WELCOME tO PEM

👆 Join us for a special talk on “What is Mental Health?” at our upcoming epilepsy support group meeting. Grab the chance to meet others with epilepsy, share experiences and ask questions in a safe and relaxed environment. Light refreshments will be served.

Scan the QR code or click this link to register your attendance (in-person or online):

https://forms.gle/6BzVGY3B1gn86UtR8

✨ As always, we welcome everyone with epilepsy, their caregivers, friends and any supporters to come and say hello! 👋

Let’s support each other and find strength through connection 💜 💜

Venue Direction:

Google Map Link

Waze App Link

See you there!

For those who cannot join us physically, you can join us online via Zoom.

Please register at the link above and we will e-mail you

the Zoom link closer to the day.

CHRISTMAS FUN DAY - 20 DEC' 2025

Persatuan Epilepsi Malaysia in collaboration with Ateria Medika and Terrarium Garden Malaysia, is pleased to announce our upcoming Christmas Fun Day!

Whether you have epilepsy or are a loved one or caregiver, join us for a relaxing afternoon learning how to build your own terrarium. Take this chance to also connect with others and share experiences. As the holiday season approaches some people may feel a little isolated and alone, and we are here to remind you that you are not alone.

We'll have delicious food and good company with plenty of laughter, so don't miss out and RSVP today! Register your free place by clicking the link below, or scanning the QR code in the poster.

Registration closes: 16 November 2025

P.S. Please register early to help us have a smooth and comfortable event day. Thank you!

Let's usher in the holiday season and celebrate the end of the year with friends as we gather for our monthly support group meeting.

RSVP Here!

Epilepsy Support Group "Christmas Fun Day"

Date: 20 December 2025 (Saturday)

Time : 12.30 pm - 3.45 pm

Venue: Conference Room, Neurology Unit, Level 6, Menara Selatan, Pusat Perubatan Universiti Malaya (PPUM), Jalan Universiti, 59100, Kuala Lumpur.

Google Map: https://share.google/77lTzJaYhneC56UDg

AGM 2025 AND SEPT SUPPORT GROUP - 20 SEPT 2025

You are cordially invited to join us at Persatuan Epilepsi Malaysia's 34th Annual General Meeting and Sept' Support Group Session!

Hear from two patients who have had epilepsy surgeries talk about their pre and post surgery journey. Grab this chance to share, learn and connect with others in the epilepsy community.

This meeting is a hybrid meeting however we encourage you to attend in-person if you can 💪.

RSVP your attendance at the link below:

🗓 Date: Saturday, 20th September 2025

🕐Time: 2:00 pm – 4:00 pm

📍 Venue: Conference Room, Neurology Unit, Level 6, Menara Selatan, Pusat Perubatan Universiti Malaya (PPUM), Jalan Universiti, 59100, Kuala Lumpur.

Google Map: https://share.google/77lTzJaYhneC56UDg

🔗RSVP Link: https://forms.gle/pJKEJ3syXYegXo5f9

Read our previous AGM Minutes

and this year's Annual Reports here.

Please support our effort and join us! We look forward to hearing your ideas as well as feedback for the committee. Entrance is free of charge and light refreshments will be provided.

Please click the link below to enter the Zoom session.

Malaysian Society of Epilepsy PEM is inviting you to a scheduled Zoom meeting.

Topic: PEM AGM 2025 + Support Group Meeting

Time: Sep 20, 2025 02:00 PM Kuala Lumpur

Join Zoom Meeting

https://us02web.zoom.us/j/86345709613?pwd=T77tgs2mG44OVeQ9dEfliL98DKJiyj.1

Meeting ID: 863 4570 9613

Passcode: 338239

To those joining us via Zoom do take note that only registered members are allowed to propose or second any motions. Non-registered members are welcomed to sit in the AGM and observe. You can check if you are a registered member by checking our membership list.

If you have any questions please email us at epilepsymalaysia@gmail.com or WhatsApp our Admin (Text Only) at 012-3258944 (Ms. Najlaa).

SPASTIC FUN RUN 2025 - 26 OCT 2025

WALK-JOG-WHEEL-DONATE FOR A GOOD CAUSE!

Spastic Fun Run 2025 is here!

Welcome to the 30th Annual Charity Walk Jog Wheel A Thon organised by The Spastic Children's Association of Selangor and Federal Territory (SCAS&FT) .

PEM is joining 30 other NGOs to celebrate people with disabilities and invisible illnesses with a fun day out at Dataran Petaling Jaya. This year's event will be held on the 26th October 2025 (Sunday) at 6.30 am (7.30 flag off).

Dataran Merdeka is undergoing renovations this year therefore the venue is now at Dataran PJ!

There are 3 courses on the day, 2KM Fun Walk, 5KM Fun Run and 10KM Open Run.

All registered PEM members/friends/affiliates can register under PEM. While majority of us will be walking the 2KM Fun Walk, you can also register for the 5KM/10 KM events under PEM.

Click the button below to register. Entry fee is RM48 per person, (for all three categories), and you will receive the T-shirt, Bib Number and Finisher Medal.

PEM has been a part of this landmark walk since 2013. We would love it if more of our members join us this year to walk, support and have fun. There will be lucky draw prizes, carnival games, food trucks and entertainment for the whole family!

Registration Form for PEM Members/Friends/Affiliates

Last day to register for Spastic Fun Run 2025 is on the 31 August 2025.

P:S The google form above is strictly for our members/affiliates only, do not share with the public!

Email us at epilepsymalaysia@gmail.com

or WhatsApp PEM at 012-325 8944 for more information.

If you would like to share this event with the general public you can direct them to the HEYJOM platform link below:

https://www.heyjom.com/event/Spastic-Fun-Run-2025

Memories of Spastic Fun Run 2024! A few of us were lucky enough to get the lucky draw prizes!

You can view more pictures and videos from last year's Spastic Fun Run 2024 on PEM'S FB page here

ANNUAL WALKATHON FUNDRAISING

If you would like to help us collect donations using the walkathon collection cards, please contact our Admin at epilepsymalaysia@gmail.com or WhatsApp (Text Only) to +6012-3258944 to find out more. Those who help us collect donations will be given a spot for the Fun Walk!

-----------------------------

The Annual Charity Walkathons have been one of the platforms that we use to collect donations on a large scale from the public. Funds raised go toward our future PEM Office/Building Fund.

For the 28th Annual Charity Walk-Jog-Wheel-A-Thon fundraising event, PEM raised RM 8,227.00

Why not help us break our previous record? Any amount is appreciated and every little help goes a long way. To donate please make your bank transfer to:

Bank Name: CIMB
Bank Account number: 8000507059
Account Name: Malaysian Society for Epilepsy

Please help us identify your donation by contacting us at epilepsymalaysia@gmail.com, or WhatsApp your payment receipt to PEM at 012-325 8944, and include as well your name, address and phone number.

