*Note: These contents are assembled from several web sites, some of whom are now defunct. Although I have the documents in my records, I've provided the current links to available items. Copies of material from defunct sites, as well as my works, are provided below. Copyright belongs to the authors and/or publishers of the material according to the information contained in the documents. An internet search of the titles or of content from the material should be made for referencing purposes. The owner of this web site only claims authorship where indicated within the material.
Abuse, Neglect And Loss Of Dignity In The Institutional Care Of Older People 2009 — analysis of the community survey data linked with Health Survey for England data
Addressing the challenges and opportunities of ageing in Canada 2007 — This report focuses on new and significant federal actions and those that build on existing programs around seniors and population ageing, recognizing that this provides only a partial spectrum of the vast network of programs and services available to seniors.
Adults With Intellectual and Developmental Disabilities: A Unique Population 2013 — Older adults with intellectual and developmental disabilities can present clinicians with unique challenges related to appropriate assessment and treatment. Providers need to develop the skills and sensitivity necessary to effectively treat these patients.
Advancing Years, Different Challenges: Wave 2 IDS-TILDA Findings on the ageing of people with an Intellectual Disability 2014 — The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDSTILDA) is a large-scale, nationally representative study of people aged 40 years and over with an intellectual disability (ID) in Ireland. It is the most comprehensive study on ageing in persons with intellectual disability ever carried out in Ireland
Ageing and health status in adults with intellectual disabilities: Results of the European POMONA II study 2011 — Some evidence of health disparities was found for older people with ID, particularly in terms of underdiagnosed or inadequately managed preventable health conditions.
Ageing and Intellectual Disability – Issues for Disability Service Provision — A person with an intellectual disability who is experiencing ageing related issues often has needs that fall outside the expertise of the disability sector staff, while the staff within aged care services often have limited or no experience in dealing with people with intellectual disabilities.
Aging And Developmental Disabilities Canadian — resource links
Aging and Disability | Understanding Changes — Useful resources and links listed: (e.g., Intellectual Disabilities and Alzheimer's Disease,Supporting People With Dementia, Ontario Partnership on Aging and Developmental Disabilities)
AGING WELL WITH AUTISM (55 and Older) 2013 — Summarized here are the reports of experts assembled to share their knowledge about and experience with developing living arrangements, and providing health care services, for older individuals in the hopes that these examples might spark new ideas for the growing population of adults with autism and their families.
Aging with a Developmental Disability: Strategies for Support 2014 — (A Workshop for front line workers held Wednesday February 26, 2014) Workers from developmental services, community senior services and long term care are challenged with providing support to an increasing population of individuals aging with developmental disabilities.
Aging with Developmental Disabilities: Women's Health Issues 2010 — More research is needed to understand all the specific health issues of aging women with developmental disabilities and the ways to support a healthier life-style.
Aging with Developmental Disabilities - Washington State 2008 — The overall goal of the Task Force and its work groups was to discuss the major issues impacting people aging with DD and theirfamilies with the objective to recommend changes in public policy
Aging with Intellectual/Developmental Disability (I/DD) 2011 — ppt presentation at St. Amant conference in Winnipeg, Manitoba
A Guide to Advance Care Planning — provides valuable information for seniors on making choices about personal care including health care (treatment and services), food, living arrangements and housing, clothing, hygiene and safety.
basics of alzheimer’s disease What it is and what you can do 2012 — Basics of Alzheimer’s Disease is intended for anyone who would like to learn more about this disease and related dementias.
Bridging Aging and Developmental Disabilities Service Networks: Challenges and Best Practices 2012 — identifies policy and service delivery issues pertaining to older adults with developmental disabilities and their families and recommends opportunities to enhance collaboration among the aging, disability, and long-term care networks.
Bridging Aging and Developmental Disabilities Service Networks 2012 — identifies policy and service delivery issues pertaining to older adults with developmental disabilities and their families and recommends opportunities to enhance collaboration among the aging, disability, and long-term care networks.
Bridging the Aging and Developmental Disabilities Service Networks: Challenges and Best Practices 2012 — The purpose of the “Bridging the Aging and Developmental Disabilities Service Networks” initiative is to identify policy and service delivery issues pertaining to older adults with developmental disabilities and their families and to recommend opportunities to enhance collaboration among the aging, disability, and long-term care networks.
