*Note: These contents are assembled from several web sites, some of whom are now defunct. Although I have the documents in my records, I've provided the current links to available items. Copies of material from defunct sites, as well as my works, are provided below. Copyright belongs to the authors and/or publishers of the material according to the information contained in the documents. An internet search of the titles or of content from the material should be made for referencing purposes. The owner of this web site only claims authorship where indicated within the material.
Beyond Managed Care: Self-Determination for People With Disabilities 1996 — By Thomas Nerney and Donald Shumway
Center for Outcome Analysis — a non-profit firm founded in 1985 to perform evaluation, research, and demonstration projects in the human services and health care services. COA is founded on the principle that service agencies should be guided by the measurable individual quality of life outcomes of their services and supports.
Community Engagement A Necessary Condition for Self-Determination and Individual Funding- John O’Brien (1999) and other resources on S-D — Many resources by John O'Brien listed at http://www.inclusion.com/index.html
Empowerment and Mental Health in Community (2001) — Narratives of Consumers.
Empowerment and the architecture of rights based social policy TIM STAINTON (2005) — This article considers what the notions of empowerment, rights and citizenship imply in the way of structures and policies. It argues that a coherent model is emerging with recognizable elements.
Enabling risk, ensuring safety: Self-directed support and personal budgets (2010) — The briefing summarises research findings from UK and international studies and emerging practice. The aim is to highlight evidence of what may help or hinder risk enablement and adult safeguarding in the context of promoting independence, choice and control. It also provides some examples of how practice is developing.
International Developments in Self-Directed Care 2010 — This issue brief examines a range of innovative self-directed care programs in England, Germany, the Netherlands, and the United States.
Legal Capacity for All: Including Older Persons in the Shift from Adult Guardianship to Supported Decision-Making, 2016 — Article 12 of the United Nations Convention on the Rights of Persons with Disabilities (CRPD),4 with its declaration that everyone, regardless of mental disability or cognitive impairment, is entitled to make decisions and have those decisions recognized under the law, offers no less than a promise to end adult guardianship as we know it.
Minnesota Self-Determination Project Formative Evaluation November, 1999 — In the proposal, Minnesota stated its intention to meld comprehensive programs of self-determination with managed care principles to guide system re-design. Minnesota's proposal integrated and expanded several initiatives that were already being developed in the state to support the self-determination of persons with developmental disabilities.
National Empowerment Center — To carry a message of recovery, empowerment, hope and healing to people with lived experience with mental health issues, trauma, and extreme states.
NATIONAL GUARDIANSHIP ASSOCIATION — NGA is leading the way to EXCELLENCE in guardianship by: Establishing and promoting nationally recognized standards. Encouraging the highest levels of integrity and competence through guardianship education. Protecting the interests of guardians and people in their care.
National Resource Center for Participant-Directed Services — The Cash & Counseling grant program has introduced participant-directed programs into the Medicaid programs of 15 states. The National Resource Center for Participant-Directed Services (NRCPDS) served as the national program office for this successful effort from 1998 to 2009.
Person-Directed Planning and Facilitation Guide November 2013 — This Guide is a first step in recording what the ministry has learned to-date about person-directed planning and facilitation in Ontario. Given that person-directed planning and facilitation is an emerging profession, it is a first effort to capture and record a vision of what good practice looks like in Ontario. As the profession and practice of person-directed planning and facilitation develops further, it is expected that the content of the Guide may shift and change over time.
Principles of Community Engagement — Thoughtful consideration of the nine principles laid out in this chapter and what is needed to put them into action will help readers to form effective partnerships.