Use "WALKATHON DONATION" as a reference when making your bank transfer.

27th Walkathon Event 2022

AUGUST SUPPORT GROUP MEET-UP - 16 AUGUST 2025

Join us for a special talk on “Memory and Epilepsy”, at our upcoming epilepsy support group meeting. Grab the chance to meet others with epilepsy, share experiences and ask questions in a safe and understanding environment. We’ll also have fun activities, games, and tea and snacks.

We highly recommend if you can, to attend in person to get the most out of our programme. As always, we welcome everyone with epilepsy, their caregivers, friends and any supporters to come and say hello! Let’s support each other and find strength through connection

To register, please click the button below. Zoom link is also available at the link above (for those joining us online).

Epilepsy Support Group Meet-Up

Date: 16 August 2025 (Saturday)

Time : 1.00 pm - 3.00 pm

Venue: Conference Room, Department of Medicine, Level 8,

Clinical Block, Hospital Canselor Tuanku Muhriz UKM, Cheras.

Google Map: https://maps.app.goo.gl/SWx2MSgPbaSBrmPB6

Join Us - Register Here!

LET'S BOWL! - 28 JUNE 2025

Date: Saturday, 28 June 2025

Time: 10.30 am - 1.30 pm (GAME START TIME 11.00 AM SHARP)

Venue: Ampang Bowl The Summit Subang USJ,

3rd Floor, The Summit USJ, Jalan Kewajipan, 47500 Subang Jaya, Selangor Darul Ehsan.

Timeline:

10.30 am - 11.00 am: Registration, Shoe and Lane allocation

11.00 am - 1.00 pm: Bowling Time

1.00 pm - 1.30 pm: Prize Giving Ceremony

Places are limited so register early to lock your spots. Remember to wear something purple for epilepsy!

Socks and bowling shoe are compulsory, *please remember to bring your own socks*.

To become members of PEM, click this link https://form.jotform.com/201226933808455

Any enquiries, please email us at epilepsymalaysia@gmail.com or WhatsApp PEM at 012-325 8944.

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Registration closes 21 June 2025 - Click the button below to Register Now!

Join Us - Register Here!

RAYA CELEBRATION &

EPILEPSY SUPPORT GROUP - 26 APRIL 2025

Selamat Hari Raya to all our members. We hope you are doing well.

🌙✨ Come and celebrate Raya with PEM! Join us for a celebration of Eid along with our Support Group Session. This month we will be featuring a special activity that uses art as a therapeutic source! 🎨👨🏼‍🎨

Let's connect, learn, and support each other. We'll also have delicious food and plenty of laughter. For those who are available to join us we hope to see you in person, bring your friends and family as everyone is welcome! 🥳🥳

Don't miss out! Sign up at the link below.

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🌙✨ Sertai PEM untuk Sambutan Hari Raya Aidilfitri dan Sesi "Support Group". Sesi kali ini akan menampilkan aktiviti istimewa menggunakan seni sebagai sumber terapeutik 🎨👨🏼‍🎨

Jom belajar bersama, berhubung dan menyokong satu sama lain, disamping menikmati juadah dan suasana Hari Raya. Ahli keluarga dan rakan turut sama dijemput!

📆 Tarikh: 26 April 2025 (Sabtu)

🕑 Masa: 2.00 - 4.30 petang

📌 Lokasi: Tingkat 6, Bilik Mesyuarat Persidangan Makmal Neurologi, Menara Selatan, Pusat Perubatan Universiti Malaya (PPUM)

🔗 Jangan lepaskan peluang! RSVP/Daftar kehadiran anda di pautan di bawah.

Venue Direction:

Google Map Link

Waze App Link

See you there!

For those who cannot join us physically, you can join us online via Zoom. 🖥️
Just be sure to prepare some paper and art materials (pens, coloured pencils, markers, crayons etc.)

Zoom Link:

https://us02web.zoom.us/j/88600101942?pwd=oakV651Y8eGg1hrM2Rm2U1tmYdb9Wt.1

Meeting ID: 886 0010 1942
Passcode: 631680

PURPLE DAY 2025 - 26 MARCH 2025

Persatuan Epilepsi Malaysia along with our volunteers ventured out to KL for Purple Day.

Today is all about raising awareness for epilepsy and breaking down myths and stigma associated with epilepsy.

Hundreds of purple ribbons were given out to the public, to shine a light on epilepsy and acknowledge our #EpilepsyFighters and #EpilepsyCarers.

Come and join the movement. It doesn't have to end today, let's keep on pushing for better quality of life for people with epilepsy.

Keep on sharing your photos, selfies, posts about epilepsy and dont forget to tag us on FB, IG and TikTok! Use the hashtags #PurpleDay #PurpleDayMalaysia #PersatuanEpilepsiMalaysia #26thMarch

For more photos, visit our Facebook Page

Terima kasih kepada semua ahli dan rakan PEM yang turut serta meraikan Hari Ungu atau #PurpleDay.

Ia tidak perlu berakhir hari ini, mari kita teruskan usaha untuk meningkatkan kualiti hidup yang lebih baik untuk penghidap epilepsi.

Teruskan berkongsi foto #PurpleDay anda, selfies dan posts tentang epilepsi dan jangan lupa tag kami di FB, IG, dan TikTok! Gunakan hashtags #PurpleDay #PurpleDayMalaysia #26thMarch #PersatuanEpilepsiMalaysia

EPILEPSY SUPPORT GROUP - 8 MARCH 2025

Hi everyone! 👋

Hope you're all doing well. We're excited to announce our upcoming March Epilepsy Support Group meeting!

✨ Join us for a special talk on "Antiseizure Medications during Ramadan". ✨

Listen to our expert speaker, Ms. Chin Suet Yin, Pharmacist from Hospital Canselor Tuanku Muhriz UKM, and ask all your questions about seizure medications and fasting 💊💊💊

This session will be a hybrid session, so for those who cannot join us physically, you can join us online via Zoom 🖥️

For those who are available to join us we hope to see you in person, bring your friends and family as everyone is welcome! 🥳🥳 😊

To register your attendance (physical and online) fill in the form below 🎉🤝

Let's connect, learn, and support each other. See you there! 😆

Venue Google Map Link: https://maps.app.goo.gl/SWx2MSgPbaSBrmPB6

RARE DISEASE DAY - 28 FEB 2025

Join Us for Hospital Kuala Lumpur’s Rare Disease Day Celebration!

Mark your calendars for 28 February 2025 as we come together for a meaningful event to raise awareness and support individuals living with rare diseases.

Open to all, this celebration will bring together healthcare professionals, patient advocacy groups, and the wider community for a day of education, advocacy, and collaboration.

Did you know? As of January last year, 13,036 children with rare diseases have been treated at Ministry of Health (MOH) facilities, as reported by Hospital Kuala Lumpur’s Department of Genetics.

