*Note: These contents are assembled from several web sites, some of whom are now defunct. Although I have the documents in my records, I've provided the current links to available items. Copies of material from defunct sites, as well as my works, are provided below. Copyright belongs to the authors and/or publishers of the material according to the information contained in the documents. An internet search of the titles or of content from the material should be made for referencing purposes. The owner of this web site only claims authorship where indicated within the material.
A Guidebook for Individualized Service Plan Meetings 2010 — The ISP is a personal plan for helping people with disabilities. The ISP meeting is a time to develop and/or review this plan. It is the responsibility of the Medicaid Service Coordinator to facilitate ISP meetings. The purpose of this training is to give information and enhance skills that will help service coordinators in this very important role.
An Evaluation of the Colorado Systems Change Project 2002 — In 1997, Colorado Developmental Disabilities Services (DDS)/Department of Human Services (DHS) launched the “Systems Change Project.” By way of this initiative, significant structural modifications were made in Colorado’s community service delivery system for people with developmental disabilities.
Are Funding Sources Elevators to Independence? Explaining Costs, Rates, and Independence with Characteristics of Geography, Individuals, Services/Supports, and Funding Sources in Three Western States. 2000 — A database was assembled from data collected on all people served by the Developmental Disabilities divisions of Nebraska, South Dakota, and Wyoming, including State institutions, and state-funded programs (n=5,928). Information included provider expenditures (costs) associated with each individual, allocations made by individual reimbursement rates, services/supports received, funding sources, and individual characteristics as measured by the Inventory for Client and Agency Planning.
Are We Having Fun Yet? Overcoming Social Barriers and Getting the Outcomes and Activities You Want With Existing Funding Sources 2000 — The changes in what people with developmental disabilities wanted and got for living and daytime setings in South Dakota and Wyoming during 1988 were compared to what they wanted and received in 2000.
Californians for Olmstead, a project of the California Foundation for Independent Living Centers (CFILC) 2011 — The purpose of this final report and blueprint for future action is to take stock of recent events and to recommend future strategies to advance Olmstead implementation and options for community-living that will allow people with disabilities to live successfully in their homes and communities instead of being forced to live in nursing homes and other institutional settings.
Council of State Governments A Survey of State Disability Policy, 2010 — a comprehensive survey of state policy related to disabilities, featuring nearly 149 different entries from 31 states, in an effort to help spread awareness of these programs from across the nation. Challenges and issues facing disability are numerous. State and federal governments continue to struggle developing policies surrounding housing, employment, and independent living.
Developing Individual Budgets and Reimbursement Levels Using the Supports Intensity Scale 2009 — ppt presentation
Discussion of Key Resource Allocation Policy Issues in Louisiana 2008 — to explore policy issues related to resource allocation for people with developmental disabilities in Louisiana. Two particular issues are explored. The first pertains to the relative merits of prospective versus retrospective individual budgeting. The second refers to the range of service settings or categories to which individual budget models can be applied.
Displaced, disabled, and in need of our care 2008 — Out of sight, out of mind. There is no better way to characterize the plight of the hundreds of thousands of refugees worldwide - most of them women, children, and the elderly - whose suffering is compounded by physical, sensory, or mental disabilities. There are few groups more neglected and marginalized.
Do Medicaid Home and Community Based Service Waivers Save Money? 2011 — This article estimates the potential savings to the Medicaid program of using 1915c Home and Community Based Services (HCBS) waivers rather than institutional care.
Family Support Services in the United States 2006 — provides an overview of family support services in the states based on data gathered for the State of the States in Developmental Disabilities Project, a longitudinal study of public financial and programmatic trends in intellectual or developmental disabilities (ID/DD)
Foreign Policy and Disability: Legislative Strategies and Civil Rights Protections To Ensure Inclusion of People with Disabilities 2003 — Individuals with disabilities are subject to a broad pattern of discrimination and segregation in almost every part of the world. In most countries, people with disabilities and their families are socially stigmatized, politically marginalized, and economically disadvantaged.
Gauging How Well Colorado Supports Its Citizens with Developmental Disabilities 2003 — As part of its evaluation of the Colorado Systems Change Project, HSRI was asked to make recommendations regarding a comprehensive set of performance measures for developmental disabilities services.
