Respite services are systematic supports provided to families in the form of in-home, funding, or agency operated assistance to augment the care of the family member. usually a child, with disabilities.
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CRA Medical and Disability-Related Information Includes Form T2201 — Canada Revenue Agency disability tax credits
Creating Respite Solutions for Nova Scotia Families of Children and Adult Children with Chronically High Needs (2009) — Our goal is to develop solution-focused strategies that promote a proactive system of care for children and adults with disabilities and respite for caregivers and families.
in their own words: the need for family support services - Mass.gov 2012 — The Department of Developmental Services (DDS) is at an important juncture. There are more and more children and adults with intellectual and developmental disabilities living with their families resulting in a greater demand for family support services. But, as a result of the economic downturn that began in 2008, funding for this service has decreased.
Listen to Carers Report on a Nation-wide Carer Consultation 2008 — The Consultation was intended to provide an up-to-date perspective on the experiences and concerns of carers across Ireland. It presents some timely insights into what issues need to be prioritised in the forthcoming national Carer Strategy. The focus was on family carers, people who provide care and support for family members or relatives who need help because of frailty in old age, disability or long-term illness. Ireland
Ordinary lives: Disabled children and their families: A guide for donors and funders 2005 — There are an estimated 700,000 disabled children in the UK (5% of all children). Disabled children have the same needs as other children: to learn,have fun, make friends, play and go on holiday. However, they face many barriers that prevent them from doing these things, leading to loneliness and frustration. Many disabled children do not get the equipment, therapy or communication aids they require. This can slow their development and limit their capacity to take part in every day activities.
Paying Family Members to Provide Care: Policy Considerations for States (2001) — At least four states— Arkansas, California, Oregon and Washington— now have large caregiver payment programs. Evaluation findings show that these are quite popular with recipients and caregivers and are a cost-effective long-term care (LTC) alternative for many frail elderly and younger, disabled persons.
Rater bias and the measurement of support needs 2006 — The development and use of support need instruments for funding disability services is a relatively recent initiative. A measure of support that has been developed in Australia to provide estimates of service needs and associated funding is the Service Need Assessment Profile (SNAP). Our results suggest that support measures such as SNAP may significantly overestimate support needs when raters know the assessment is being used for funding purposes.
Relax. Take a Break: A Family Guide to Respite for Children in Michigan — Respite is a type of support available to families of children with developmental disabilities (DD) or serious emotional disturbance (SED)1. The word respite means “break” or “relief.” Respite care services are designed to offer families the opportunity for a break from care giving responsibilities.
Respite Care: State Policy Trends and Model Programs (2001) — The purpose of this Policy Brief is to describe respite care, document its importance, and delineate state options for supporting its use. This paper provides background, defines respite care, explains its significance and describes state options for supporting respite (focusing on key aspects of policy design and challenges for programs).
Respite Guide (CACL, 2006) — The guide, entitled Real Respite for the Whole Family - An Advocacy Resource Guide for Individuals with an intellectual disability and their families offers information, strategies, checklists, contacts, resources, and questions for family members who are providing unpaid care to children, youth and adults with disabilities.
R-e-s-p-i-t-e Spells Respect — the voices of the millions of Canadians who care at home for aging, sick and disabled relatives. Most caregivers want nothing more than a little r-e-s-p-i-t-e.
Short Breaks Network — Short Breaks Network was founded by short break scheme organisers who felt a need for a coordinating national body to share information and promote good practice in this newly developing field. Today, Short Breaks Network represents services UK-wide providing short break services to support disabled children and their families.
The impact of short breaks on families with a disabled child: report one of the quantitative phase 2010 UK — This document reports on a cross-sectional sample of families with a disabled child using short breaks in England; it describes the characteristics of children and families using short breaks, the nature and quantity of the short breaks they are using, their experiences of and satisfaction with short breaks and which factors are associated with a range of outcomes for family carers, disabled children and their siblings. This report uses both quantitative data derived from standardised questions and qualitative data from family members’ written responses to open-ended questions in the survey instruments.