What to expect:

✅ Insightful talks and discussions featuring experts and advocates

✅ Showcases by patient and community organizations

✅ Engaging activities for children, including free balloons, dancing games, and sand art

✅ Exciting giveaways for visitors who actively engage with exhibitor booths (while stocks last!)

This event is a wonderful opportunity to connect, learn, and show support for the rare disease community. Everyone is welcome—we look forward to seeing you there!

Google Maps: https://maps.app.goo.gl/KmSqbCy1Zx3Yg8n98

Come Join Us!

Click Here to Register (RSVP Required)

HARI EPILEPSI SEDUNIA HPKK UKM - 18 FEB 2025

HCTM's International Epilepsy Day is back this year!

International Epilepsy Day is coming and we are excited to invite everyone to the HCTM's International Epilepsy Day 2025 event, organised by the Medical Faculty of Hospital Canselor Tuanku Muhriz (HCTM), Universiti Kebangsaan Malaysia.

International Epilepsy Day is celebrated annually to promote awareness on epilepsy. The organisers have lined-up an informative and exciting programme to mark this special occasion! The event is free and open to caregivers, patients, healthcare professionals, epilepsy advocates and members of the public.

Here are the details:

• Date: 18 February 2025 (Tuesday)

• Time: 8.00 AM to 1.00 PM

• Venue: Lobi Utama, Hospital Tunku Ampuan Besar Tuanku Aishah Rohani,

Hospital Pakar Kanak-Kanak UKM (HPKK UKM)

Google Maps: https://maps.app.goo.gl/6yx9ZiiFY9KpaGGK9

Come Join Us!

• Open to members of the public, patients, carers, family members, healthcare professionals etc.

• Admission is Free, Registration Required

• Lunch is provided

• Register at the link below NOW!

See you there! 💜

Click Here to Register (RSVP Required)

#50MILLIONSTEPS TO INTERNATIONAL EPILEPSY DAY - 6 JAN TO 10 FEB 2025

Persatuan Epilepsi Malaysia is proud to join the epilepsy community in celebrating International Epilepsy Day 2025. This year's celebration day falls on Monday, February 10, 2025!

International Epilepsy Day is an annual awareness-raising initiative organised by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE)

The World Health Organisation (WHO) estimates that approximately 50 million people worldwide live with epilepsy (although recent studides suggest this figure may be higher) and around half will experience some form of stigma. In 2022, WHO Member States unanimously adopted the 10-year Intersectoral Global Actiona Plan on Epilkepsy and other Neurological Disorders. The goal of IGAP is to reduce the stigma, impact, and burden of neurological disorders and to improve the quality of life of people with neurological disorders, their carers and their families.

Epilepsy is given specific attention in this Plan, with global targets aimed at improving access to care and addressing the discrimination and human rights challenges impacting our community worldwide. Therefore in the weeks leading up to International Epilepsy Day we are calling on everyone to join us on our epilepsy journey, and take a step against stigma!

#50MillionSteps Campaign

Help us raise awareness of epilepsy stigma by walking 50,000,000 steps - one step for each person living with epilepsy - ahead of International Epilepsy Day, 10 February 2025.

How To Take Part

From January 6 through February 10, 2025, all you need to do is count your steps as you walk. Then record your steps on our Step Counter at https://50millionsteps.org.

We recommned logging your steps either at the end of each day or cumulatively at the close of the week so we can track the overall progress together and mark key milestones on our journey,

The grand total step will be revealed on February 10th, International Epilepsy Day.

Additional Suggested Activities:

Share your Daily/Weekly Step Count on Social Media
Share a Selfie from Your Walk
Get Creative with Your Steps - Bike, Dance, Swim - check out the conversion table below to help you count your steps in whatever activity you choose to do!

Remember to:

Spread the Word: Share your progress on social media using the hashtag #50MillionStepsAgainstStigma
Educate Others: Use this opportunity to educate others about mental health and the impact of stigma.
Celebrate Success: Celebrae your achievements and the collective impact of the campaign.

IED 2025 VIRTUAL ART EXHIBITION - SUBMISSION CLOSES 31 JAN 2025

International Bureau for Epilepsy (IBE) is once again calling for artwork submissions from the epilepsy community for the online International Epilepsy Day Virtual Art Exhibition. Closing Date for submission is on Friday, 31 January 2025.

The theme of the entry should capture an aspect of the life domains of IBE'S Global Epilepsy Needs Study (GENS). See below for more details.

Entry is open to everyone of any age, including people with epilepsy, their family members, caregiver, doctors, nurses, social workers, and other epilepsy advocates. You are allowed to submit up to 3 pieces of original artwork, and they can be:

Painting or drawing

Photomontage

Pottery

Sculpture

Beadwork/Embroidery or Needlework

The quality of the scans or photos is the responsibility of the entrant. All entries must be submitted by the closing date.

To enter click here.

Here are some thematic starting points to inspire your creative exploration. These prompts are here to inspire you, but don't feel limited by them!

1. Knowledge and Advice: Create a piece of art that challenges common misconceptions or stereotypes about epilepsy.

2. Safety and survival: Depict the importance of safe environments and seizure first aid.

3. Healthcare and wellbeing: Express the challenges of navigating the healthcare system to get an accurate diagnosis and effective treatment.

4. Learning and education: Illustrate the impact of epilepsy on the educational experience. Capture the need for understanding and support from teachers and peers.

5. Work and Income: Highlight the challenges of navigating workplace accommodations, and achieving financial security.

6. Safe transport and driving: Create a piece of art that advocates for accessible and affordable transportation options for people with epilepsy.

7. Community and household: Explore themes of isolation, connection, belonging, and the search for acceptance.

8. Mental health and wellbeing: Capture the invisible struggles of anxiety, depression, and other mental health challenges associated with epilepsy.

9. Sexual and reproductive health: Explore the impact of epilepsy on intimate relationships, body image, and family planning.

10. Achieving your goals: Represent the diverse experiences of living with epilepsy and striving for a fulfilling life.

IED 2025 - CALL FOR STORIES #MYEPILEPSYJOURNEY - SUBMISSION CLOSES 31 JAN 2025

"This #EpilepsyDay, we are asking you to share your personal experiences that shed light on the unmet needs of people with epilepsy. Your stories will bring greater context to the findings of IBE'S Global Epilepsy Needs Study (GENS) and ILAE's newly developed Clinical Care Pathway. The goal is to use these insights to ensure people with epilepsy receive not only the best possible medical care but also the support they need to thrive in all aspects of their lives..."

https://internationalepilepsyday.org/journey/

How to Share Your Story:

Choose your format: Tell your story in writing (200-300 words) or create a short video (2-3 mins max)
Select a domain: The Global Epilepsy Needs Study (GENS) highlights key areas of life impacted by epilepsy. Choose one of the domains to focus your story on.
Submit your story via this Google Form.

