WELCOME tO PEM
Upcoming & Recent events
UPCOMING & RECENT EVENTS
RAYA SPECIAL SUPPORT GROUP MEETING - 20 APRIL
March UMMC Support Group Session - more photos here
Selamat Hari Raya, Maaf Zahir dan Batin!
Our next UMMC Epilepsy Support Group session will be held on the 20th of April. We will be having a Raya Special Potluck session to celebrate Hari Raya Aidilfitri, along with our usual support group activities. Join us and let's have fun and celebrate together!
Date: 20 April 2024 (Saturday)
Time: 2:00 - 4:00 pm
Venue: Conference Room, Neurology Lab, 6th Floor, Menara Selatan, UMMC.
Register your attendance ASAP, (along with the number of people coming with you), by reaching out to the Epilepsy Team UMMC
via WhatsApp at 018-362 0856, or fill out the Google Form
P.S: We are always on the lookout for volunteers or participants who would like to share their epilepsy story with the group.
Kindly fill out the Google Form, and we look forward to hearing more about your journey as an Epilepsy Warrior or Carer!
VNS THERAPY - A PATIENT'S JOURNEY
Eusuf's, 8 tahun, pernah berdepan serangan sawan lebih 100 kali sehari disebabkan jangkitan pada bahagian otak, menyebabkan dia mengalami epilepsi infantile spasm yang kemudiannya berubah kepada sindrom Lennox Gastaut Syndrome (LGS). Eusuf telah menjalani terapi VNS iaitu kaedah rawatan memasukkan alat perangsang saraf vagal, VNS, atau Vagus Nerve Stimulator. Ibu bapanya, Puan Jasriza Jasin dan Encik Idzfan Idris, berkongsi perjalanan mereka sepanjang 7 tahun yang lepas.
Sumber rujukan:
https://www.livanova.com/epilepsy-vnstherapy/en-us by LivaNova
https://www.epilepsy.com/.../vagus-nerve-stimulation-therapy by Epilepsy Foundation US
https://www.lgsfoundation.org/ by The Lennox Gastaut Syndrome Foundation
Childhood Epilepsy Syndromes by Epilepsy Society UK
Tonton "Kisah Epilepsi Eusuf" pada Hari Pesakit Epilepsi PEM yang lepas.
PEM would like to thank everyone who attended the
February Epilepsy Support Group Meetup, on the 17th of February, at University Malaya Medical Centre. Thank you as well to the UMMC Epilepsy Research Team for organising the meetup.
We had a quick epilepsy talk by Dr. Fong Si Lei, a sharing about International Epilepsy Day by Pn. Nurul Aziah, and an introduction to IBE Golden Light Award by Dr. Alina Arulsamy.
We ended the session with some group sharing, fun games and a prosperity toss to mark the Chinese New Year celebration! For more pictures, check out our Captured Moments Page
Don't forget to join us at our next Support Group Meeting,
LITE FM EPILEPSY AWARENESS CAMPAIGN
LiteFM IED 2024 REEL.mp4📻 Tune in to Lite. FM at between 2.55 PM and 3.05 PM on 14th of February to catch our Epilepsy Awareness radio piece !
In celebration of International Epilepsy Day this week, listen in as Dr. Alina Arulsamy speaks about epilepsy awareness in Malaysia.
Thank you to @lite.my and @astroradionews for giving us the space to speak up about Epilepsy, and to help break the stigma on Epilepsy 💪
Listen on channel Lite FM, 105.7 MHz (Klang Valley) or online at https://audio1.syok.my/lite
Dr. Alina is our Honorary Secretary and also a Lecturer and the current head of the Neuropharmacology Research Laboratory (NPRL) at JCSMHS/Jeffrey Cheah School of Medicine and Health Sciences, Monash University Malaysia.
<--- Click on the image to listen to the audio recording of the broadcast.
CNY & IED FEBRUARY SPECIAL SUPPORT GROUP - 17 FEB
Check our Facebook Group Page for more Photos
from the January Support Group!
