Do NOT Depend on the Standard 
Lyme Disease Lab Tests for a Diagnosis! 

According to a study from Johns Hopkins, Lyme tests miss approximately 75% of the patients who have Lyme disease.  Other sources have determined the percentage of people missed could be as high as 90%.  Remember, a negative test does not exclude the diagnosis of Lyme disease! 

Update-  The 2006 IDSA Guideline editor, Paul Auwaerter, and more than one of the IDSA Lyme disease guideline authors (panel) are from, or are currently working at Johns Hopkins.  Paul Auwaerter was also a co-author on the 2005 John Hopkins study proving the tests for Lyme disease were grossly substandard, yet he continues to insist one or more tests should read positive before being treated for Lyme disease.

Update- Paul Auwaerter is still on the warpath, attempting to stop doctors from ordering tests for Lyme disease from labs that his colleagues don't have patents on.  Click here  for more information.   

Connecticut Attorney General's Findings- May 1, 2008

"The IDSA's 2006 Lyme disease guideline panel undercut its credibility by allowing individuals with financial interests -- in drug companies, Lyme disease diagnostic tests, patents and consulting arrangements with insurance companies -- to exclude divergent medical evidence and opinion."

Difficulty Affording Lyme Testing?

The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program offered by Ferndale Foundation in coordination with the Lyme Patients Assistance Group to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need. Please click here for more information.

A false negative Lyme test is a disadvantage in several ways. 

1.  Your health care professional may not realize you could still have Lyme disease and not treat you as a result.  

2.  False negative tests can cause a delay in obtaining a proper diagnosis.  Not receiving proper treatment in the early stages allows a complex infectious organism to spread throughout your body, making your condition worse and allowing it to advance to later stages.  This, in turn, makes Lyme disease more difficult and expensive to treat.

3.  You may be improperly diagnosed with fibromyalgia, CFS, MS, Parkinson's, ALS, ADD, depression and other disorders when in fact Lyme disease is the underlying culprit.  
4.  Having a negative test provides the insurer another reason to deny your medications and any further testing or treatment for Lyme disease.    

Over the years more health care professionals have stopped using these standard "insurance approved" tests and are sending blood samples to labs that specialize in tick borne disease testing.  If you would like to use a specialty lab to aid in the diagnostic process, you can have a test kit sent to you upon request.  For more information please contact:    

IGeneX, Inc.
795 San Antonio Rd
Palo Alto, CA 94303

Phone: 1-800-832-3200 Toll free
Fax: 1-650-424-1196 

Lab Contact Information

Tick Borne Disease Testing

795 San Antonio Rd

Palo Alto, CA 94303

Phone: 1-800-832-3200 Toll free
Fax: 1-650-424-1196 

BioHealth Diagnostics

Adrenal testing

Phone 619-223-7074

Genova Diagnostics

Detox profile, hair testing  

Phone 800-522-4762

Meridian Valley

Allergy, hormone testing         

Phone 425-271-8689


Ion, urine testing                       

Phone 800-221-4640

Fry Laboratories, L.L.C.  

Tick borne diseases

Phone 866-927-8075

Advanced Laboratory Services

Lyme Culture Tests


Genelex Lab

Liver Enzymes, MTHFR, etc.

3101 Western Ave., Ste. 100, Seattle, WA 98121

800-TEST-DNA (800-837-8362) or 800-523-3080

See Links and Pages Below for More Information!
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