All entires must be submitted by the closing date of Friday, 31 January 2025. Feel free however to share your story at any point before the closing date, as we will publish sotries as they are received

For more information visit https://internationalepilepsyday.org/journey/

HAPPY NEW YEAR 2025!

We would like to take this moment to extend our heartfelt gratitude to every member, partner, supporter and friends of our community, for your support and involvement in all our efforts for the past year.

As we step into the New Year, let's celebrate our meaningful moments together and look ahead to 2025 with positivity, hope, and excitement for all it has to offer!

Happy New Year! ✨

- Persatuan Epilepsi Malaysia Team.

CHRISTMAS FUN DAY - 14 DECEMBER 2024 @ PPUM

~We're making a list & checking it twice,

we won't say if you're naughty or nice, but

no matter what, you are invited to our holiday party!~

PEM is excited to announce our upcoming

"Christmas Fun Day" Epilepsy Support Group!

You are invited to join us for an early Christmas Celebration to usher in the holiday season and celebrate the end of the year.

Let's gather good friends and meet new ones to share, support and connect with. There will be a talk on the topic of "Caring for the Caregivers", group sharing session, fun games and more!

Friends and family members are welcomed too.

So don't miss out and RSVP today.

📌 Date: 14 December 2024 (Saturday)

📌 Time: 2:00 pm - 5:00 pm

📌 Venue: 6th Floor, Neurology Lab Conference Room, Menara Selatan, Pusat Perubatan Universiti Malaya (PPUM)

Zoom link is also available for online participants. Click the RSVP button to find out more.

P.S: There will be no Support Group for the month of November, so we hope everyone can Save The Date of 14 December and join us at our Christmas Fun Day!

RSVP Here

This event has ended, click HERE for the pictures

HARI KESEDARAN PENYAKIT JARANG JUMPA - 14 NOV 2024

Salam Sejahtera,

Anda dijemput untuk menghadiri sambutan Hari Kesedaran Penyakit Jarang Jumpa 2024, yang dianjurkan oleh Unit Neurologi, Fakulti Perubatan UKM & Jabatan Perubatan UKM pada:

Tarikh: 14 November 2024, Khamis

Masa: 8.00 pagi – 3.00 petang

Tempat: Auditorium, Kompleks Pendidikan Perubatan Hospital Canselor Tuanku Muhriz, HCTM.

Daftar Sekarang di sini : https://forms.gle/4rdccRdf5XTjkvXy5

*Makanan tengahari disediakan

*Mohon daftar dengan kadar segera jika berminat untuk hadir

EPILEPSY SUPPORT GROUP - 26 OCTOBER 2024

29TH ANNUAL CHARITY WALK-JOG-WHEEL-A-THON WITH THE DISABLED - 17 NOV 2024 @DATARAN MERDEKA, KL

30 October 2024

IMPORTANT ANNOUNCEMENT!

SPASTIC FUN RUN 2024 IS MOVING BACK TO DATARAN MERDEKA, KL!

CLICK HERE TO DOWNLOAD THE RACE GUIDE

PARTICIPANTS WHO HAVE REGISTERED UNDER PEM PLEASE CHECK YOUR EMAILS FOR THE RACE KIT COLLECTION NOTICE

WALK-JOG-WHEEL-DONATE FOR A GOOD CAUSE!

It's back! With brand new name and colours, introducing the Spastic Fun Run 2024!

Welcome to the 29th Annual Charity Walk Jog Wheel A Thon organised by The Spastic Children's Association of Selangor and Federal Territory (SCAS&FT) .

PEM is joining 30 other NGOs to celebrate people with disabilities and invisible illnesses with a fun day out at Dataran Merdeka, KL!

This year, they have added a new 5KM fun run. Check out all the attractive finisher prizes and lucky draw prizes up for grab!

There will be lucky draw prizes, food trucks, carnival games, and entertainment for the whole family.

Mark your calendar for the 17 November 2024 - Spastic Fun Run 2024 is going to be a day to remember!

Deadline to register

under PEM is now extended to 10 October2024!

Spastic Fun Run Registration Form for PEM Members and Affiliates Only

If you are a registered PEM member you can click the green button above to register. Deadline for registration is 27 Sept 2024.

P:S The google form above is strictly for our members/affiliates only, do not share with the public!

Email us at epilepsymalaysia@gmail.com

or WhatsApp PEM at 012-325 8944 for more information.

If you would like to share this event with the public you can direct them to the HEYJOM platform link below:

https://www.heyjom.com/event/SpasticFunRun2024

The walkathon is also the time when we raise funds for our Society! Last year we collected almost RM9K! Read more about our fundraising efforts and the ways you can donate to PEM, further below.

Spastic Fun Run Registration Form for PEM Members and Affiliates Only

The 28th Annual Charity Walk-Jog-Wheel-A-Thon at Dataran Merdeka, attracted close to 2000 people with at least 200 people with disability participated. About 25 NGOs join hands in this event to raise funds for their own organisations. To see more photos from the day, CLICK HERE!

28th Annual Charity Walk-Jog-Wheel-A-Thon 2023 at Dataran Merdeka, Kuala Lumpur (video from SCASFT Youtube channel)

PEM participating in the 27th Walkathon Event 2022.

DONATE TO PEM'S BUILDING FUND!

The Annual Charity Walkathons have been one of the platforms that we use to collect donations on a large scale from the public. Funds raised go toward our future PEM Office/Building Fund.

In the 2019 Walkathon fundraising, we collected a total of RM3,952. In 2022 Walkathon, we raised a whopping RM11,297. Why not help us raise even more? Any amount is appreciated and every little help goes a long way. To donate please make your bank transfer to:

Bank Name: CIMB
Bank Account number: 8000507059
Account Name: Malaysian Society for Epilepsy

Please help us identify your deposit by contacting us at epilepsymalaysia@gmail.com, or WhatsApp your payment receipt to PEM at 012-325 8944. Include your name, address and phone number as well.

Use "WALKATHON DONATION" as a reference when making your bank transfer.

Why not help us raise donations and break our previous record?

Reach out to us and we will be more than happy to assist you in fundraising!

PEM participating in the Annual Charity Event over the years

BFM PODCAST "EMPATHY FOR PEOPLE WITH EPILEPSY"

Catch Prof. Dr. Lim Kheng Seang, Consultant Neurologist from University Malaya Medical Centre, and Persatuan Epilepsi Malaysia's Honorary Advisor, on BFM Radio Station Podcast with Tee Shiao Eek:

Empathy For People With Epilepsy

"Epilepsy is a complex condition, affecting people profoundly, not only in terms of the medical aspects but also the social challenges that often accompany it. Prof Dr Lim Kheng Seang, Consultant Neurologist from Universiti Malaya Medical Centre and Honorary Advisor of the Malaysian Society Of Epilepsy, sheds light on the persistent stigma surrounding epilepsy and discuss the importance of education and awareness in breaking down these barriers."