This year, Chinese New Year and International Epilepsy Day are only a couple of days apart.
We want to mark both occasions with a special Support Group Session! Let's have fun and celebrate together!
Date: 17 February (Saturday)
Time: 2:00 - 4:00 pm
Venue: Conference Room, Neurology Lab, 6th Floor,
Menara Selatan, UMMC.
So join us and register your attendance ASAP, (along with the number of people coming with you), by reaching out to the Epilepsy Team UMMC
via WhatsApp at 018-362 0856.
P.S: We are always on the lookout for volunteers or participants who would like to share their epilepsy story with the group.
Kindly fill out the Google Form, and we look forward to hearing more about your journey as an Epilepsy Warrior or Carer!
HCTM HARI EPILEPSI SEDUNIA 2024 - 27 FEB
Unit Neurologi, Jabatan Perubatan & Fakulti Perubatan, Hospital Canselor Tuanku Muhriz akan mengadakan aktiviti sambutan Hari Epilepsi 2024 seperti berikut:
Tarikh: 27hb Februari 2024 (Selasa)
Masa: 08:00 pagi hingga 4:00 ptg
Tempat: Dewan Serbaguna 1 & 2, Blok Tambahan, HCTM
Ahli Persatuan Epilepsi dijemput untuk menghadiri program ini. Pendaftaran adalah percuma dan ahli persatuan perlu membuat pendaftaran dengan mengimbas QR code (Google Form) yang tertera. Makanan tengahhari akan disediakan.
#50MillionSteps to INTERNATIONAL EPILEPSY DAY - 12 FEB
Persatuan Epilepsi Malaysia is proud to join the epilepsy community in celebrating International Epilepsy Day 2024. This year's celebration day falls on Monday, February 12, 2024!
International Epilepsy Day is a joint initiative created by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE) It is a global event celebrated annually on the second Monday of February, to promote awareness on epilepsy around the world. The day provides a platform for people with epilepsy to share their experiences and stories with a global audience.
In 2024, they want you to share your epilepsy story to mark International Epilepsy Day Read more here...
#StepAgainstStigma and #50MillionSteps on Social Media
Epilepsy affects at least 50 million people worldwide. In many cases, the condition is stigmatised. Help us raise awareness of epilepsy stigma by walking 50,000,000 steps - one step for each person living with epilepsy - ahead of International Epilepsy Day, 12th February 2024. Whether you are walking, running, or dancing, remember to put in your step counts daily or weekly, into the step counter at https://50millionsteps.org.
We love it if you can share on social media your personal activities to help create awareness and motivate others 🥰. Don't forget to tag us, and use the hashtags #StepAgainstStigma and #50MillionSteps
Share a photo of your activities and using a sheet of paper to display the hashtag #50MillionSteps and #StepAgainstStigma, with your own personal message.
Create your own selfie video to share on social media during #50MillionSteps
Post the epilepsy awareness video below to share on social media during #StepAgainstStigma.
Share Persatuan Epilepsi Malaysia's website, Youtube, videos, and social media platforms to help increase awareness of epilepsy in Malaysia.
Virtual Art Exhibition, Theme: "Milestones on My Epilepsy Journey"
International Bureau for Epilepsy (IBE) is once again calling for artwork submissions from the epilepsy community for the International Epilepsy Day Virtual Art Exhibition. This year's International Epilepsy Day will be on the 12th of February 2024.
The theme this year is "Milestones on My Epilepsy Journey".
Closing date is 1st February 2024.
Entry is open to people with epilepsy, their family members, caregiver, doctors, nurses and other epilepsy advocates. You are allowed to submit up to 3 pieces, and they can be:
Painting or drawing
Photomontage
Pottery
Sculpture
Beadwork/Embroidery or Needlework
UMMC EPILEPSY SUPPORT GROUP 2024 - MONTHLY SESSION
University Malaya Medical Centre (UMMC) Epilepsy Team will be hosting a monthly Epilepsy Support Group starting this January 13th! We invite all epilepsy patients and caregivers for a meetup once a month, to find support and get information about epilepsy.
