Your stories
These are inspiring stories from our epilepsy fighters and carers. Thank you to our supporters for sharing their very personal stories.
Everyone's epilepsy story is unique. Talking and sharing about our journeys help to lessen the fear and misunderstanding around seizures and epilepsy. They also help show others that they are not alone.
Living With Epilepsy
Ayuni's Story: Epilepsi Mengubah Hidupku dalam Sekelip Mata
"Aku hanyalah seorang gadis biasa yang ingin mencecah umur 24. Pada usia aku 13 tahun aku..." Read more...
Afiqah's Story: Epilepsy Fighter
Afiqah describes her experience living with epilepsy, and her journey with TLE before having her surgery. Read more...
Sze Tang's Story: Perjalanan Bertemankan Epilepsi
"Aku sedar di katil wad seolah-olah orang yang baru bangun dari tidur. Katilku dikelilingi orang-orang yang masing..." Read more...
Nisshaa's Story: My Life Journey or Life Living with Epilepsy
24 year-old Nisshaa shares how her dystonia and epilepsy do not stop her from having fun and loving her life. Read more...
Sandy's Story
Finding help from PEM group members and her doctors, Sandy explains how reaching out for support made a huge difference. Read more...
Chin Yee's Story: Kawan PNES Saya
"Saya bernama Yap Chin Yee. Sejak tahun 2007 saya disahkan oleh doktor neuro saya ada penyakit epilepsi..." Read more...
Roc Shen's Story
"Hello everyone I am so happy today to write about my experience of my epilepsy..." Read more...
Wan Azani's Story
At 34, Wan Azani thought he was too old to be having seizures. He writes about his journey since then, with this acrostic essay. Read more...
James's Story: My Journey Living as an Epilepsy Patient
James discusses the challenges he's had to overcome in his career in the medical field, while being an epilepsy patient. Read more...
Alyaa's Story: Meet My Best Friend - Epilepsy
Eclampsia struck Alyaa when she was 8-months pregnant. Her life changed drastically after that. Read more...
Karen's Story: Journey or Life Living with Epilepsy As I Had Epilepsy Since Young
Living with epilepsy since she was a toddler, Karen recounts her journey. Read more...
Rishantini's Story: Stress Epilepsy
Rishantini had her first epilepsy attack when she was a college student studying Law. Read more...
Syarah's Story: My Epilepsy Journey
"Why am I flying? I can't see anything. At that moment, everything went pitch black..." Read more...
Phillip's Story: Ok I Have Epilepsy But Hey Life Has To Move On
"I stopped a long time ago to be embarrassed by being an 'epileptic'." Read more...
Email us your stories, and if you want, include a picture of yourself. Your stories will be shared on our website and social media.
Everyone's epilepsy story is unique. Talking and sharing about our journeys help to lessen the fear and misunderstanding around seizures and epilepsy. They also help show others that they are not alone. Please share your story too.
Caring for Someone with Epilepsy
Elaine's Story: 从未知到已知
人生是一个不断探索，学习及发现的过程，我很庆幸自己不止有机会获得知识，也有机会分享给其他病患及家属. Read more...
Hui Theng's Story: The Journey of Warrior Erisya in Epilepsy
Hui Theng's daughter started having epilepsy when she was 3 months old. Read more...
Jan Parr's Story: Epilepsy Everyday
"Though every time she has her seizure it broke my heart, I never give up trying to make her life as normal as possible..." Read more...
Norfazliana's Story: Pengalaman Pulang Ke Kampung
Perkongsian seorang ibu tentang cabaran pulang ke kampung bagi anak istimewanya yang menghidapi 'Dravet Syndrome'. Read more...
Email us your stories, and if you want, include a picture of yourself. Your stories will be shared on our website and social media.
Everyone's epilepsy story is unique. Talking and sharing about our journeys help to lessen the fear and misunderstanding around seizures and epilepsy. They also help show others that they are not alone. Please share your story too.