Image Credit: Shutterstock

Produced by: Tee Shiao Eek, Ruqayya Zuhair

Presented by: Tee Shiao Eek

EPILEPSY SUPPORT GROUP 21 SEP 2024 - VNS THERAPY

Hi everyone! 👋

Hope you're all doing well. We're excited to announce our upcoming epilepsy support group meeting! 🎉🤝

Join us for a special talk on "Vagal Nerve Stimulation in Malaysia," followed by a sharing session from fellow group members who have experienced VNS treatment.

📍The details are as follows:

📌 Date: 21st September 2024 (Saturday)

📌 Time: 2 pm - 4 pm

📌 Location: 6th Floor, Neurology Lab Conference Meeting Room, Menara Selatan, Universiti Malaya Medical Centre (UMMC)

Let's connect, learn, and support each other. We'll also have fun activities, delicious food, and plenty of laughter. Friends and family are welcomed as well.

If you're joining us online, please scan the QR code to access the Zoom link.

Don't miss out! Sign up here: https://forms.gle/HKVpa2tP2SmGsU599

See you there! 😆

Announcement: Caring Cluster Foundation is looking for children/young adults with epilepsy to join their special event on 13 October 2024 (Sunday) at KL Butterfly Park.

"Our Foundation for Neurodiversity and Adhd which covers Autism, Downs Syndrome, Epilepsy, Dislexia- is holding a big event on Sunday Sept 22nd 2024 in the morning at the Butterfly Park. The symbol of ADHD is the butterfly. Vip is the Minister for Women, Family and Community. Prizes and certificates of appreciation. Objective is to share how important children with a disability are and that they can be loved and gifted. Please follow the slides and enrol please. Not only will you have a Fun morning. You will be spreading how important ADHD and Neurodiversity is and helping thousands of families.

To register please see the pdf here for instructions. Register ASAP as Spaces are limited!

MEET OUR 2024-2026 EXECUTIVE COMMITTEE MEMBERS!

MEET PEM'S NEW EXECUTIVE COUNCIL MEMBERS!

Introducing our newly elected Executive Committee

for the year 2024-2026

President:

Dr. Fong Si Lei

Vice-President:

Dr. Khoo Ching Soong

Honorary Secretary:

Dr. Alina Arulsamy

Honorary Treasurer:

Ms. Andrea Siew Leh Cheng

Committee Members:

Pn. Nurul Aziah Musa

Dr. Sumitha Murugesu

Ms. Chin Suet Yin

Dr. Sumitra Subramaniam

Ms. Nurul Izati Sahib

Honorary Advisors:

Prof. Dr. Lim Kheng Seang

Mdm. Rosalind Chee Swee Lean

Dr. Sherrini Ahmad Bazir Ahmad

20242026_PEM ExCos.pdf

Click here to read more about our new council members

25 August 2024, 33rd PEM AGM Meeting Minutes can be viewed here
Financial Report 2023/2024 can be viewed here
Secretarial Report 2023/2024 can be viewed here
More photos from our AGM here

Thank you to everyone who took part in our 33rd Annual General Meeting (AGM) yesterday, in person and online. We are grateful for everyone's support and active involvement, especially during the election process that took place over a two-months period.

The committee is, as always, composed of people with epilepsy, doctors, healthcare workers, and researchers, all volunteering their time, energy and skills, with the aim to improve the quality of life of people with epilepsy via group effort. We have no doubt that the new committee will bring their expertise and experience together, to take our small Society forward, and effect more positive changes for people with epilepsy in Malaysia!

As we welcome our new Council Member, we would like to extend our warmest thanks and appreciation to the 2022/2024 ExCos, for your contribution and hard work, especially to the outgoing President Dr. Sherrini Bazir Ahmad. Dr. Sherrini has been involved with PEM since 2013, and after 11 years she is now passing on the baton to Dr. Fong Si Lei and her new team!

Thus, building on the hard work and inspiring contributions from all our previous ExCo members, we are looking ahead with excitement and enthusiasm for the term 2024-2026.

26 August 2024

CONGRATULATIONS NUR IRDINA!

Congratulations to our epilepsy fighter, Nur Irdina Batrisyia Mat Aris, and her teammates, for winning Gold and Silver Medal at the "Temasya Sukan Malaysia (SUKMA) XXI" as part of the Selangor contingent.

Irdina and her teammates from Pasukan Tenpin Bowling Selangor won Silver for a Trio event and Gold for a Group event.

Irdina, 19, is now studying in UiTM Shah Alam (Year 1) in Diploma in Sport Studies. Irdina managed to overcome a critical juncture in her epilepsy journey, where she had to undergo emergency brain surgery to stop her seizures just last year.

Well done again to all the winners!

STIGMA EPILEPSI: SATU KAJIAN GLOBAL

Salam Sejahtera,

Jika ada masa terluang (15-20 minit), anda dijemput mengambil bahagian dalam kajian/survey bertajuk Stigma Epilepsi: Satu Kajian Global.

Survey dibuka kepada semua yang:

Berumur 18 tahun ke atas
Mampu memberikan Persetujuan Maklum (Informed Consent).

Apakah tujuan kajian ini?

Projek penyelidikan ini bertujuan untuk mengetahui sejauh mana masyarakat tahu tentang epilepsi dan persepsi terhadap pengidap epilepsi. Ini termasuk mengkaji aspek stereotaip, pekerjaan pengidap epilepsi, persepsi budaya, ketakutan peribadi, dan penyisihan pesakit epilepsi dalam masyarakat global.

................................................................................................

Klik link dibawah untuk versi English/Malay/Spanish:

https://www.research.net/r/Epilepsy_Global_Survey_English (English version)

https://www.research.net/r/Stigma_Epilepsi (Malay version)

https://es.research.net/r/Epilepsy_Global_Survey_Spanish (Spanish version)

Enquiries/Pertanyaan:

Assoc. Prof. Mohd. Farooq Shaikh,

Charles Sturt University, Australia

email: mshaikh@csu.edu.au

"EMBRACING IMPERFECTIONS" - FEATURING THE LATE JANET LEE

Get your copy of "Embracing Imperfections - Women's Stories of Triumph" by Author Lian Wai Bee at pre-order price. Just scan the QR code or visit www.waibee.co.

You will find a chapter on Janet entitled Janet's Journey Through Her Mother's Story: A Tale of Love, Resilience, and Artistic Legacy.

You can read our tribute to Janet as well as a Golden Light Award entry that was awarded the "Highly Commended" distinction at the International Bureau of Epilepsy's 35th International Epilepsy Congress 2023.

33RD ANNUAL GENERAL MEETING CUM FORUM - 25 AUG 2024

Persatuan Epilepsi Malaysia (PEM)/ Malaysian Society of Epilepsy cordially invites members, patients, caregivers, and supporters to attend our upcoming Annual General Meeting (AGM) cum forum.