Caregiver Abuse Screen (CASE) 2010 — The Caregiver Abuse Screen (CASE) is a screening measure for detecting abuse of seniors.
Developmental Disabilities Division: Aging Resources — links to various good resources
Feature Issue on Aging and People with Intellectual and Developmental Disabilities 2010 — “What can be done today to support people with intellectual and developmental disabilities who are aging?” That’s the focus of this issue of Impact. The articles in these pages give a variety of responses to the question.
Feature Issue on Aging and People with Intellectual and Developmental Disabilities 2010 — Offers fresh, practical, and challenging perspectives on supporting aging individuals with disabilities and their families.
Guidelines for Structuring Community Care and Supports for People with Intellectual Disabilities Affected by Dementia 2013 — The guidelines are drawn from the research literature as well as clinical experiences and demonstrated best practices.
Guidelines for Structuring Community Care and Supports for People with Intellectual Disabilities Affected by Dementia 2013 — To assist families and organizations in their planning for extended care that accompanies the diagnosis of dementia, the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) in the United States adopted a set of practice guidelines covering the period from when suspicions are aroused to when care ends with eventual death.
Healthy Ageing - Adults with Intellectual Disabilities Ageing & Social Policy 2000 — The World Health Organization, in collaboration with the International Association for the Scientific Study of Intellectual Disabilities (IASSID) and Inclusion International, has developed a summative paper on the health needs of people with intellectual disabilities, together with recommendations for effective intervention to improve the health status of such older adults.
Healthy Ageing - Adults with Intellectual Disabilities Biobehavioural Issues 2000
Healthy Ageing - Adults with Intellectual Disabilities Biobehavioural Issues 2000 — To understand and appreciate the social, cultural environmental and developmental context of behaviors and their functions in older people with intellectual disabilities
Healthy Ageing - Adults with Intellectual Disabilities Physical Health Issues 2000 — An international perspective on healthy ageing for persons with intellectual disabilities must acknowledge that the available literature largely reflects the experiences of clinicians and researchers in industrialized countries.
Healthy Ageing - Adults with Intellectual Disabilities Summative Report 2000 — Awareness of the increasing number of ageing persons with intellectual disabilities led the World Health Organization (WHO) and two international organizations concerned with scientific inquiry and advocacy, the International Association for the Scientific Study of Intellectual Disabilities and Inclusion International, to examine the general health status of adults with intellectual disabilities, identify the conditions that support their longevity and promote healthy ageing, and propose health and social inclusion promotion activities that would universally foster sound health and improve quality of life.
Healthy Ageing - Adults with Intellectual Disabilities Women's Health and Related Issues 2000 — this report is designed to explore factors related to well-being and quality of life for women, to examine and define sex-linked differences in their life experiences and opportunities and to define their distinctive vulnerabilities -including research on health status and access to health care.
Indicators of Abuse (IOA) checklist 2010 — The Indicators of Abuse (IOA) checklist signals mistreatment of seniors. for Elder Abuse Web Site see http://www.ndgelderabuse-abusenverslesaines.ca/en/index.html
Individuals Who Are Aging with Intellectual and Developmental Disabilities and DADS Services 2012 — This report is a preliminary effort to examine and describe the scope of the population of older individuals with intellectual and developmental disabilities (IDD) in Texas, their needs, and issues related to service delivery.
Intellectual Disability & Ageing — The Victorian Department of Human Services (DHS) saw merit in the staff health manual and the training manual having a broader audience. In 2012, they held discussions with the researchers and agreed to fund the development of a website on intellectual disability and ageing, which would include the materials used in the research project, together with additional information, exercises and links to further resources for improving support for ageing people with an intellectual disability.
Meeting the Needs of Aging Persons with Developmental Disabilities and Their Families PRESENTER’S MANUAL — training manual
Mental Health Issues of Older People with Intellectual Disabilities (Dr. L. Thorpe, SK) 2003 — The number of people with intellectual disabilities (ID) who live into old age is growing, which presents physical and mental health-care challenges.
Older Adults with Intellectual Disability Living in a Community Residential Service 2003 — Little is known about the living circumstances of older adults with intellectual disability in residential services. The purpose of this study was to describe the living circumstances of 72 adults in one community residential service.