Principles of Community Engagement - Second Edition 2011 — Full document at https://www.atsdr.cdc.gov/communityengagement/pdf/PCE_Report_508_FINAL.pdf
Promoting Self-Determination for Individuals with Psychiatric Disabilities Through Self-Directed Services (2004) — Self-determination refers to the right of individuals to have full power over their own lives, encompassing concepts that are central to existence in a democratic society, including freedom of choice, civil rights, independence, and self-direction (Cook & Jonikas, 2000). In the United States today, individuals with serious mental health problems experience minimal self-determination given society's failure to provide them with adequate, recovery-oriented services or choices in how to use available services
Research to Practice in Self-Determination Series 2013 — The purpose of this series is to describe key issues in the field of developmental disabilities that can be enhanced by considering efforts to promote self-determination. Each issue is prepared with a social-ecological framework in mind.
Self-Determination, Self-Direction, Individual Budgeting.: How Do We Know This Works? 2015 — This summary is drawn from scientific evaluation and research studies conducted from 1994 to 2014, and it shows compelling evidence that the social supports model called “self-determination” actually works.
Self-Determination After A Decade BY TOM NERNEY - 2005 — After a decade of demonstrations, policy debates and implementation, it may be useful to reflect on how self-determination as a movement has evolved, where it appears to be going and why it needs to be speeded. In truth, self-determination is suffering from both confusion and compromise.
Self-Determination and Meaningful Work: Exploring Socioeconomic Constraints 2016 — internal regulation was positively related to meaningful work, whereas external regulation and amotivation were negatively related to meaningful work.
Self-Directed Care Implementation Manual: A Comprehensive Mental Health Program Guide 2015 — This manual was created for people who are interested in alternative ways to help people recover their wellness following a diagnosis of mental illness. Staff at the University of Illinois at Chicago’s Center for Mental Health Services Research and Policy created the manual.
Self-Directing Supports A guide for families seeking choice and control (2005) — North Dakota families overwhelmingly prefer supports and services to be available in their home communities and to look and feel like services available to any other North Dakotan. Youth with disabilities and their families are seeking opportunities to achieve personal goals through person-centered planning with the help of a support network from their home community. This vision has given rise to a new and less expensive form of service delivery called self-directed supports.
Supported Decision-Making: Protecting Rights, Ensuring Choices 2015 — This article introduces Supported Decision-Making, an alternative to guardianship where people make their own decisions, without a guardian, while receiving the help they need and want to do so.
The Cash and Counseling model of self-directed long-term care: Effectiveness with young adults with disabilities 2017 — Cash and Counseling performed better than or comparable with agency-based care for young adults with long-term care disabilities, suggesting its viability as a service option for this population.
The Center for Self-Determination — The Principles of Self-Determination Self-Determination is a process that is built upon these 5 principles: FREEDOM To decide how one wants to live their life. AUTHORITY Over a targeted amount of dollars. SUPPORT To organize resources in ways that are life enhancing and meaningful to the individual. RESPONSIBILITY For the wise use of public dollars and recognition of the contribution individuals with disabilities can make in their communities. CONFIRMATION Of the important role that self-advocates must play in a newly redesigned system.
The Florida Self-Directed Care Program A Practical Path to Self-Determination (2008) — Underlying the goal of recovery for people living with psychiatric disabilities is the fundamental concept of self-determination. Achieving this is often a slow process of taking back control of lives which have been overwhelmed by both the debilitating nature of our illnesses and the loss of control resulting from reliance on a system of services and supports that engender dependence.
The Fundamentals of Person-Centered Care for Individuals With Dementia 2018 — The history of person-centered care was described, core principles of care for individuals with dementia outlined, current tools to measure person-centered care approaches reviewed, and outcomes of interventions discussed.
The Robert Wood Johnson Foundation Self-Determination Initiative: Final Impact Assessment Report November 2001 — In 1997, the Robert Wood Johnson Foundation invested in a broad range of demonstration activities around the country aimed at exploring the ways in which people with developmental disabilities can influence the character and configuration of the supports they receive through self-determination. The emphasis on the choices and preferences of people, a theme that was at the center of each of the 19 demonstrations, represented a significant departure from conventional practice.
Thomas Nerney's scientific contributions on self-determination