You can find out what we have been up to the past year, and our plans for the future. Plus, this is a chance for you to vote for the next executive council members, share any ideas and feedback, and meet other people with epilepsy and their caregivers.

Some light refreshments will be served so do RSVP early to help us plan the day. Just click the button below to fill up the form.

There is also an option to join online via Zoom. Kindly register as well at the same link. Zoom link will be emailed to registrants closer to the day of the event.

You can view our Annual Reports as linked below:

Last year's 32nd Annual General Meeting Minutes is available for download here

Annual Secretarial/Activities Report 2023-2024 is available for download here

Audited Accounts for the Year Ending 31 May 2024 is available for download here

P.S: While we understand that attending in person is not possible for everyone,

we encourage those who can, to please join us in-person 💜

We hope to see you there!

Google Maps: https://maps.app.goo.gl/VAAF6LnDn1Epi8kQ7

Any enquiries, please email us at epilepsymalaysia@gmail.com or WhatsApp PEM at 012-325 8944.

Join Us - Register Here!

VOTE FOR PEM'S NEXT EXECUTIVE COUNCIL 2024-2026 - VOTING CLOSES 23 AUG 2024

PEM invites all members to participate in electing the new Executive Council Members for the term 2024 - 2026. Members are encouraged to vote electronically from 11 August to 23 August 2024, by clicking the "Vote Now" button below.

Only registered members are allowed to vote. Please choose up to 8 candidates to become the next council members. Final round of voting will take place at the 33rd Annual General Meeting, happening on the 25 August 2024, to select the President, Vice-President, Honorary Secretary, and Honorary Treasurer.

NOMINEES FOR 2024-2026 EXECUTIVE COUNCIL MEMBERS

Get to know all the candidates below!

*Click to enlarge on desktop, or zoom in on mobile. You can also view the pdf version here.

Vote Now!

2024_PEM Election Nominees.pdf

Click to view all 10 nominees

Vote Now!

Voting closes on the 23 August 2024

If you need any assistance, please email us at epilepsymalaysia@gmail.com

IBE GOLDEN LIGHT AWARD NOMINATIONS - ENDS 8 SEPT 2024

Pictured here are our previous Golden Light Awardees - Dr. Lai Siew Tim, Joyce Moi, Lee May Yoong and Salim Baredhwan - at the Malaysian Society of Neurosciences 31st Annual Scientific Meeting in Kuching.

PEM is looking to identify suitable members to be

nominated for the Asian & Oceanian Regional Golden Light Awards 2025.

IBE Golden Light Awards are presented to young people either affected by epilepsy or have made a significant positive impact on the lives of others who have the condition.

The name of the award signifies someone who espouses the spirit of International Bureau for Epilepsy (IBE), which is to "bring epilepsy out of the shadows and into the light", and to recognise the fact that people with epilepsy should not be defined by their condition.

Candidates must have had a personal epilepsy diagnosis, or have been providing care and support to a family member with epilepsy. Candidate must be between 18 and 35 years of age on the 1st January 2025, and be a registered member of PEM.

Previous Golden Light Award Winners have been chosen from amongst epilepsy patients, epilepsy carers, and epilepsy advocates.

Do you know a young person with epilepsy, who is working to 'bring epilepsy out of the shadows and into the light', who you believe is deserving of recognition? Or do you know someone caring for a person with epilepsy who is a 'shining light' and worthy of reward? Even if that person you know is now seizure free but is still active within the community, that person can still be nominated.

To nominate a candidate, reach out to us at epilepsymalaysia@gmail.com, detailing why you feel this person deserved to be nominated. Please reach out to us ASAP as PEM is entitled to submit ONE nominee before 8 Sept 2024.

Nominees are required to submit a written article, between 500 and 800 words in length, outlining their story. Alternatively, nominees may record a 3 min video. Nominations will be judged by a selected panel of IBE representatives, and chosen awardees will receive their awards at the IBE's Epilepsy and Society Symposium during the Asian & Oceanian Epilepsy Congress (AOEC) in New Delhi from February 20th to 23rd 2025, with all expenses covered by IBE.

You can find out more about the IBE Golden Light Awards here.

Click here to read our previous Golden Light Award winners' essays.

IBE GLOBAL EPILEPSY LEADERS PROGRAMME 2024

- APPLY BY 26 AUGUST 2024

In October 2024, the International Bureau for Epilepsy (IBE) will launch the Global Epilepsy Leaders Programme.

The programme aims to:

Equip epilepsy advocates and representatives with the skills, experience, and confidence to become leaders in the epilepsy field at national, regional and global levels.
Create a powerful global epilepsy community, fostering lifelong collaboration, co-creation, friendship, solidarity, and mutual support.

IBE will select 20-25 participants who will take a series of foundational e-learning modules. This will be followed by an opportunity to take a number of specialist modules in their areas of interest. Alongside the modules there will be live virtual workshops, individual/group tasks, guest lectures, and interactive forums.

The programme is a 15-month commitment, requiring up to 10 hours work per month. This programme will be run in English.

Help us identify people who you believe have the potential to become future epilepsy leaders, either as individual advocates or PEM leaders.

IBE especially encourage applications from people with lived experience in low- and middle-income countries, and young individuals (under 40). IBE will also consider applicants without personal experience of epilepsy but with a strong leadership potential and endorsement from PEM.

Applications are to be received by Monday, August 26th 2024. Interviews will be held in mid-September.

If you would like to know more about this programme or wish to be endorsed by PEM, kindly get in touch with us at epilepsymalaysia@gmail.com

ANNOUNCEMENT - NO JULY SUPPORT GROUP ON 20 JULY 2024

There will be no support group meeting on the 20th of July and 24th of August.

The next meeting will be our AGM on the 25th of August 2024 (Sunday, 2- 4 pm).

Click Here to Register for the AGM cum Forum

To keep up to date with the latest news and updates from PEM, make sure you follow us on our social media:

Instagram

Facebook

TikTok

NOMINATIONS ARE NOW OPEN - COME BE A PART OF OUR TEAM!

We Need You!

If you have been wondering how to get more involved with out Society, now is your chance. Take advantage of one of our Society's executive council positions to help shape our strategy and plans, and act as the voice for the epilepsy community.

We are currently seeking nominees to stand for election for the 2024-2026 Executive Council. If you or someone you know is interested in serving, do read on down below, the Election Notice, to find out the election schedules, nomination rules, all the how, when and what to do during this election process.

Nominations are open from 16 July 2024 to 31 July 2024, so all PEM members have TWO WEEKS to nominate candidates they know who is deserving and willing to serve.

We hope to get your support throughout this whole process, and to remind everyone this is your chance to exercise your nominating/voting right as a member of PEM.

Any enquiries, please email us at epilepsymalaysia@gmail.com or WhatsApp PEM Admin at 012-325 8944.