To join, please WhatsApp 018-3620856 (Epilepsy Team UMMC). You can also register to be updated every month by filling up the form below (or scan the QR code in the poster).
Our sessions are conducted in English and Bahasa.
You do not have to be a patient at UMMC in order to attend our Support Group.
You do not have to pay an entry fee.
Bring your family members along and let's get connected!
P.S: Interested in sharing your epilepsy journey at the Support Group Session? Let us know by filing in the registration form below!
YOU WILL NEVER WALK ALONE!
Finally, the 28th Annual Walk-Jog-Wheel-A-Thon
with the disabled, took place on the 19th of November at Dataran Merdeka! We were joined by YB Senator Tuan Isaiah Jacob, athletes of Malaysia Paralympic, Ms. Cosmo World participants and many other supporters.
Around 1500 participants gathered as early as 6AM to take part in the longest running charity walk in Malaysia. 30 NGOs including PEM, and their supporters walked/jog/wheel the 2km Fun Walk with the disabled.
PEM had around 50 participants on the day and one of us were lucky enough to score a lucky draw prize! Not only that, one of the committee members, Ms. Suet Yin took home the 4th place prize for the 7KM/Open Women's Category, which made the event all the more memorable!
We hope those who joined had a wonderful time, and we would like to take this chance to thank everyone who walked, ran, wheel, jogged, fundraised, and helped spread the awareness about epilepsy and the walkathon. We could not have done it without our members and supporters.
Thank you again to The Spastic Children's Association of
Selangor and Federal Territory (SCAS&FT), for organising such a wonderful event!
To see more photos from the day, CLICK HERE!
28TH ANNUAL CHARITY WALK-JOG-WHEEL-A-THON WITH THE DISABLED - 19 NOV 2023 @ DATARAN MERDEKA
WALK-JOG-WHEEL-DONATE FOR A GOOD CAUSE!
Come and join the Malaysia Book of
Records Longest Running Charity Walk/Jogathon Event!
The Spastic Children's Association
of Selangor and Federal Territory (SCAS&FT)
is organising their 28th Annual Walk-Jog-Wheel-A-Thon with the disabled:
Date: 19 November 2023 (Sunday)
Time: 6.30 AM
Venue: Dataran Merdeka, Kuala Lumpur
Course: 2 km / 7 km
PEM and 30 other welfare-based
organisations will join them at Dataran Merdeka to celebrate people with disabilities, spread awareness, and have fun! There will be lucky draw prizes, food trucks, carnival games, and entertainment for the whole family.
Early Bird Prices are Extended until
25 August 2023. Register Now!
Come Join Us!
PEM has been apart of this annual event since 2013, and we hope to gather even more supporters to join us this time.
If you are a registered PEM member and/or OKU card holder, you can contact us directly to register under PEM.
Email us at epilepsymalaysia@gmail.com
or WhatsApp PEM at 012-325 8944 for more information.
Updated 13 August 2023
Watch the 27th Annual Charity Walk-Jog-Wheel-A-Thon video recap by the SCASFT
DONATE TO PEM'S BUILDING FUND
The Annual Charity Walkathons have been one of the platforms that we use to collect donations on a large scale from the public. Funds raised go toward our future PEM Office/Building Fund.
In the 2019 Walkathon fundraising, we collected a total of RM3,952. In 2022 Walkathon, we raised a whopping RM11,297. Why not help us raise even more? Any amount is appreciated and every little help goes a long way. To donate please make your bank transfer to:
Bank Name: CIMB
Bank Account number: 8000507059
Account Name: Malaysian Society for Epilepsy
Please help us identify your deposit by contacting us at epilepsymalaysia@gmail.com, or WhatsApp your payment receipt to PEM at 012-325 8944. Include your name, address and phone number as well.