Gauging the Use of HCBS Support Waivers for People with Intellectual and Developmental Disabilities: Profiles of State Supports Waivers 2006 — Home and community-based waivers authorized under 1915(c) of the Social Security Act allow states to waive certain federal requirements to enable them to provide home and community-based service (HCBS) alternatives to institutional services
Guiding Principles for Successfully Enrolling People with Disabilities in Managed Care Plans — Designing and operating a managed care system for children and adults with chronic disabilities poses unique challenges given the highly diverse, wide-ranging health and long-term support needs of the population.
Home and Community-Based Waivers as a New Source of Employment Funding: Changes in Attitude, Changes in Latitude 2000 — In the summer of 1997, Congress allowed the quarter of a million individuals with developmental disabilities on our nation’s Home and Community-Based Service Waivers the opportunity to work... This paper describes the before and after results for 854 Wyoming adults who were influenced by this enlightened governmental policy.
Implementing Olmstead in California 2011 — In 1999, the U.S. Supreme Court ruled in the case of Olmstead v. L.C., finding that the unnecessary institutionalization of people with disabilities is a violation of the Americans with Disabilities Act of 1990 (ADA).
Indiana Medicaid Home and Community-Based Services Waiver Programs A GUIDE FOR CONSUMERS 2007 — This booklet describes Indiana Medicaid Home and Community-Based Services Waiver Programs as well as other home and community services that help adults and children with disabilities (of any age) receive the supports they need to live, work and recreate in the community.
INSTITUTIONAL AND COMMUNITY-BASED LONG-TERM CARE: A COMPARATIVE ESTIMATE OF PUBLIC COSTS 2005 — As long-term care policy makers struggle with competing challenges including state budget deficits and pressures to expand home and community-based services (HCBS), there is a pressing need for information on the comparative cost of Medicaid HCBS and institutional care.
ISSUES IN DEVELOPMENTAL DISABILITIES SELF-DETERMINATION PART II 2000 — support and services to people with disabilities in Wisconsin
Making Person-Centered Supports a Reality in Wyoming: The Equality State’s Experience 2001 — One of four state case studies evaluating exemplary states' implementation of person-centered practices.
Managed Care: Doing It Right Applying the Independent Living Philosophy A Toolkit for Legislators, Advocates, and Consumers 2012 — The National Advisory Board toolkit is designed for three audiences: legislators, consumers and advocates. This resource addresses a suggested approach to managed care that embraces the independent living philosophy and covers a wide range of information regarding legislation, methodology and policy recommendations on how individuals on Medicaid and Medicare may live healthier and more independent lives.
Measure for Measure: person-centered quality assurance 2000 — In the summer of 2000, representatives of nine national developmental disabilities organizations joined together to launch theDevelopmental Disabilities Quality Coalition (DDQC). The purpose of the DDQC is to prospectively address the public issues surrounding the quality and availability of community services for persons with developmental disabilities.
Medicaid-Financed Home and Community-Based Services Research / A Synthesis 2007 — To inform policy discussions at the federal and state levels, the American Health Care Association (AHCA) commissioned Avalere Health to review and report on the most recent HCBS cost-effectiveness and quality research.
Medicaid Home and Community-Based Services: The First 20 Years 2003 — This Policy Research Brief reports on the implementation of the Medicaid Home and Community-Based Services “waiver” program during its first 20 years, from Fiscal Year 1982 through Fiscal Year 2002.
Montana: Resources on Community Living Supports and Services — on Community Inclusion | Housing | Transportation
National Council on Disability — NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities. (extensive resources available -DHB)
Ohio Developmental Disability Profile (ODDP)
Olmstead: reclaiming institutionalized lives National Council on Disability 2003 — In this report, the National Council on Disability (NCD) assesses the nation's response to the United States Supreme Court's decision in Olmstead v. L.C., 527 U.S. 581 (1999) that the unjustified institutionalization of people with disabilities is a form of discrimination.
Olmstead Advisory Committee - California — In 2005, California established the Olmstead Advisory Committee to ensure the involvement of people with disabilities and other system stakeholders in making recommendations on actions to improve California's long term care system.