Click Here to Nominate a Candidate

A message from the 2022-2024 Committee:

"We want our committee members to be from a pool of people with epilepsy, caregivers, supporters of people with epilepsy, people who are now seizure free but want to be active in the community, medical professionals, social and public healthcare workers, and other advocates. We also encourage people from outside of KL/Selangor to put their names in the running. We want the committee to be as inclusive as possible, where everyone's target is to work together for the best interest of people with epilepsy."

Click Here to Nominate a Candidate

Nomination Notice PEM 2024.pdf

Click Here to Nominate a Candidate

LET'S BOWL! EPILEPSY SUPPORT GROUP OUTING - 22 JUNE

PEM would like to thank everyone who attended the

Let's Bowl gathering last Saturday June 22nd. We had over 30 people who came down bright and early to WangsaBowl Centre at One Utama.

Our members were treated to breakfast and 2 hours of bowling. It was a wonderful time of getting to know each other while showing off our bowling skills (or lack thereof!). A few lucky bowlers even went home with gifts for their high scores. It was our first outdoor fun activity for the year and we hope to have more of such gatherings in the future.

For more pictures, check out our Captured Moments Page

Places are limited so register early to lock your spots. Remember to wear something purple for epilepsy!

Date: SATURDAY, 22 JUNE 2024

Time: 10.00 AM - 12.30 PM (GAME START TIME 10.30 AM SHARP)

Venue: WANGSA BOWL ONE UTAMA, LOT EZ401, 4TH FLOOR HIGHSTREET, ONE UTAMA SHOPPING CENTRE, BANDAR UTAMA, PJ.

Timeline:

10.00 am - 10.30 am: Breakfast, Shoe and Lane allocation

10.30 am - 12.00 pm: Bowling Time (3 to 4 pax per lane)

12.00 pm - 12.30 pm: Prize Giving Ceremony

Note that this event replaces the June Epilepsy Support Group Meeting at Neurology Unit UMMC/PPUM. Therefore the next UMMC/PPUM support group will continue on the 20th July 2024.

Join Us - Register Here!

Breakfast will be provided.
Shoe rental fee is free for the first 30 people to register.
Socks and bowling shoe are compulsory, *please remember to bring your own socks*.
If need to rent, it will be RM3 for Shoe, and RM3 to purchase a pair of socks.
Prizes will be awarded for top 3 scorers of the day!

----------------------------------------------------

Payment for non-members to be made online to:

Bank Name: CIMB
Bank Account number: 8000507059
Account Name: Malaysian Society for Epilepsy

Share your payment receipt to epilepsymalaysia@gmail.com or WhatsApp at 012-325 8944 to confirm your spots, please include your full names as well when sharing your receipt.

To become members of PEM, click this link https://form.jotform.com/201226933808455

Any enquiries, please email us at epilepsymalaysia@gmail.com or WhatsApp PEM at 012-325 8944.

--------------------------------------------------------

Registration closes 14 June 2024

FREE WELLNESS WORKSHOP/SUPPORT GROUP - 25 MAY

This event has now ended. For pictures visit our Captured Moments Page

RAYA SPECIAL SUPPORT GROUP MEETING - 20 APRIL

March UMMC Support Group Session - more photos here

Selamat Hari Raya, Maaf Zahir dan Batin!

Our next UMMC Epilepsy Support Group session will be held on the 20th of April. We will be having a Raya Special Potluck session to celebrate Hari Raya Aidilfitri, along with our usual support group activities. Join us and let's have fun and celebrate together!

Date: 20 April 2024 (Saturday)

Time: 2:00 - 4:00 pm

Venue: Conference Room, Neurology Lab, 6th Floor, Menara Selatan, UMMC.

Register your attendance ASAP, (along with the number of people coming with you), by reaching out to the Epilepsy Team UMMC

via WhatsApp at 018-362 0856, or fill out the Google Form

P.S: We are always on the lookout for volunteers or participants who would like to share their epilepsy story with the group.

Kindly fill out the Google Form, and we look forward to hearing more about your journey as an Epilepsy Warrior or Carer!

VNS THERAPY - A PATIENT'S JOURNEY

Eusuf's, 8 tahun, pernah berdepan serangan sawan lebih 100 kali sehari disebabkan jangkitan pada bahagian otak, menyebabkan dia mengalami epilepsi infantile spasm yang kemudiannya berubah kepada sindrom Lennox Gastaut Syndrome (LGS). Eusuf telah menjalani terapi VNS iaitu kaedah rawatan memasukkan alat perangsang saraf vagal, VNS, atau Vagus Nerve Stimulator. Ibu bapanya, Puan Jasriza Jasin dan Encik Idzfan Idris, berkongsi perjalanan mereka sepanjang 7 tahun yang lepas.

Sumber rujukan:

https://www.livanova.com/epilepsy-vnstherapy/en-us by LivaNova
https://www.epilepsy.com/.../vagus-nerve-stimulation-therapy by Epilepsy Foundation US
https://www.lgsfoundation.org/ by The Lennox Gastaut Syndrome Foundation
Childhood Epilepsy Syndromes by Epilepsy Society UK
Tonton "Kisah Epilepsi Eusuf" pada Hari Pesakit Epilepsi PEM yang lepas.

PEM would like to thank everyone who attended the

February Epilepsy Support Group Meetup, on the 17th of February, at University Malaya Medical Centre. Thank you as well to the UMMC Epilepsy Research Team for organising the meetup.

We had a quick epilepsy talk by Dr. Fong Si Lei, a sharing about International Epilepsy Day by Pn. Nurul Aziah, and an introduction to IBE Golden Light Award by Dr. Alina Arulsamy.

We ended the session with some group sharing, fun games and a prosperity toss to mark the Chinese New Year celebration! For more pictures, check out our Captured Moments Page

Don't forget to join us at our next Support Group Meeting,

on the 23rd of March 2024.

LITE FM EPILEPSY AWARENESS CAMPAIGN

LiteFM IED 2024 REEL.mp4

📻 Tune in to Lite. FM at between 2.55 PM and 3.05 PM on 14th of February to catch our Epilepsy Awareness radio piece !

In celebration of International Epilepsy Day this week, listen in as Dr. Alina Arulsamy speaks about epilepsy awareness in Malaysia.

Thank you to @lite.my and @astroradionews for giving us the space to speak up about Epilepsy, and to help break the stigma on Epilepsy 💪

Listen on channel Lite FM, 105.7 MHz (Klang Valley) or online at https://audio1.syok.my/lite

Dr. Alina is our Honorary Secretary and also a Lecturer and the current head of the Neuropharmacology Research Laboratory (NPRL) at JCSMHS/Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia.

<--- Click on the image to listen to the audio recording of the broadcast.

CNY & IED FEBRUARY SPECIAL SUPPORT GROUP - 17 FEB

Check our Facebook Group Page for more Photos

from the January Support Group!

This year, Chinese New Year and International Epilepsy Day are only a couple of days apart.

We want to mark both occasions with a special Support Group Session! Let's have fun and celebrate together!

