*Note: These contents are assembled from several web sites, some of whom are now defunct. Although I have the documents in my records, I've provided the current links to available items. Copies of material from defunct sites, as well as my works, are provided below. Copyright belongs to the authors and/or publishers of the material according to the information contained in the documents. An internet search of the titles or of content from the material should be made for referencing purposes. The owner of this web site only claims authorship where indicated within the material.
A Chronology of State Medicine, Public Health, Welfare and Related Services in Britain 1066-1999 — Published in 2000: There is no other publication that provides the comprehensive, detailed and critical account of development and legislation relevant to public health, allowing us to see the decisions that have influenced what we have today. (Perhaps this is a way to learn from history. -DHB)
ADULTS WITH SEVERE LEARNING DISABILITIES AND THE MOST SEVERE CHALLENGING BEHAVIOUR IN WALES -1998 — The absence of evidence with which to address the uncertainties and range of views about optimum service design for people with severe challenging behaviour calls for evaluation of existing practice. The aims of the current research were to conduct a total population study of people with severe learning disabilities and the most severely challenging behaviour in Wales and evaluate the quality, effectiveness and costs of distinctive service inputs. In this Highlight, the characteristics of the identified research participants and their service provision are described. Highlight 13 describes the results of a comparison of service quality and associated costs based on the service classification reported here.
A guide to receiving direct payments from your local council A route to independent living 2009 — Every local council must now offer people who need help to stay in their own home money to buy services or equipment, instead of arranging services for them. These are called direct payments.
A parent’s guide to direct payments 2006 — The power to make direct payments to people with parental responsibility for disabled children and disabled 16 and 17 year olds was created by the Carers and Disabled Children Act 2000. Because direct payments come under the Children Act 1989 direct payments should safeguard and promote the welfare of children in the same way as direct services.
A Practical Guide for Disabled People — The guide gives information about services from Government departments and agencies, the NHS and local government, and voluntary organisations. (Note dated publication from about 2004.)
Business Disability Forum — Business Disability Forum is a not-for-profit member organisation that makes it easier and more rewarding to do business with and employ disabled people.
Caring for our future: progress report on funding reform 2012 — n the White Paper, we have set out a new vision for a modernised care and support system which will empower communities, families and individuals to plan and prepare for their future, to reach out to those around them who may need support, and to choose the care and support that best enables them to meet their goals and aspirations. This will result in higher standards of care, tailored to the needs of individuals and their carers.
Counting the Costs 2014 — Research into the finances of more than 3,500 families with disabled children across the UK (Summary)
Current Publications on Learning Disabilities — From: The Improving Health and Lives Learning Disabilities Observatory is here to keep watch on: 1. the health of people with learning disabilities 2. the health care they receive
Development of services for people with learning disabilities or mental illness in England 2010 — information with respect to the development of health and social services for persons with mental illness and for persons with learning disabilities
Direct Payments: A National Survey of Direct Payments Policy and Practice 2007 — Three research teams collaborated to carry out a UK-wide survey of direct payments. One team came from the Personal Social Services Research Unit at the London School of Economics; another from the Universities of Leeds, Edinburgh and Glasgow; and a third team from the Health and Social Care Advisory Service, the Foundation for People with Learning Disabilities at the Mental Health Foundation and the Health Services Management Centre at the University of Birmingham. This report summarises the findings.
Disabled children and their families A guide for donors and funders 2006 — This report is a guide for donors and funders interested in supporting disabled children and their families. It contains the information required to understand the issues and need in this area. It addresses all donors, from private individuals, who may be new to the subject, to grant-makers with extensive experience.
Experiences and Expectations of Disabled People A research report for the Office for Disability Issues 2008 — In September 2006, the Office for Disability Issues (ODI) commissioned a programme of research to explore the lives of disabled people in Britain today. The research aims to update and develop previous research conducted by the National Centre for Social Research in 2001 (Grewal et al., 2002), and by NOP in 1996, addressing information gaps on how disabled people’s lives have changed and providing detail on their current experiences.
Fairer Charging Policies for Home Care and other nonresidential Social Services Guidance for Councils with Social Services Responsibilities 2013 — The guidance aims to help local councils which decide to charge for any nonresidential services to design reasonable and fair charging policies. It seeks to ensure greater consistency in charging policies.
Family finances UK-wide — Resources on reducing poverty in the UK
Getting to grips with commissioning for people with learning disabilities 2007 — This report concludes that a shift towards self-directed support on a large scale offers the best chance for councils to meet increasing needs and get better value for money. Resource provided by The Learning Exchange at http://lx.iriss.org.uk/
Guidance on direct payments For community care, services for carers and children’s services England 2009 — The aim of this guidance is to assist councils with social services responsibilities in making direct payments. It applies to both children’s and adult services. It replaces the 2003 guidance, and has been written to reflect legislative changes that extend direct payments to previously excluded groups.
High Quality Care For All NHS Next Stage Review Final Report 2008 — The final report of Lord Darzi's NHS Next Stage Review. It responds to the 10 SHA strategic visions and sets out a vision for an NHS with quality at its heart.
In Control's work 2005-2007 - UK-evaluation — The report appeared when about 3,500 people were directing their support. The Government had recently announced in Putting People First that personal budgets would be a core element in Government policy. Alongside the evaluation by Chris Hatton, there are seven chapters: Self-directed support is for everyone; The economics of self-directed support; Enabling people to plan and arrange support; Children and families in control; Community; Service providers and commissioners; Reflections on In Control.
In Control UK — a national charity working for an inclusive society where everyone has the support they need to live a good life and make a valued contribution.
