*Note: These contents are assembled from several web sites, some of whom are now defunct. Although I have the documents in my records, I've provided the current links to available items. Copies of material from defunct sites, as well as my works, are provided. Copyright belongs to the authors and/or publishers of the material according to the information contained in the documents. An internet search of the titles or of content from the material should be made for referencing purposes. The owner of this web site only claims authorship where indicated within the material.
A Citizens Guide to Child and Family Focused Public Policy — Engaging as citizens in decision making affecting children, families and the communities in which they live is a goal of the American Association of Family Consumer Sciences.
A Healthy Balance: A Summary Report on a National Roundtable on Caregiving Policy in Canada (2005) — The circumstances and needs of caregivers and care receivers are attracting a lot of attention in Canada. The formation and activities of the Canadian Caregivers Coalition; the increasing attention to caregiving by families, communities and academics; the inclusion of caregivers in the 2002 Report of the Commission on the Future of Health Care in Canada; and the establishment of a federal Minister of State for Families and Caregivers all reflect that caregiving and caregivers are on the national policy agenda.
A Healthy Balance: Caregiving Policy in Canada - Backgrounder 2005 — The CPRN roundtable is intended to shape and influence public policy and contribute towards building a “caring society” in Canada, one that takes equity and fairness for caregivers as well as care receivers as a central issue.
Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities 2005 — This tool kit is an accumulation of the materials presented at the workshops along with a compilation of specific concerns and suggestions made by workshop participants. It is the authors’ hope that the information provided within these pages will provide state and local aging agencies with the tools to reach out to form new, or enhance existing, partnerships with state and local developmental disability agencies.
Assessing the Impact of Policies & Programs on Families 2000 — Family Impact Checklist: The first step in developing family-friendly policies is to ask the right questions: ► What can government and community institutions do to enhance the family’s capacity to help itself and others? ► What effect does (or will) this policy (or program) have for families? Will it help or hurt, strengthen or weaken family life?
BioPsychoSocial Assessment Tools for the Elderly - Assessment Summary Sheet — link to the THE ZARIT BURDEN INTERVIEW
Caregiver Burden Scale — Adapted from The Family Practice Handbook http://www.fpnotebook.com
Caregiver Resources — A number of different organizations, groups, and websites exist in Ontario that can provide support and resources for family caregivers. Below is a list of starting points that family caregivers can contact to inquire about local services or to find peer support.
Caregiver Strain Index (CSI) 2004 — The Caregiver Strain Index (CSI) is a tool that can be used to quickly identify families with potential caregiving concerns. It is a 13-question tool that measures strain related to care provision.
Carers Canada — As a carer, it is important that you look after yourself as well as the person you are caring for. Knowledge is a powerful tool in caregiving. It allows you to make informed choices about your own health as well as the health of your loved ones. Listed below are several websites that will enable you to make educated decisions throughout your caregiving experience.
Center for Excellence in Aging & Community Wellness — research center that develops, tests, and implements innovative practices and policies. CEACW’s diverse research, training, education, planning and service activities synergistically work to improve the creation, delivery and sustainability of evidence based practice models.
Children with Disabilities and Their Families in Canada A Discussion Paper (2002) — This Discussion paper explores the data and research available to us regarding children with disabilities. It describes how children with disabilities are doing in Canada, how families are faring in terms of caring for children with disabilities and how communities, services and systems measure up.
Community home-based care in resource-limited settings: a framework for action. (2002) — This document therefore provides an important framework to guide governments, national and international donor agencies and community-based organizations (including nongovernmental organizations, faith-based organizations and community groups) in developing or expanding CHBC (community home-based care) programmes.
Economic Implications of Caregiving at Midlife: Comparing Parents With and Without Children Who Have Developmental Disabilities (2004) — We compared the economic well-being and maternal employment of parents whose children did or did not have developmental disabilities.
Families of children with disabilities: a review of literature and recommendations for interventions (2008) — Families are a critical source of support for children with disabilities. Family members absorb the added demands on time, emotional resources, and financial resources
Family Adjustment to Childhood Developmental Disability: A Measure of Parent Appraisal of Family Impacts (2002) — To develop the Family Impact of Childhood Disability Scale (FICD)
Family and Child Outcomes for Early Intervention and Early Childhood Special Education April 2005 — The Early Childhood Outcomes (ECO) Center was funded by the Office of Special Education Program to develop an approach for collecting data on child and family outcomes for the Part C early intervention and Part B preschool programs of IDEA (Individuals with Disabilities Education Act).
Family Caregiver Alliance — Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs at national, state and local levels to support and sustain caregivers.
Family Friendly Community Checklist 2015 — This Family Friendly Community Checklist has been developed as a tool to assist communities in reviewing those aspects of the community that can detract from, or contribute to, family well-being.