Oregon Intellectual and Developmental Disabilities -services
Person-Centered Supports for People with Developmental Disabilities in the State of Connecticut 2002 — This case study is part of a larger project called Reinventing Quality, sponsored by the Administration on Developmental Disabilities and conducted by the National Association of State Directors of Developmental Disabilities Services (NASDDDS) in collaboration with the University of Minnesota’s Institute for Community Integration and the Human Services Research Institute (HSRI).
Person-Centered Supports for People with Developmental Disabilities in the Sunflower State 2002 — This case study is part of a larger project called Reinventing Quality, sponsored by the Administration on Developmental Disabilities and conducted by the National Association of State Directors of Developmental Disabilities Services (NASDDDS) in collaboration with the University of Minnesota’s Institute for Community Integration and the Human Services Research Institute (HSRI).
Person-Centered Supports — How Do States Make Them Work? 2002 — The fundamental aim of the Reinventing Quality project is to support the efforts of state and local stakeholders of all types to accelerate the more widespread adoption of person-centered principles and practices in the operation of public systems serving people with developmental disabilities.
Policies and Resources Related to Waiting Lists of Persons with Mental Retardation and Related Developmental Disabilities 2000 — A document reporting the results and findings from a national survey of state directors of developmental disabilities services regarding the nature of state programs and responses for persons with mental retardation and developmental disabilities (MR/DD) waiting for services.
Quality Services Resources Guide - Vermont-2007 — The Quality Management Plan describes how the State of Vermont will review these programs so they continue to improve.
Resource Allocation and the Supports Intensity Scale™ : Four Papers on Issues and Approaches 2008 — One of the most complex issues faced by all stakeholders within the intellectual disabilities/developmental disabilities system is resource allocation.
Supported Living Project: A Final Report Submitted to Idaho Council on Developmental Disabilities 2002 — An emerging, national and international trend in developmental services is the shift towards a supports paradigm. Embodied in this new set of rules for providing services are the principles of individual choice and self-determination.
Survey of Adults Receiving Developmental Services in Vermont (Spring 2014) — webpage contains other related resources from Vermont
tate of the States in Developmental Disabilities Project — longitudinal data on intellectual and developmental disabilities for fiscal years 1977-2011
The Lasting Good Over the Expedient Gain Prepared by the California Coalition for People with Developmental Disabilities 2003 — An emerging trend in California (as well as nationally and internationally), is the shift towards a supports paradigm in services for individuals with developmental disabilities. Firmly embodied in this new ‘set of rules’ for providing services are the principles of individual choice and self-determination.
The State of the States in Family Caregiver Support: A 50-State Study 2004 — This national study is the fi rst to examine publicly funded caregiver support programs throughout all 50 states. It focuses on caregiver support provided through the Older Americans Act’s National Family Caregiver Support Program (NFCSP), Aged/Disabled Medicaid waiver programs, and statefunded programs.
TOWARD A SUSTAINABLE ENTITLEMENT FOR THE DEVELOPMENTAL SERVICES SYSTEM: A REGIONAL CENTER PERSPECTIVE 2003 — The first section of the paper provides a brief description of regional centers and the people they serve. This is followed by a history of the Lanterman Act and the regional center system... in Part III exploring the changes in the service system
Understanding Medicaid Home and Community Services: A Primer 2000 — To explain how the Medicaid program can be used to expand access to a broad range of home and community services and supports for people of all ages with disabilities, and to promote consumer satisfaction and control
Vermont's Strategic Plan To Create Comprehensive Employment Opportunities For People With Disabilities 2006 — A 50% increase in the employment rate and average earnings of people with disabilities are the ultimate goals of the “Vermont Works” program. Seven goals and associated strategic initiatives are presented in this plan to achieve those outcomes.
Wisconsin State Site Visit 2003 — Since the 1970s, Wisconsin has been a leader in embracing the principles of person-centered supports as the fundamental basis of publicly funded services for individuals with disabilities. Wisconsin pioneered “community options” as an alternative to institutional services. The Wisconsin “experiment” in supporting people in their communities served as a foundation for the Medicaid Home and Community-Based Services (HCBS) waiver program that now enables all states to offer diverse and innovative services and supports for people with developmental and other disabilities and concurrently sharply cut back on the use of institutions.