to be safe and immunogenic.
Yale- Two clinical studies indicated that the long-term outcome of Lyme disease is good.
University of Missouri- The late manifestations generally resolve spontaneously in several years.
Tuft's Steere- Upregulation of LFA-1 on lymphocytes in this lesion may be critical in the pathogenesis of treatment-resistant Lyme arthritis.
YALE/EVANS- Preliminary data suggested that the vaccine is safe and immunogenic in children.
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It is assumed that recurrent, often silent, infections might increase antibody titres.
It should be noted that antibody titres also generally increase with the age of individuals.
1999 or before
Department of Infectious Diseases, Solvenia/Strle - The characteristic sign that permits the diagnosis of Lymeborreliosis is a typical erythema migrans skin lesion. Highly suggestive manifestations are ear lobe lymphocytoma, acrodermatitis chronica atrophicans and Bannwarth's syndrome. The majority of other signs and symptoms are only suggestive and, when expressed individually, may have a very limited or even symbolic value for the purpose of diagnosis.
Department of Infectious Diseases, Solvenia/Strle- Immunoblotting may solve some of the many dilemmas but could (especially in Europe) raise additional questions in a field in which numerous uncertainties already exist.
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YALE/CT DOH- Although the controls reported that they had not had Lyme disease, we did not confirm this serologically.
Delaware duPont Hospital for Children- The results of long-term follow-up of the pediatric population continue to strongly support the finding that children treated appropriately for LD have an excellent prognosis for normal cognitive functioning.
CT/Feder- In a double-blind study, 250 children from the Czech Republic were randomly assigned to receive 15 microg or 30 microg of OspA vaccine at 0, 1, and 2 months.
A. I. duPont Hospital for Children- Antibodies produced in response to OspA vaccination did not significantly affect the performance of the dot blot test; thus, it could provide a reliable means to test for infection with B. burgdorferi in OspA vaccine recipients.
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Hunterdon Medical Center/Sigal, L.- Rarely, Lyme disease manifests as localized arthritis, heart block or disease of the nervous system.
Hunterdon Medical Center/Sigal, L.- Overdiagnosis and overtreatment of Lyme disease have become common.
PN Malleson- Vancouver, Canada/Rheumatology- Paediatricians should be wary of treating children witharthritis without a history of tick bites orerythema migrans for Lyme disease, unlessthere is western blot confirmation of a positiveserology, as the risk of antibiotic toxicity isprobably higher than the risk of complicationsfrom the untreated disease.
PN Malleson- Vancouver, Canada/Rheumatology- It is worth noting that in areas where the disease is endemic,many children diagnosed as having chronicLyme disease actually have fibromyalgia.
Department of Infectious Diseases/Sweden- It is concluded that there probably is an overdiagnosis of Lyme borreliosis and that better microbiological methods are needed to confirm active disease.
YALE/SHAPIRO- The prognosis is excellent for children with Lyme disease who have been treated with standard antimicrobial regimens.
Fawcett/Alfred A. duPont- These results indicate that serologic tests designed to have high specificity can reliably rule out Lyme borreliosis in patients with chronic symptoms, thus preventing unnecessary treatment with antibiotics.
Stanek/J.G. Mendel Children's Hospital/Infectious Disease Department- A 3 months follow-up was completed with 151 children. No child showed clinical evidence of illness, nor were there abnormalities in laboratory parameters.
Adams, Rose/Department of Pediatrics, Alfred I. duPont Institute, Jefferson Medical College, DE- No differences between LD and control groups were found for any of the numerous neuropsychologic measures.
Adams, Rose/Department of Pediatrics, Alfred I. duPont Institute, Jefferson Medical College, DE- No predisease versus post-disease difference in academic performance was found.
Adams, Rose/Department of Pediatrics, Alfred I. duPont Institute, Jefferson Medical College, DE- No perceived long-term deterioration in cognitive, social, or personality areas was reported by parents.