Use "WALKATHON DONATION" as a reference when making your bank transfer.
Why not help us raise donations and break our previous record?
Reach out to us and we will be more than happy to assist you in fundraising!
Updated 13 August 2023
IBE GOLDEN LIGHT AWARD @ MSN ANNUAL SCIENTIFIC MEETING 2023
The Malaysian Society of Neurosciences (MSN) hosted its 31st Annual Scientific Meeting in Kuching last month. "Advancing Science Towards Better Epilepsy Care" was the theme of the Meeting and in that spirit, MSN graciously invited our present and past IBE Golden Light Award winners to be honoured at the Opening Ceremony!
Prof. Dato. Dr. Raymond Azman Ali, Chairman of the Epilepsy Council Malaysia, presented the awardess with their trophies and certificates.
Congratulations to all our awardees and we hope their achievements can be an inspiration to all of us. Visit our Award Winners Page to read all about the winners and their epilepsy journeys.
Thank you to MSN, Epilepsy Council Malaysia, and their sponsors, for including our award winners in their ceremony. PEM is delighted to be able to honour our winners at a physical event as due to the recent pandemic, our awardees had only been presented during online conferences.
Clockwise from top left: Mr. Salim Baredhwan, Dr. Lai Siew Tim, Mdm. Joyce Moi (mother of the late Ms. Janet Lee), and Ms. Lee May Yoong.
Dear Friends,
Do you know a young person with epilepsy, who is working to 'bring epilepsy out of the shadows and into the light', who you believe is deserving of recognition? Or do you know someone caring for a person with epilepsy who is a 'shining light' and worthy of reward? Even if that person you know is now seizure free but is still active within the community, that person can still be nominated.
To nominate a candidate, reach out to us at epilepsymalaysia@gmail.com, detailing why you feel this person is deserving of the award. Candidate must be between 18 and 35 years of age on the 1st January 2024.
You can find out more about the IBE Golden Light Awards here.
BE A PART OF THE COMMITTEE! CALL FOR NEXT YEAR'S NOMINATIONS
Join Us as a Volunteer or Committee Member!
We would like to call on members who want to help PEM by volunteering their time, energy, and resources to get in touch with the council. PEM is always looking for more volunteers and council members to join us. Now that we are back to doing physical events, we need more help run the programs! We seek anyone who feel they can give their time and energy to help us in our mission to educate, share, support and speak up about epilepsy.
Be A Part of the Committee!
Every two years, PEM will hold an election to select the President, Vice President, Honorary Secretary, Honorary Treasurer, and at least 4 Council Members. PEM was built to serve the epilepsy community, and act as a voice for the epilepsy community. If you are a patient, caregiver, or epilepsy advocate, join us as we work together to improve the quality of life of epileptic patients in Malaysia.
The next council election will be held in July/Aug 2024. Nominations will take place around May/June of 2024. Anyone who is interested in becoming an ExCo member, we welcome you to make your interest known. Or if you want to nominate someone, please remember to ask for their permission first, and nominate them when the time comes.
But You Don't Have to Wait Next Year. Join Us Now!
How to reach us?
Email us at epilepsymalaysia@gmail.com
WhatsApp us at 012-325 8944
Or attend any our future events/support group meeting. Follow us on social media to get the latest news on our activities.
NEW PEM T-SHIRT DESIGN ON SALE NOW
"My Brain Powers Differently" T-shirt (2023)
It has been more than 10 years since PEM launched their "Seize The Day" Official T-shirt. We wanted our members to be involved in making of the new T-shirt, thus we decided to hold a T-shirt design competition in last year. The winner of the competition was Ms. Gomathi Rajan.
Based on her design, we created the new Official T-shirt for Persatuan Epilepsi Malaysia - "My Brain Powers Differently" T-shirt - launched at our 2023 AGM recently. On the back is the powerful message of "Never Underestimate Someone's Battle - Epilepsy Warrior."