Date: 17 February (Saturday)

Time: 2:00 - 4:00 pm

Venue: Conference Room, Neurology Lab, 6th Floor,

Menara Selatan, UMMC.

So join us and register your attendance ASAP, (along with the number of people coming with you), by reaching out to the Epilepsy Team UMMC

via WhatsApp at 018-362 0856.

P.S: We are always on the lookout for volunteers or participants who would like to share their epilepsy story with the group.

Kindly fill out the Google Form, and we look forward to hearing more about your journey as an Epilepsy Warrior or Carer!

HCTM HARI EPILEPSI SEDUNIA 2024 - 27 FEB

Unit Neurologi, Jabatan Perubatan & Fakulti Perubatan, Hospital Canselor Tuanku Muhriz akan mengadakan aktiviti sambutan Hari Epilepsi 2024 seperti berikut:

Tarikh: 27hb Februari 2024 (Selasa)

Masa: 08:00 pagi hingga 4:00 ptg

Tempat: Dewan Serbaguna 1 & 2, Blok Tambahan, HCTM

Ahli Persatuan Epilepsi dijemput untuk menghadiri program ini. Pendaftaran adalah percuma dan ahli persatuan perlu membuat pendaftaran dengan mengimbas QR code (Google Form) yang tertera. Makanan tengahhari akan disediakan.

Google Form

#50MillionSteps to INTERNATIONAL EPILEPSY DAY - 12 FEB

Persatuan Epilepsi Malaysia is proud to join the epilepsy community in celebrating International Epilepsy Day 2024. This year's celebration day falls on Monday, February 12, 2024!

International Epilepsy Day is a joint initiative created by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE) It is a global event celebrated annually on the second Monday of February, to promote awareness on epilepsy around the world. The day provides a platform for people with epilepsy to share their experiences and stories with a global audience.

In 2024, they want you to share your epilepsy story to mark International Epilepsy Day Read more here...

#StepAgainstStigma and #50MillionSteps on Social Media

Epilepsy affects at least 50 million people worldwide. In many cases, the condition is stigmatised. Help us raise awareness of epilepsy stigma by walking 50,000,000 steps - one step for each person living with epilepsy - ahead of International Epilepsy Day, 12th February 2024. Whether you are walking, running, or dancing, remember to put in your step counts daily or weekly, into the step counter at https://50millionsteps.org.

We love it if you can share on social media your personal activities to help create awareness and motivate others 🥰. Don't forget to tag us, and use the hashtags #StepAgainstStigma and #50MillionSteps

Share a photo of your activities and using a sheet of paper to display the hashtag #50MillionSteps and #StepAgainstStigma, with your own personal message.
Create your own selfie video to share on social media during #50MillionSteps
Post the epilepsy awareness video below to share on social media during #StepAgainstStigma.
Share Persatuan Epilepsi Malaysia's website, Youtube, videos, and social media platforms to help increase awareness of epilepsy in Malaysia.

Use the steps converter to help you count your steps!

Virtual Art Exhibition, Theme: "Milestones on My Epilepsy Journey"

International Bureau for Epilepsy (IBE) is once again calling for artwork submissions from the epilepsy community for the International Epilepsy Day Virtual Art Exhibition. This year's International Epilepsy Day will be on the 12th of February 2024.

The theme this year is "Milestones on My Epilepsy Journey".

Closing date is 1st February 2024.

To enter click here.

Entry is open to people with epilepsy, their family members, caregiver, doctors, nurses and other epilepsy advocates. You are allowed to submit up to 3 pieces, and they can be:

Painting or drawing

Photomontage

Pottery

Sculpture

Beadwork/Embroidery or Needlework

UMMC EPILEPSY SUPPORT GROUP 2024 - MONTHLY SESSION

University Malaya Medical Centre (UMMC) Epilepsy Team will be hosting a monthly Epilepsy Support Group starting this January 13th! We invite all epilepsy patients and caregivers for a meetup once a month, to find support and get information about epilepsy.

To join, please WhatsApp 018-3620856 (Epilepsy Team UMMC). You can also register to be updated every month by filling up the form below (or scan the QR code in the poster).

Our sessions are conducted in English and Bahasa.
You do not have to be a patient at UMMC in order to attend our Support Group.
You do not have to pay an entry fee.
Bring your family members along and let's get connected!

P.S: Interested in sharing your epilepsy journey at the Support Group Session? Let us know by filing in the registration form below!

HAPPY INTERNATIONAL EPILEPSY DAY 2023!

INTERNATIONAL EPILEPSY DAY 2023 STIGMA.mp4

ILAE - Asia & Oceania and the Malaysian Society of Epilepsy share powerful and heartwarming message to #StampOutStigma. Join the campaign to raise epilepsy awareness this 13th February 2023!

HARI EPILEPSI SEDUNIA, HKL - 27 FEB 2023

PEM together with Dr. Suganthi S Chinnasami (Chairman of Organizing Committee, Neurologist HKL), Prof. Dato Dr. Raymond Azman Ali (Presiden of Epilepsy Council Malaysia, Professor in Neurology UITM), Datin Paduka Dr. Rohana bt Johan (Director of HKL), Dr. Sapiah Sapuan (Ketua Perkhidmatan Neurologi Malaysia), and Dr. Shanthi Viswanathan (Head of Neurology HKL).

"Hari Epilepsi Sedunia 2023 - Peringkat Hospital Kuala Lumpur & Hospital Kluster Lembah Klang"

The celebration of International Epilepsy Day 2023 continued with an event organised by the Department of Neurology, Hospital Kuala Lumpur (HKL).

27th Feb 2023 saw the celebration themed "Together We Fight Against Stigma" officiated by Dato Dr. Asmayani Khalib, Deputy Director General of Health (Medicine) Ministry of Health.

Various interesting activities were held such as essay writing and drawing competition, as well as an exhibition in collaboration with the Department of Neurosurgery and Persatuan Epilepsi Malaysia.

Click here for more pictures!

Updated 29 Feb 2023

HCTM UKM INTERNATIONAL EPILEPSY DAY - 21 FEB 2023

HCTM's International Epilepsy Day 2023 is back with a physical event this year!

International Epilepsy Day is coming and we are excited to invite everyone to the HCTM's International Epilepsy Day 2023 event, organised by the Neurology Department of Hospital Canselor Tuanku Muhriz (HCTM), Universiti Kebangsaan Malaysia.

Here are the details:

• Date: 21 February 2023 (Tuesday)

• Time: 9.00 AM to 12.30 PM

• Venue: Dewan Serbaguna, Level 9, Hospital Canselor Tuanku Muhriz UKM

Come Join Us!

• Participation is open to the public

• Admission is Free, Registration Required

• Register at the link below NOW!

See you there! 💜

Click Here to Register (RSVP Required)

The event has now ended.

Visit out Captured Moments Page for pictures from the day!