Mick McKellar Update--Day +95
The intrepid walkers had no business at Mayo Clinic today, or at the hospital, so we hiked on up to Soldier's Field Veterans Memorial. I thought it was all done in marble, but it is created in granite. The artwork is phenomenal and the design and message are moving. It was certainly worth trudging up and down a few hills to see it.
Our day started late, because old Darth Mick slept in until nearly 7:00 AM! After the long walk, and a late lunch, I sat down to begin writing this update and immediately fell asleep again...until after 5:00 PM! After our walk in bright weather, the sky dimmed and it rained all afternoon -- at least it was raining when I fell asleep and raining when I woke up.
I did not get my usual early start on reading your e-mails and sending messages, as the Internet connection failed at the transplant house. Some problem with the server I guess. It was afternoon before we had service again. Of course, I slept through the news...
Some days, you're just tired...
Medically, nothing has changed. The rash looked a little better this morning and a little redder this evening. My appetite has nearly disappeared again, or maybe just gone back to normal for awhile -- probably as a result of the lower dose of Prednisone. My blood glucose is staying within limits on only 24 units of insulin each morning. The only noticeable difference is my predilection to fall asleep at the drop of a hat...any hat.
I reviewed the literature on blood and marrow transplants and found several places where they mention these low energy periods. Apparently, BMT patients find themselves going to bed much earlier than they ever expected and taking afternoon naps. My best guess is that the body has been working on something or counteracting some unknown insult from GVHD or a medication, and is just tired. The doctors seem unconcerned when I mentioned it, at least as long as my hemoglobin remains in a fairly normal range.
I did not write a poem today. Under the circumstances, it is likely a blessing for everyone, as my attention span this afternoon is practically nil, and my ability to concentrate nearly gone.
Our windows are dark portals on the night and my eyelids are getting heavier my the moment. I think I shall take a pill and dream the night away. Before I go, let me thank you all for your prayers and good thoughts. As the day when we can head home grows closer, my homesickness gets worse. Your communications help keep it at bay, by connecting us briefly with home, friends, and family. Thank you all.
God bless and good night,
Mick