By purchasing our T-shirts, you will be contributing to the Society's funding, as well as help create awareness of epilepsy everytime you wear it!
So go ahead and get your T-shirts now!
Original design by Ms. Gomathi Rajan
CHANGES IN PEM'S COMMITTEE LINE-UP
PEM's updated ExCo line-up for the remainder of 2022-2024 term.
Persatuan Epilepsi Malaysia would like to announce some changes in the line-up of our 2022-2024 Executive Council Committee. We bid goodbye to our Honorary Secretary, Ms. Frisha Hossain, and our committee member, Dr. Mohd Farooq. They have both contributed a lot to the Society and we wish them all the best in their future endeavours.
Dr. Alina Arulsamy is now the new Honorary Secretary of PEM. Dr. Alina was previously serving as a committee member of PEM. She will be serving as the Secretary for the remainder of the 2022-2024 term.
Our next committee election will be in July/August of 2024.
NEW COMMITTEE MEMBER
PEM welcomes new committee member Ms Chin Suet Yin. Ms Suet Yin was nominated by Ms. Lydia Gan, to help serve our Society for the term 2023-2024.
She is a Clinical Pharmacist serving surgical wards at UKMMC, and has been a member of PEM for a couple of years. Welcome aboard Suet Yin!
The previous committee line-up as selected in July 2022 AGM Election.
PEM 32ND AGM ANNUAL REPORTS 2022/2023
More pics here
Persatuan Epilepsi Malaysia would like to thank everyone who attended our 32nd AGM of 2023 on the 26th of August. We are grateful for everyone's support and we look forward to having more in-person events/hybrid events in the new season.
Thank you as well to Ms. Diane for sponsoring the venue that day, at her event space Awegallery, Taman Paramount. The two-hour meeting saw our ExCo presenting all the year's activities and reports, as well as some exciting news/plans to benefit our epilepsy community in the future. We ended the day with a 45-minute Q&A session.
Download our 2022-2023 Annual Reports below:
REMEMBERING JANET LEE (1989 - 2023)
This year in May, PEM nominated the late Ms. Janet Lee for the IBE International Golden Light Award, to be presented at the 35th International Epilepsy Congress in Dublin in September.
In July, we learned of Janet's passing with heavy hearts.
Not long after that, we received news that Janet was awarded the "Highly Commended" distinction by the IBE judging panel.
Congratulations to Joyce and Janet for this recognition. We will remember Janet as a talented and inspirational epilepsy warrior who never gave up on living her life to the fullest. May she rest in peace.
"We were so impressed by her great talent and your dedication and commitment to showcasing - together - what can be possible for people with epilepsy like Janet.
I am attaching the certificate of commendation that we had prepared for Janet to recognise her outstanding achievements as part of our Golden Light Awards."
- Donna Walsh, CEO of International Bureau for Epilepsy (IBE)
Read more about Janet in our "In Loving Memory" tribute page
You can find her IBE Golden Light award essay submission, written by Mdm Joyce Moi (Janet's mother), here.
"I AM HERE, SEE ME FOR ME" TIKTOK CONTEST WINNERS!
Congratulations to all the winners!
Persatuan Epilepsi Malaysia launched their TikTok page by having a TikTok video competition with the theme "I Am Here, See Me For Me." The aim of this competition is to spread awareness and break the stigma on epilepsy via creative, insightful TikTok videos.
1st Place: Muhammad Salleh Othman
2nd Place: Noratira bt Azmi
3rd Place: Yap Chin Yee
Honorable Mention: Nurul Izati Sahib
Top three winners received cash prizes, judged by the number of likes on their videos.
1st Place: RM250
2nd Place: RM150
3rd Place: RM100
Check out all the videos below,
and remember to follow PEM on TikTok!
ZOOM LINK FOR PEM'S 32ND AGM CUM FORUM
Reminder of our upcoming AGM cum Forum,
this Saturday at Awegallery Taman Paramount, PJ.