Adams, Rose/Department of Pediatrics, Alfred I. duPont Institute, Jefferson Medical College, DE-Children appropriately treated for LD have an excellent prognosis for unimpaired cognitive functioning.
New York Medical College, Valhalla- Western Blots- The presence of at least 2 bands of moderate to high intensity (> 40 optical units) or at least 5 bands of lower intensity (> 20 optical units) was over 90% sensitive and 100% specific for the diagnosis of Lyme arthritis.
New York Medical College, Valhalla- Western Blots- A 60-kd band was present in all Lyme arthritis patients. The presence of an 83-, 39-, 21-, or 18-kd band was highly specific for Lyme arthritis.
CDC- In 1993, two U.S. manufacturers received FDA approval to conduct field trials of LD vaccines in humans. One was conducting Phase III trials of 10,000 people in the northeast, north central and mid-Atlantic regions. The 2nd manufacturer was conducting trials on 400 humans in New England. Both reported prior to 1993 the vaccines were safe and immunogenic. (LD wasn't reportable until 1990. In 1993 only 8,185 cases were reported to CDC, with an incidence rate of 3.3 per 100,000.)
Strickland, University of Maryland/MD Dept. of Health & Mental Hygiene- Study information came from the practicing physicians Confidential Morbidity Report and labs reporting positive results. Often information was obtained via the telephone.
Strickland, University of Maryland/MD Dept. of Health & Mental Hygiene- Of 373 patients reported, 90 did not meet the CDC's case definition and were excluded from the study.
Strickland, University of Maryland/MD Dept. of Health & Mental Hygiene- Flu-like symptoms and positive serology patients, those with no joint swelling, and arthralgia with positive serology patients were excluded from the study.
Strickland, University of Maryland/MD Dept. of Health & Mental Hygiene- In about 10% of cases physicians changed the antibiotics within the first week of treatment due to the patient's intolerance to the drug.
Strickland, University of Maryland/MD Dept. of Health & Mental Hygiene- Of 283 patients meeting the CDC criteria, 104 were without cardiac, arthritic or neurologic symptoms.
Strickland, University of Maryland/MD Dept. of Health & Mental Hygiene- It is generally accepted that 2-3 weeks of antibiotic therapy is sufficient for treating early onset Lyme disease. This almost always clears the rash and other symptoms and prevents more chronic manifestations.
Strickland, University of Maryland/MD Dept. of Health & Mental Hygiene- The overdiagnosis and treatment of patients with chronic manifestations suggestive of Lyme disease is of major concern, since many of these patients are being treated with expensive and potentially toxic regimens.
Feder/University of Connecticut- Treatment errors were made for 19 (25%) of these 75 patients.
Feder/University of Connecticut- Of the 146 patients, 56 (38%) were overdiagnosed, 12 (8%) were underdiagnosed, and 75 (51%) were correctly diagnosed with Lyme disease.
Feder/University of Connecticut- In addition, three patients (2%) with tick bites were misdiagnosed or mistreated.
Feder/University of Connecticut- Frequent pitfalls included misidentifying rashes as erythema migrans, ascribing nonspecific symptoms to Lyme disease, failing to ascribe fleeting objective symptoms to Lyme disease, and inappropriate antibiotic therapy for patients with Lyme disease.
Orthopedic Surgery Service/Ohio- Although the patient's right knee symptoms and positive Lyme serology were consistent with a diagnosis of Lyme arthritis, the presence of sensorineural hearing loss and interstitial keratitis with inflammatory arthritis suggested a diagnosis of Cogan's syndrome. Subsequent Western blot analysis was negative for Borrelia burgdorferi antigens. The patient had dramatic clinical improvement of musculoskeletal and ophthalmologic complaints shortly after receiving high-dose corticosteroids.
Shapiro/Yale- Extensive publicity in the lay press about the effects of Lyme disease has led to widespread anxiety about this illness that is out of proportion to the actual frequency of severe consequences, especially among children.
Shapiro/Yale- Although there has been great concern about congenital Lyme disease, no data suggest that it is a significant problem, nor has transmission of Lyme disease through breast milk been documented.