Family Impact Institute, Using Research to Build Better Public Policy for Families — FII provides more than 100 briefing reports and newsletters written specifically for state policymakers as well as 20 reports for federal policymakers. To bring a family perspective to policymaking, there are several checklists available for assessing how family friendly policies, programs, schools, and communities are. You can listen to presentations from recent Family Impact Seminars, locate current family data, and link to over 100 policy sites.
Family Violence in Canada: A Statistical Profile 2006 — This is the ninth annual Family Violence in Canada: A Statistical Profile report produced by the Canadian Centre for Justice Statistics under the Federal Family Violence Initiative. This annual report provides the most current data on the nature and extent of family violence in Canada, as well as trends over time, as part of the ongoing initiative to inform policy makers and the public about family violence issues.
GROWING UP IN NORTH AMERICA: THE ECONOMIC WELL-BEING of CHILDREN in Canada, the United States, and Mexico (2008) — Measures children's economic security across North America based on family income; access to food, housing, and health care; and other indicators. Examines the disparities between and within the three countries and the determinants of economic well-being
How to Conduct a Family Impact Analysis — Policies, programs, and organizations that involve families can have both intended and unintended consequences for the strength and stability of family life. Conducting family impact analysis provides the opportunity to examine indepth how sensitive to and supportive of families policies and programs are.
Measures by Category Category V: Caregiving — catalog of relevant assessments
Mother Positivity and Family Adjustment in Households with Children with a Serious Disability (2011) — Only limited attention has been given to parent coping resources in the positive adjustment of families of children with a disability. This study is the first to explore maternal positivity as a psychological coping resource related to family adjustment in these families.
PARENTING STYLES, MATERNAL EFFICACY, AND IMPACT OF A CHILDHOOD DISABILITY ON THE FAMILY IN MOTHERS OF CHILDREN WITH DISABILITIES (2004, thesis) — The purpose of the study was to examine how maternal efficacy and the impact of a childhood disability on the family were related to the mother’s parenting styles.
PARENTS OF CHILDREN WITH MENTAL RETARDATION: COPING MECHANISMS AND SUPPORT NEEDS Samuel Bauman, Doctor of Philosophy, 2004 — The purpose of this research was to explore the subjective experiences of families of children with mental retardation, specifically the sources of stress and coping for these families.
POSITIVE PERCEPTIONS IN PARENTS OF CHILDREN WITH DISABILITIES (2004) — The authors move away from the negative outcomes and highlight the process of developing positive perceptions in these parents. The focus is on the process of coping that generates positive perceptions and the ways that these positive perceptions are used as an effective coping strategy.
Putting Evidence Into Practice®: Nursing Assessment and Interventions to Reduce Family Caregiver Strain and Burden 2008 — Family caregiving often is associated with multiple rewards, yet the diversity and intensity of care-giving roles also can result in caregiver strain and burden. Using interventions to reduce the strain and burden on caregivers of patients with cancer is an important role nurses play. This article is a critical review and synthesis of the evidence regarding assessment tools and interventions aimed at reducing caregiver strain and burden in the oncology population.
Strengthening the Capacity of Nonprofit and Voluntary Organizations to Serve Canadians: Recommendations Based On The National Survey Of Nonprofit And Voluntary Organizations 2006 — Nonprofit and voluntary organizations provide Canadians with a multitude of services, as well as with opportunities to become involved in and contribute to their communities. Until recently, however, little was known about the size and scope of Canada’s nonprofit and voluntary sector, or about the challenges faced by nonprofit and voluntary organizations in this country.
Supports to families of Children with Disabilities: Systematic Review: State of the Evidence; by Dick Sobsey (2006) — This purpose of this study was to review and evaluate the state of currently available research relevant to support programs for children with disabilities. The review was designed to be of assistance to researchers, policy makers, and individuals who work with or live in families where a member is disabled.
The Child With a Disability: Parental Acceptance, Management and Coping 2007 — Research indicates that family reaction to the birth of a disabled child changes according to the type of disability and the child's diagnostic category.
The Progress of Canada's Children & Youth 2006 — The Canadian Council on Social Development (CCSD) has been producing Progress since 1996. This magazine-style publication provides a wealth of information on different factors that influence the health and well-being of Canadian children and youth. This 7th edition reports on many indicators, including family life, economic security, physical safety, learning, and more. Because the report tracks this information over time, it helps identify trends, successes, and challenges.
Valuing and Supporting Carers -House of Commons London, UK (2008) — Caring matters deeply to families and individuals. Sustaining the ability of carers to provide the care and support they give to others is of critical importance to the Government, care service providers and society in general.
WAYS OF COPING QUESTIONNAIRE — The Ways of Coping (Revised) is a 66-item questionnaire containing a wide range of thoughts and acts that people use to deal with the internal and/or external demands of specific stressful encounters.