All members, patients, caregivers and supporters are invited to attend. Some light refreshments will be served so please register your attendance by filling up the Google Form, "Register Here" button below.
Google Maps Location : https://goo.gl/maps/ax7NTx53muEtyMPHA
Nearest LRT Station:
Taman Paramount LRT (4-minute walk to venue)
Parking:
You can park at the Star Grocer parking lot opposite the venue, or at any available parking bays.
ZOOM LINK AVAILABLE!
There is also an option to join online via Zoom, for those who are unable to attend in person. You also need to register your Zoom attendance in the same link. Click "Register Here" for the form and the Zoom link.
P.S: While we understand that attending in person is not possible for everyone, we encourage those who can, to please join us in-person 💜
Updated 21 August 2023
NOTICE OF ANNUAL GENERAL MEETING 2023 - 26 AUG 2023
32nd AGM cum Forum coming soon!
PEM cordially invites members, patients, caregivers and supporters to attend our upcoming Annual General Meeting (AGM) cum Forum, happening at Awegallery, Taman Paramount Petaling Jaya.
Join us and and find out what we have been up to and our plans for the future. Plus, this is a chance for you to share ideas and feedback, and your chance to meet and mingle with other members of PEM.
Some light refreshments will be served so do RSVP early to help us plan the day. Just click the "Register Here" button below and fill up the registration form.
We look forward to seeing everyone there!
Google Maps Location : https://goo.gl/maps/ax7NTx53muEtyMPHA
PEM would like to thank everyone who attended the
July Epilepsy Support Group Meetup, on the 29th of July, at Hospital Kuala Lumpur. Thank you to everyone who came. We appreciate your attendance and support 🤗.
We had a quick epilepsy talk by Dr. Sumitha (PEM Exco, Pediatric Neurologist), followed by group sharing session, some fun quiz questions, and we ended the day with a teh tarik+kuih session 😁
✨ Special thank you to the team from Jabatan Neurologi Hospital Kuala Lumpur, (Dr Suganthi, Dr Jaya, Ms. Haslinda, Ms. Zaiton, and other support staff), for supporting our efforts and making the event a successfull one 💜🤝💪
For more pictures, check out our Captured Moments Page
EPILEPSY SUPPORT GROUP @ HKL - 29 JULY 2023
Free Admissions, RSVP Now!
PEM invites all epilepsy fighters and family members to our July Support Group Session, happening at Hospital Kuala Lumpur (HKL).
Join us and connect with others in an informal and relaxed environment. Whether you are someone recently diagnosed with epilepsy, a parent to a child with seizure disorder, or an adult living with epilepsy, we want to hear from you and get to know you!
Participants can look forward to meeting others with epilepsy, share their experiences, and hear from PEM. Seats are limited so register early to reserve your spots!
Thank you to Jabatan Neurologi Hospital Kuala Lumpur for collaborating and supporting our Epilepsy Support Group Session!
See you there!
PEM would like to thank everyone who attended the
June Epilepsy Support Group Meetup, on the 24th of June, at
Subang Jaya Medical Centre (SJMC).
Thank you as well to the Dr. Tan Seng Beng for the Mindfulness Tips.
Last but not least, many thanks and kudos to the team from Subang Jaya Medical Centre for their brilliant work and support for epilepsy!
For more pictures, check out our Captured Moments Page
EPILEPSY SUPPORT GROUP @ SJMC - 24 JUNE 2023
Free Admissions, RSVP Now!
PEM invites all epilepsy fighters and family members to our June Support Group Session, happening at Subang Jaya Medical Centre (SJMC).
Join us and connect with others in an informal and relaxed environment. Whether you are someone recently diagnosed with epilepsy, a parent to a child with seizure disorder, or an adult living with epilepsy, we want to hear from you and get to know you!
