Going To Be Bad News
Unorthodox Alternative Therapies
Marketed To Treat Lyme Disease &
Steere's Recommended Treatment for
Post-Lyme Disease Syndrome
Lucy Barnes
The information below is only a small sampling of the destruction that is predicted to come with the new set of IDSA/AAN/ACR Lyme disease guidelines. If you and everyone you know doesn't get on the Lyme Activism Bandwagon NOW, you are jeopardizing your own future and the health and well-being of the next generation. Please watch for activism announcements from the Lyme Disease Association and/or LymeDisease.org and immediately take all actions suggested. Thank you.
Article- Unorthodox Alternative Therapies Marketed to Treat Lyme Disease
Published April 2015 by Clinical Infectious Diseases- the IDSA's Journal
Authors- Lantos, Shapiro, Auwaerter, Baker, Halperin, McStupid & Wormser
They don't want anyone to consider any of these therapies- NOT recommended- which, if in the new guidelines, denies you the chance to have a doctor order them and still remain within the "standard of care", and/or have insurance coverage for them. It appears they prefer to let folks suffer with NO reasonable or viable options.
AND....
Article- What Constitutes Appropriate Treatment of Post Lyme Disease Symptoms and Other Pain & Fatigue Syndromes
Published April 2015 by Clinical Infectious Diseases- the IDSA's Journal
Authors- Allen C. Steere and Shelia L. Arvikar
Published at the same time as the above article, in the same IDSA journal, is Steere's recommended treatment for those who remain ill after standard IDSA treatment for Lyme disease- notice the exclusion of antibiotics. Mind you, he has no studies to support these recommendations. Notice also Steere chose to use fibromyalgia as a treatment model, and not late stage syphilis (a spirochetal disease) or TB or another difficult to cure chronic infectious disease. Wormser, Nadelman, Nowokowski, et al, however, published several months ago (paraphrasing here) only 1% of Lyme patients studied developed fibromyalgia- less than the general population. See additional info below.
Quote...
AND for arthritis, noting it is "antibiotic-refractory" arthritis that Steere claims antibiotics won't help.
Sources
Clin Infect Dis. 2015 Apr 6. pii: civ186. [Epub ahead of print]
Unorthodox Alternative Therapies Marketed to Treat Lyme Disease.
Lantos PM1, Shapiro ED2, Auwaerter PG3, Baker PJ4, Halperin JJ5, McSweegan E6, Wormser GP7.
1Divisions of Pediatric Infectious Diseases and General Internal Medicine, Duke University Medical Center, Durham, North Carolina.
2Departments of Pediatrics, Epidemiology of Microbial Diseases and Investigative Medicine, Yale University Schools of Medicine and of Public Health and Graduate School of Arts and Sciences, New Haven, Connecticut.
3Division of Infectious Diseases, Fisher Center for Environmental Infectious Diseases, Johns Hopkins University School of Medicine, Baltimore, Maryland.
4American Lyme Disease Foundation, Lyme, Connecticut.
5Department of Neurosciences, Overlook Medical Center, Atlantic Health System, Summit, New Jersey Departments of Neurology and Medicine, Icahn School of Medicine at Mount Sinai, New York, New York.
6Global Virus Network, Baltimore, Maryland.
7Division of Infectious Diseases, New York Medical College, Valhalla, New York.
LINK TO ABSTRACT HERE (Must pay to see full article)- http://www.ncbi.nlm.nih.gov/pubmed/?term=Unorthodox+Alternative+Therapies+Marketed+to+Treat+Lyme+Disease
AND.... See Steere's Comments at this link....
Clin Infect Dis. 2015 Apr 6. pii: civ187. [Epub ahead of print]
What Constitutes Appropriate Treatment of Post-Lyme Disease Symptoms and Other Pain and Fatigue Syndromes?
Steere AC1, Arvikar SL1.
1Division of Rheumatology, Allergy and Immunology, Center for Immunology and Inflammatory Diseases, Massachusetts General Hospital, Harvard Medical School, Boston.
LINK TO ABSTRACT HERE (Must pay to see full article)- http://www.ncbi.nlm.nih.gov/pubmed/?term=What+Constitutes+Appropriate+Treatment+of+Post+Lyme+Disease+Symptoms+and+Other+Pain+%26+Fatigue+Syndromes
AND....
Arthritis Rheumatol. 2014 Dec 2. doi: 10.1002/art.38972. [Epub ahead of print]
Long-Term Assessment of Fibromyalgia in Patients with Culture-Confirmed Lyme Disease.
Wormser GP1, Weitzner E, McKenna D, Nadelman RB, Scavarda C, Farber S, Prakash P, Ash J, Nowakowski J.
1Divisions of Infectious Diseases, New York Medical College, Valhalla, NY, 10595.
Abstract
Background: Fibromyalgia occurs in 2% to 8% of the general population. One of the triggers may be Lyme disease. Methods: Patients with culture-confirmed Lyme disease who originally presented with erythema migrans have been evaluated annually in a prospective study to determine their long-term outcome.
In 2011-2013, subjects were evaluated for fibromyalgia by interview and tender point examination. Results: 100 subjects were assessed, 52% of whom were male; the mean age was 64.9 years (median 64 years, range 42-86 years). The mean duration of follow-up was 15.4 years (median 16 years, range 11-20 years).
At least twenty-four (24%) subjects had experienced a second episode of erythema migrans before the evaluation for fibromyalgia.
One patient* (1%, 95% C.I.: 0.025 to 5.4%) met criteria for fibromyalgia. The symptoms consistent with fibromyalgia began more than 19 years after Lyme disease was diagnosed.
Conclusions: Fibromyalgia was observed in only 1% of 100 patients with culture-confirmed early Lyme disease, a frequency consistent with that found for the general population. This article is protected by copyright. All rights reserved. Copyright © 2014 American College of Rheumatology.
LINK HERE TO ABSTRACT- MUST PAY TO READ ACTUAL ARTICLE http://www.ncbi.nlm.nih.gov/pubmed/25470117
* If you will remember- out of 114 patients with death certificates listing Lyme disease as the cause of death, with no review of any medical records and no examination of the bodies, only ONE was determined to actually have Lyme as the cause of death. It appears IDSA/CDC is rolling with a theme that only "one" person here and there ever have any negative affects from Lyme disease, therefore no one deserves treatment or other considerations.
Clin Infect Dis. 2011 Feb 1;52(3):364-7. doi: 10.1093/cid/ciq157. Epub 2010 Dec 28.
A review of death certificates listing Lyme disease as a cause of death in the United States.
Kugeler KJ1, Griffith KS, Gould LH, Kochanek K, Delorey MJ, Biggerstaff BJ, Mead PS.
Abstract
Lyme disease was listed as an underlying or multiple cause of death on 114 death records during 1999-2003. Upon review, only 1 record was consistent with clinical manifestations of Lyme disease. This analysis indicates that Lyme disease is rare as a cause of death in the United States.
PMID:
21189272
[PubMed - indexed for MEDLINE]
The above is only a small sampling of the destruction that is predicted to come with the new set of IDSA/AAN/ACR Lyme disease guidelines. If you and everyone you know doesn't get on the Lyme Activism Bandwagon NOW, you are jeopardizing your own future and the health and well-being of the next generation.
Please watch for activism announcements from the Lyme Disease Association and/or LymeDisease.org and immediately take all actions suggested. Thank you.