Shapiro/Yale- Virtually all children will respond well to treatment for any stage of Lyme disease.
Shapiro/Yale- Misdiagnosis is the most common reason for treatment failure.
Shapiro/Yale- Long-term follow-up studies indicate that the prognosis for children with Lyme disease is excellent.
Shapiro/Yale- The IgM rOspC ELISA is a convenient, readily automated, easily standardized serologic test that is significantly more sensitive for the diagnosis of early Lyme disease than either WC ELISA or immunoblot assay.
CDC/Ft. Collins, Colorado- Treatment of unsubstantiated Lyme disease has led to serious complications in some cases.
CDC/Ft. Collins, Colorado- Two case-control studies, based on information in clinical records of patients discharged with a diagnosis of Lyme disease during 1990-1992, were conducted at a central New Jersey hospital.
CDC/Ft. Collins, Colorado- Only 3% of 71 evaluatable subjects met the study criteria for disseminated Lyme disease.
CDC/Ft. Collins, Colorado- Treatment of unsubstantiated diagnoses of Lyme disease is associated with biliary complications.
Academic Rheumatology Group, St George's Hospital Medical School, University of London- Seven had a history of tick bite or tick exposure in an endemic area; however, only four had specific antibodies to B. burgdorferi confirmed on immunoblot.
Service de Dermatologie, Groupe Hospitalier Bichat-Claude Bernard, Paris- Antibiotic prophylaxis is not necessary.
Universitäts-Kinderklinik, Graz.- In any case of peripheral facial palsy even without clinical evidence of meningitis a lumbar puncture has to be done in order to confirm or exclude a CNS infection.
Stanek/Hygieneinstitut, Universität Wien- Clinical diagnosis of suspected cases of Lyme borreliosis requires confirmation by the demonstration of the aetiologic agent and the recognition of its causative role in the respective disorder.
Stanek/Hygieneinstitut, Universität Wien- Interpretation of serological test results may lead to the clinical diagnosis of Lyme borreliosis and in consequence to antibiotic treatment.
Rose, Fawcett/Division of Rheumatology, Alfred I. duPont Institute, Delaware- Medical records of 227 children ages 1 to 19 years referred to the Lyme disease pediatric clinic over a 32-month period since May 1990 were reviewed.
Rose, Fawcett/Division of Rheumatology, Alfred I. duPont Institute, Wilmington, Delaware- Clinico-serologic criteria for a positive diagnosis were applied. One hundred thirty-eight of 227 referred children did not fulfill those criteria.
Rose, Fawcett/Division of Rheumatology, Alfred I. duPont Institute, Delaware- Four subsets of patients emerged: (1) 54 patients with predominantly subjective symptoms; (2) 52 patients with objective evidence for an alternative diagnosis; (3) eight patients who had documented infection in the past and continued with symptoms after antibiotic treatment; and (4) 24 patients with a history of tick attachment or prenatal/family history of Lyme disease.
Rose, Fawcett/Division of Rheumatology, Alfred I. duPont Institute, Delaware- Fifty-seven percent of these patients had received treatment prior to our evaluation. Children residing in an endemic area who present with vague symptoms are being diagnosed with and treated for Lyme disease without clinical or serologic documentation.
Rose, Fawcett/Division of Rheumatology, Alfred I. duPont Institute, Wilmington, Delaware- In addition, fear in the lay community may be inducing doctors to diagnose Lyme disease in patients with symptoms that may be suggestive of an alternative diagnosis.
Strickland/University of Maryland/Maryland DHMH- The recommended treatment of Lyme disease is evolving and important questions remain unanswered, such as (a) Are inexpensive oral regimens effective in curing acute illness and preventing arthritic, neurologic, and cardiac manifestations or are much more costly, and potentially toxic, intravenous antibiotics required?
Strickland/University of Maryland/Maryland DHMH- Questions remain unanswered, such as (b) Are relatively short 2- to 3-week courses of antibiotics sufficient or are prolonged regimens of a month, or more, better?