So don't be shy! Participants can look forward to meeting others with epilepsy, share their experiences, and hear from PEM and guest speakers. We will also be serving lunch/refreshments, so RSVP/register your attendance now to reserve your spots!
Thank you to Subang Jaya Medical Centre (SJMC) for hosting and sponsoring our June Support Group!
We look forward to having our Epilepsy Support Group Sessions either once a month/once every two months at different locations to reach out to more people. Follow us on Instagram, Facebook and TikTok to get the latest updates. To find out more kindly email us at epilepsymalaysia@gmail.com or WhatsApp 012-325 8944 (PEM Admin).
JOIN OUR TIKTOK CONTEST AND WIN CASH PRIZES! ENDS 19 JULY 2023
GET CREATIVE AGAINST STIGMA!
Yes we are now on TikTok! Like and Follow us @epilepsysocietymalaysia
Persatuan Epilepsi Malaysia invites you to participate in our TikTok video contest. The aim of this competition is to spread awareness and break the stigma on epilepsy via creative, insightful TikTok videos.
We invite all PEM members to join in this contest which will run till the 19th of July 2023. Get creative and post videos expressing epilepsy, how it relates to you and your environment, or anything you like to showcase the world that has to do with your epilepsy. Just follow the theme and rules of submission!
The style and tone of your videos are up to you, as long as you keep it respectful and does not violate any TikTok regulations. You can use Bahasa and/or English in your video. Keep it short between 30 seconds to 1 minute, and only 1 video submission is allowed per TikTok profile, so make it count!
The theme of the contest is I Am Here, See Me For Me!
Top three winners will receive cash prizes, judged by the number of likes on their videos*.
1st Place: RM250
2nd Place: RM150
3rd Place: RM100
To enter, read the how-to outlined above, and GET READY to join in the TikTok fun!
*Terms and Conditions Apply
HAPPY #PURPLEDAY 2023
PEM would like to thank everyone who attended the #PurpleDay2023 event last 18th March at Subang Jaya Medical Centre (SJMC).
Thank you as well to the Speakers for their
expert sharing, and Patients/Carers for their hearftfelt stories.
Last but not least, many thanks and kudos to the team from Subang Jaya Medical Centre for their brilliant work and support for epilepsy awareness!
For more pictures, check out our Captured Moments Page
PURPLE DAY 2023 - 18 MARCH, SJMC
PURPLE DAY @ SJMC, 18 MARCH 2023
Subang Jaya Medical Centre (SJMC), are joining forces with PEM to put purple (and epilepsy awareness) at the forefront through educational talks by their experienced Physicians and Neurologists.
Whether you are someone living with epilepsy, a caregiver or fierce advocate, all are welcome to be a part of our Purple Day event!
Participants can look forward to some fun activities for kids and adults, and even a magic show!
Free Admission, RSVP required
To RSVP: Scan the QR Code in the flyer or
click the "Register Here" button below!
Updated 6 March 2023
HAPPY INTERNATIONAL EPILEPSY DAY 2023!
INTERNATIONAL EPILEPSY DAY 2023 STIGMA.mp4HARI EPILEPSI SEDUNIA, HKL - 27 FEB 2023
"Hari Epilepsi Sedunia 2023 - Peringkat Hospital Kuala Lumpur & Hospital Kluster Lembah Klang"
The celebration of International Epilepsy Day 2023 continued with an event organised by the Department of Neurology, Hospital Kuala Lumpur (HKL).
27th Feb 2023 saw the celebration themed "Together We Fight Against Stigma" officiated by Dato Dr. Asmayani Khalib, Deputy Director General of Health (Medicine) Ministry of Health.
Various interesting activities were held such as essay writing and drawing competition, as well as an exhibition in collaboration with the Department of Neurosurgery and Persatuan Epilepsi Malaysia.
HCTM UKM INTERNATIONAL EPILEPSY DAY - 21 FEB 2023
HCTM's International Epilepsy Day 2023 is back with a physical event this year!