People with Intellectual and Developmental Disabilities Growing Old: An Overview 2010 — With their growing life expectancy the numbers of older adults with I/DD continues to expand, and community agencies and families now face the challenge of providing supports as these adults experience age-related changes.
Quality care in dementia: Helping staff care for people in distress 2007 — a training programme to equip staff with the necessary skills to work with patients with dementia who display challenging behaviour.
Rehabilitation Research and Training Center on Aging with Intellectual and Developmental Disabilities — The RRTCDD has the following goals for people with I/DD: increase understanding of health status, health access, and health behaviors; improve health and function through health promotion interventions; and, improve health care access through integrated care practices. This website is designed to provide information on the latest research, model programs, and policy issues pertaining to this population.
Seniors on the margins Aging with a developmental disability 2004 — SENIORS ON THE MARGINS... is a series of policy papers presenting NACA opinions and recommendations on the needs and concerns of seniors who are marginalized, or at risk of marginalisation in Canadian society.
Sensory impairments and health concerns related to the degree of intellectual disability in people with Down syndrome 2006 — People with Down syndrome are prone to a number of health problems, including congenital heart defect, visual impairment, hearing loss, autoimmune diseases, epilepsy, early-onset Alzheimer's disease and intellectual disability.
Staff responses to age-related health changes in people with an intellectual disability in group homes 2010 — The purpose of this study was to explore how supervisors in group homes caring for people with intellectual disability responded to the development of age-related health changes in their residents.
Successful Aging of Women with Intellectual Disabilities: The Toronto Experience 2003 — Older women with intellectual disabilities are a growing population, whose perspective has been traditionally ignored in research. This study aims to identify some key issues in aging for this group from the perspective of the women themselves.
Supporting People with Intellectual Disabilities who Challenge or who are Ageing 2011 — A rapid review of literature relating to support for people with intellectualdisabilities and their family carers when the person has: behaviours thatchallenge and/or mental health problems; or they are advancing in age
SUPPORTS AND SERVICES FOR OLDER ADULTS WITH DEVELOPMENTAL DISABILITIES STUDY Final Report 2012 — a study to review the services and supports required for older adults with developmental disabilities, including those with dementia.
SUPPORTS AND SERVICES FOR OLDER ADULTS WITH DEVELOPMENTAL DISABILITIES STUDY – Supplementary Reports 2012 — These reports include: Aging with a Developmental Disability: A Health Perspective; Projections of the Population of Older Persons; Assessing the Health of Older Adults with Developmental Disabilities; Family and Guardian Focus Groups Summary Report; Individual Financial Support for Older Adults with Developmental Disabilities; Guidelines for Using the Supports Intensity Scale (SIS with Older Adults with Developmental Disabilities; and, Six Critical Factors Organizations Need to Think about when Providing Services and Supports to Older Individuals with Developmental Disabilities.
The Bright Side: A Positive View on the Economics of Aging 2002 — Analyses of the impacts of population aging in Canada have typically emphasized the costs of aging while neglecting some important, positive impacts. This omission of likely positive factors leads to overly pessimistic scenarios about the economic and fiscal consequences of aging in Canada, even though some data indicate that population aging can have economic benefits as well as costs.
THE DIAGNOSIS OF DEMENTIA IN PERSONS WITH MENTAL RETARDATION: VALIDATING METHODS OF ASSESSMENT 2004 dissertation — The usual assessment instruments for the diagnosis of dementia are often difficult to use when evaluating the disorder among individuals with mental retardation. This study investigates whether a modified method based on Visser et al. (1997) can identify a dementing process.
Transitions for Older Adults with Intellectual and Other Developmental Disabilities (I/DD) and People with I/DD Living with Aging Caregivers 2000 — A large number of individuals with I/DD now live with their parents, siblings, or other adults, including direct support workers (DSW).
UK Study of Abuse and Neglect of Older People: Qualitative Findings 2007 — This qualitative study forms part of a wider programme of research involving a literature review, focus groups with service-providers and stakeholders, a national survey of over 2000 older people and a feasibility study for researching elder mistreatment in care homes.
UNITED STATES SENATE Special Committee on Aging Hearing Titled: Abuse of Our Elders: How We Can Stop It 2007 — A comprehensive, reliable system of criminal record background checks for employees and applicants for employment at care giving facilities would provide the information needed to help prevent many cases of abuse, neglect and exploitation.