Strickland/University of Maryland/Maryland DHMH- This study reviews antibiotic therapy prescribed by Maryland physicians for the 283 cases reported in 1991 that meet the Centers for Disease Control and Prevention's case definition for Lyme disease.
Strickland/University of Maryland/Maryland DHMH- The most frequently prescribed antibiotics for either the 60 percent of patients presenting with erythema migrans or the 40 percent with arthritic, neurologic, or cardiac manifestations were oral doxycycline (47 percent), tetracycline (11 percent), and amoxicillin (13 percent).
Strickland/University of Maryland/Maryland DHMH- The average course [of antibiotic therapy] was 2 days longer in treating those with arthritic, neurologic, or cardiac manifestations than in treating those with erythema migrans alone.
Strickland/University of Maryland/Maryland DHMH- Efforts to educate physicians should be directed more towards the diagnosis rather than the treatment of Lyme disease.
German Federal Health Institute- These results confirm the current recommendation of the Bundesgesundheitsamt that generally antibiotic treatment after a tick bite is not necessary.
Columbia-Presbyterian Medical Center, New York- Based on the low frequency of illness, the absence of stage II disease, and the inability to establish the efficacy of early antibiotic treatment, we suggest that physicians not routinely use prophylactic antibiotics for deer tick bites.
New York Medical College, Valhalla- Maternal Lyme disease or an increased risk of exposure to Lyme disease was not associated with fetal death, decreased birth weight, or length of gestation at delivery.
New York Medical College, Valhalla- Tick bites or Lyme disease around the time of conception was not associated with congenital malformations.
Aland Central Hospital, Finland- General screening for Lyme disease is not recommended in the area due to uncertainty about how to deal with seropositive healthy persons in this heavily exposed population.
Aland Central Hospital, Finland- Treatment of all those suffering tick-bites with an antibiotic would be an option in view of the incidence of infected ticks, but cannot be considered because tick-bites are extremely common among the inhabitants.
Steere, New England Medical Center, Boston- One hundred fifty-six patients (20%) had previous Lyme disease and another current illness, most commonly chronic fatigue syndrome or fibromyalgia; and in 49 patients, these symptoms began soon after objective manifestations of Lyme disease.
Steere, New England Medical Center, Boston- The remaining 452 patients (57%) did not have Lyme disease. The majority of these patients also had the chronic fatigue syndrome or fibromyalgia; the others usually had rheumatic or neurological diseases.
Steere, New England Medical Center, Boston- Of the patients who did not have Lyme disease, 45% had had positive serological test results for Lyme disease in other laboratories, but all were seronegative in our laboratory.
Steere, New England Medical Center, Boston- In 322 (79%) of these patients, the reason for lack of response to treatment was incorrect diagnosis.
Steere, New England Medical Center, Boston- Only a minority of the patients referred to the clinic met diagnostic criteria for Lyme disease. The most common reason for lack of response to antibiotic therapy was misdiagnosis.
University of British Columbia, Vancouver, Canada- Borrelia burgdorferi is not known to be endemic in this region, but considerable anxiety about Lyme disease has developed among the general public.
University of British Columbia, Vancouver, Canada- Strict diagnostic criteria consistent with published standards were applied. Only two of the 65 patients were judged to have probable Lyme disease.
Sood, Schneider Children's Hospital of Long Island Jewish Medical Center, New Hyde Park, NY- As false positive reactions are frequent in ELISA for Lyme borreliosis, they cannot be used reliably to make the distinction.
Sood, Schneider Children's Hospital of Long Island Jewish Medical Center, New Hyde Park, NY-
Ninety-nine children diagnosed as having JRA at a children's hospital in an endemic area were evaluated by ELISA and immunoblot for antibodies to Borrelia burgdorferi. Sera from 9% were positive by ELISA, 5 of which showed bands on immunoblot. None met criteria for positive immunoblot.