International Epilepsy Day is coming and we are excited to invite everyone to the HCTM's International Epilepsy Day 2023 event, organised by the Neurology Department of Hospital Canselor Tuanku Muhriz (HCTM), Universiti Kebangsaan Malaysia.
International Epilepsy Day is celebrated annually to promote awareness on epilepsy. The organisers have lined-up an informative and exciting programme to mark this special occasion! The event is free and open to caregivers, patients, healthcare professionals, epilepsy advocates and members of the public.
Here are the details:
• Date: 21 February 2023 (Tuesday)
• Time: 9.00 AM to 12.30 PM
• Venue: Dewan Serbaguna, Level 9, Hospital Canselor Tuanku Muhriz UKM
Come Join Us!
• Participation is open to the public
• Admission is Free, Registration Required
• Register at the link below NOW!
See you there! 💜
#STAMPOUTSTIGMA THIS 13 FEBRUARY 2023!
Persatuan Epilepsi Malaysia is proud to join the epilepsy community in celebrating International Epilepsy Day 2023.
This year's celebration day falls on February 13, 2023!
International Epilepsy Day is a joint initiative created by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE) It is a global event celebrated annually on the second Monday of February, to promote awareness on epilepsy around the world. The day provides a platform for people with epilepsy to share their experiences and stories with a global audience.
In 2023, International Epilepsy Day will focus on stigma people living with epilepsy face around the world. Read more here...
#EpilepsyDay on Social Media
Join the worldwide effort to increase epilepsy awareness this year on Monday, February 13, 2023. Use the hashtags #EpilepsyDay on Twitter, Instagram, Facebook, Tik Tok, and other social media sites to get #epilepsyday trending!
Share a photo on the day using a sheet of paper to display the hashtag #EpilepsyDay and #EpilepsyIs with your own personal message. Download and print International Epilepsy Day signs to help you take part on the day!
Create your own selfie video to share on social media during #EpilepsyDay.
Post the epilepsy awareness video below to share on social media during #EpilepsyDay.
Share Persatuan Epilepsi Malaysia's website, Youtube, videos, and social media platforms to help increase awareness of epilepsy in Malaysia.
Tag @IntEpilepsyDay and @epilepsysocietymalaysia on Instagram and @MalaysianSocietyOfEpilepsy on Facebook.
Find facts and statistics to share about epilepsy here.
20221125 SJMC - Seizure First Aid.mp4SEIZURE FIRST AID VIDEOS (BM/ENG/MAND)
Someone having a seizure attack in front of you? Don't panic.
Watch the video and follow the simple steps outlined by Dr. Sherrini Bazir Ahmad, President of Persatuan Epilepsi Malaysia.
Thank you to Subang Jaya Medical Centre for making this video, in collaboration with Epilepsy Council from Malaysian Society of Neuroscience, and Persatuan Epilepsi Malaysia.
You can now use this video to educate others on seizure first aid. Help share this with your friends, family members, school and work colleagues.
Find the Mandarin and Bahasa versions HERE!
YOU NEVER WALK ALONE!
Finally, the 27th Annual Walk-Jog-Wheel-A-Thon with the disabled, took place last Sunday on the 8th of January at Dataran Merdeka! Around 1580 participants gathered as early as 6AM to take part in the 7km run or 2km Fun Walk.
30 NGOs including PEM, and their supporters walked/jog/wheel the 2km Fun Walk with the disabled. We were joined by the Minister of Women, Family and Community Development, YB Dato' Sri Nancy Shukri and YB Senator Ras Adiba Radzi.
Thank you to The Spastic Children's Association of Selangor and Federal Territory (SCAS&FT), for organising such a wonderful event!
PEM has been apart of this annual event since 2013, and we hope to gather even more supporters for the upcoming 28th Annual Charity Walk-Jog-Wheel-A-Thon happening in November 2023!
Watch this space!
To see more photos from the day, CLICK HERE!
Updated 10 January 2023