Silent, Deadly Disease
Joseph Loretto
Jemez Pueblo
Silent, Deadly Disease
Joseph Loretto
Jemez Pueblo
Sharing One Skin
In summary of the article ¨Sharing One Skin'' the author is talking about how important Native American languages and traditional ways are sacred to our communities. In this article the author makes it very clear that there is a difference between what white people think about who we are and what we really know about ourselves. Also in this article the author talks about, for example ¨the physical self, the emotional self, the thinking-intellectual self, and the spiritual self.¨
Pg.463 (3) The four ¨selves¨ are what makes us whole as one with our families and communities.
Armstrong, Jeanette. “Sharing One Skin: The Okanagan Community,” in Jerry Mander and Edward Goldsmith (eds), The Case Against the Global Economy. San Francisco, CA, Sierra Club Books, 1996. Pp 460-470.
In this article it shares the history and the basic background knowledge of Cystic Fibrosis (CF). This article starts off by giving us a description of the CF disease telling the reader how CF originated, and the preliminary discoveries of the different effects of the disease. Another key aspect discussed in this article is the first diagnosis of Cystic Fibrosis, “After 1989, when the CF gene was identified, the diagnosis could be made by direct identification of two mutant CF Alleles” It also shares the effect it has on the lungs, and body. This disease needs to be treated for diagnosed patients to live a long healthy life.
This article explains the trials and challenges that these individuals with CF face everyday. The article shares how Cystic Fibrosis has come to what it is today. Long ago the patients went through more hurting, and was untreatable due to lack of knowledge on the disease. Earlier patients with CF had a short life expectancy till new science discoveries improved the life expectancy of the last 30 years. Only because all the great accomplishments they have made in this has made it possible for my six year old niece who is diagnosed with CF to live as long as she has been. I am thankful for all the research that has been done to help my niece live a long life, all of this is due to the treatments that have been scientifically proven to expand life expectancy. Everyone now that is diagnosed with CF no longer suffer in pain as much as the first patients and live way longer than expected.
Davis PB. Cystic fibrosis since 1938. Am J Respir Crit Care Med. 2006 Mar 1;173(5):475-82. doi: 10.1164/rccm.200505-840OE. Epub 2005 Aug 26. PMID: 16126935.
This was a TEDx Talk video on Youtube, I can relate to Rebecca Schroeder because I also have a family member who is battling with Cystic Fibrosis. We have faced and overcome so many challenges, all of it has only made us stronger. We depend on the research that gets done at the CF Foundation and help support and raise money for the cause. None of this would become part of my life if it wasn't for my niece, and luckily we have the resources to help teach us how to live with Cystic Fibrosis. A lot of it is trial and error but it all goes for the best. I really appreciate all the hard work that is being done to find a cure for this disease.
Schroeder, Rebecca. ¨Toward a Cure for Cystic Fibrosis: The Best Story in Medicine.¨ Youtube, Uploaded by TEDx Talks, 24 March 2020, https://www.youtube.com/watch?v=0cYdPMGth9Q&t=935s
After doing some research I came across this article called ¨Race against time for Mariana, a young Mexican with Cystic Fibrosis¨ In this article it talks about this young woman named Mariana Vallejo, who is from Mexico and has cystic fibrosis (CF). Mariana was diagnosed with CF at the age of 16, before that she was living a regular normal life. Mariana is now 23 years old and she is in need of a very expensive operation, she needs to raise a total of $465,116 in less than 2 months. According to the article, In Mexico and Latin America the life expectancy in someone diagnosed with cystic fibrosis is 18 years of age. These expectancy rates are so low here because these areas do not have specialized medical centers that can treat this illness with the right necessities. Mariana wants to raise awareness of this disease to help herself live a long life and others going through similar experiences. Mariana will have a transplant in order to save her life.