In Control’s Discussion Paper on Resource Allocation 2005 — This paper describes the principles that we have applied in developing In Control’s RAS and it explains how and why we think it works.
INDEPENDENT LIVING, DIRECT PAYMENTS AND THE TAX SYSTEM 2008 — The Low Incomes Tax Reform Group (LITRG) is an initiative of the Chartered Institute of Taxation (CIOT) to give a voice to the unrepresented in the tax system. The CIOT is an educational charity and the leading professional body in the UK for tax advisers. This report is the culmination of a year’s research into the tax treatment of direct payments under the Community Care Act 1996. Our interest in this topic was prompted by the dearth of information for recipients about the tax and other regulatory implications of direct payments, which can nonetheless be substantial for those who become employers by engaging a carer.
Joint investigation into the provision of services for people with learning disabilities at Cornwall Partnership NHS Trust 2006 — This investigation has only examined the services provided for people with learning disabilities by Cornwall Partnership NHS Trust.
Learning Disability Needs Assessment June 2010 — Adult people with learning disabilities have a wide range of social and health care needs. This reflects the spectrum of severity for learning disabilities and the different conditions that may co-exist. People with learning disabilities also have needs generated by social exclusion, such as poverty, lack of housing and unemployment.
Making it Personal (resources on personal budgets) 2014-2015 — Making it Personal project aimed to provide support and advice for parents and carers of disabled children and young people, along with commissioners around the subject of personalisation and personal budgets.
No one written off: reforming welfare to reward responsibility Public consultation 2008 — This Consultation Paper proposes new thinking on welfare. These ideas need to be tested before they are applied nationally.
NOT JUST ABOUT THE MONEY Reshaping social care for self-determination 2002 — Historic work published by Steve Dowson on self-directed funding.
People with Learning Disabilities in England 2011:Services & Supports — Information on characteristics of people with learning disabilities, the services and supports they use and their carers is collected by several government departments and made publically available through a number of diverse channels.
People with Learning Disabilities in England 2012 — The third annual compendium of statistics about the lives of people with learning disabilities. The report covers a wide range of information about population numbers, education, health and social care.
Reforming social care funding: a step in the right direction? 2013 — A blog with links to useful resources.
Schemes Providing Support to People Using Direct Payments: A UK Survey 2007 — This report sets out the main findings from a survey of schemes providing support to direct payment users. The survey represented the combined efforts of three multidisciplinary research teams involved in national studies of direct payments: a team from the Personal Social Services Research Unit (PSSRU) at the London School of Economics and Political Science (LSE); a team from the Universities of Leeds, Edinburgh and Glasgow; and a team from the Health and Social Care Advisory Service (HASCAS), the Foundation for People with Learning Disabilities (FPLD) at the Mental Health Foundation and the Health Service Management Centre (HSMC) at the University of Birmingham.
Social care collections 2014 — The national provider of high-quality information, data and IT systems for health and social care.
Taking a Personal Approach: A Parents Guide to Personal Budgets 2013 — A personal budget is the total amount of money per year that children’s social services allocate to your family to meet your child’s support needs. A personal budget gives you and your child more flexibility, choice and control over the support you use and enables you to make your own decisions as a family about what works best for you.
Talking therapies explained www.mentalhealth.org.uk 2009 — This booklet is for anyone who wants to know more about different types of talking therapy or hear the experiences of people who have used them. It advises how to find a therapist who is right for you and suggests where to look for more information.
The future regulation of health and adult social care in England - response to consultation 2007 — This document is the Government’s formal response to the November 2006 consultation document The future regulation of health and adult social care in England. The consultation ran from November 2006 to February 2007. Over 100 written responses from a wide variety of stakeholders were received. Workshops and open forums were also held to consider the document.
Towards Economic Empowerment for Disabled People: Exploring the Boundaries of the Social Model of Disability in Kenya and India By: David Stephen Cobley 2011 — The social model of disability, which provides the ideological basis for the recent UN Convention on the Rights of Persons with Disabilities, emphasizes the need for society to change, in order to remove all forms of disability discrimination and allow for full participation. However, literature debates have raised questions over the relevance of this ideology to the majority world context. This thesis aims to explore this dilemma, by examining the influence of the social model on a range of current approaches to promoting economic empowerment within Kenya and India - two countries that have signed and ratified the Convention.
UK Study of Abuse and Neglect of Older People: Qualitative Findings -2007 — This qualitative study forms part of a wider programme of research involving a literature review, focus groups with service-providers and stakeholders, a national survey of over 2000 older people and a feasibility study for researching elder mistreatment in care homes.
Valuing People A New Strategy for Learning Disability for the 21st Century 2001 — people with learning disabilities must no longer be marginalised or excluded. Valuing People sets out how the Government will provide new opportunities for children and adults with learning disabilities and their families to live full and independent lives as part of their local communities.
Visually impaired people’s access to employment Summary of findings 2009 — The summary focuses upon data relating to employment.
Way Ahead: Our early experience in North Lanarkshire of demonstrating the impact of the in Control approach 2009 — The In Control demonstration project tested out an approach that supported people to undertake their own assessment of need, leading to a financial value that we believed was reasonable to meet their needs; we then invited each person to make best use of those resources in ways that suited their own unique needs and circumstances.
“We need a step-change in the way people plan for social care…” UNLOCKING THE POTENTIAL 2014 — The analysis draws on the framework set out in the Care Bill and known consumer behavioural traits, and develops recommendations to motivate individuals to plan for their care funding well before the point of need.