Sood, Schneider Children's Hospital of Long Island Jewish Medical Center, New Hyde Park, NY- The antigenic basis of false positive ELISA was most frequently a reactivity to both 21 and 41 kDa.
Sood, Schneider Children's Hospital of Long Island Jewish Medical Center, New Hyde Park, NY- Analysis by immunoblot can help to definitively exclude Lyme borreliosis in children presenting with JRA in an endemic area.
University Hospital, Göttingen, Germany- Lyme neuroborreliosis was the focus of the study, with the chief concern being to minimize false-positive results. To this end, we chose to narrow the diagnostic criteria, using the presence of specific antibodies in the cerebrospinal fluid as the determining factor.
Feder, Krause, Shapiro, et. al. University of Connecticut Health Center- The existence of a form of early Lyme disease characterized by a flu-like illness without erythema migrans is controversial.
Feder, Krause, Shapiro, et. al. University of Connecticut Health Center- The diagnosis of Lyme disease was based on the appearance of IgM or IgG antibodies to Borrelia burgdorferi as demonstrated by both enzyme-linked immunosorbent assay and immunoblot assay.
Feder, Krause, Shapiro, et. al. University of Connecticut Health Center- Twenty-four untreated patients were studied.
Feder, Krause, Shapiro, et. al. University of Connecticut Health Center- The flu-like illness in these five patients was characterized by fever and fatigue and resolved spontaneously in 5 to 21 days. Symptoms recurred in three of these five patients.
CDC- 79% had been hospitalized for treatment of suspected LD or management of treatment complications, most notably drug-induced symptoms of gallbladder disease occurring in patients receiving ceftriaxone (Rocephin), and bloodstream infections associated with intravenous catheters.
CDC- A computerized search of hospital discharge data in New Jersey was performed.
Steere, et. al. Tufts-New England Medical Center, Boston, Massachusetts- We have done a retrospective study that compared the clinical course of Lyme arthritis in 83 patients.
Marshfield Medical Center Laboratory, Wisconsin- Cultivation of B. burgdorferi from skin lesions suggestive of erythema migrans is a practical and clinically relevant procedure.
Müller M, Stanek, et. al. Hygiene-Institut, Universität Wien- In case of a suspected Borrelia burgdorferi infection confirmatory tests are needed.
Müller M, Stanek, et. al. Hygiene-Institut, Universität Wien- The retrospective evaluation of patients' records showed that anamnestic and clinical findings alone do not suffice to establish the specific diagnosis of Lyme borreliosis and, hence, do not provide the indication of appropriate therapy.
Sigal- University of Medicine and Dentistry of New Jersey-Robert Wood Johnson Medical School, NJ- In areas endemic for Lyme disease there is increasing concern and anxiety about possible chronic and untreatable manifestations of the disease.
Sigal- University of Medicine and Dentistry of New Jersey-Robert Wood Johnson Medical School, NJ- The authors have diagnosed fibromyalgia in many patients with chronic musculoskeletal complaints in whom chronic Lyme arthritis had previously been diagnosed as the cause of their joint pains.
Sigal- University of Medicine and Dentistry of New Jersey-Robert Wood Johnson Medical School, NJ- Fibromyalgia is a common disorder, causing arthralgia (not true arthritis), fatigue, and debility.
Sigal- University of Medicine and Dentistry of New Jersey-Robert Wood Johnson Medical School, NJ- The repeated and/or long-term antibiotic therapy prescribed for "chronic Lyme disease" is not successful in curing the symptoms of fibromyalgia.
Sigal- University of Medicine and Dentistry of New Jersey-Robert Wood Johnson Medical School, NJ- Especially in areas where anxiety about Lyme disease is great, it is important to be careful in diagnosing chronic Lyme disease.
Sigal- University of Medicine and Dentistry of New Jersey-Robert Wood Johnson Medical School, NJ- Fibromyalgia is a potentially treatable and curable cause of chronic complaints and should be considered in the differential diagnosis of "refractory Lyme arthritis."