Tic Clips

Tic Clips is a fully online research study for people aged 4 years and up who experience tics. We are recruiting participants internationally! In order to participate, you must first join the MnTiC Registry (see above). Participation includes completing surveys and submitting brief video recordings. Compensation is provided for submitted videos.

Goals

We know that different people experience tics in different ways. By viewing a lot of videos of people having tics, we hope to better understand the variety of tics that exist. We will also get videos from the same people over the course of a year so we can see how tics change. A goal of Tic Clips is to create computer software that can tell the difference between typical movements and tics.

Why Is It Important?

Our hope is that Tic Clips will help us improve the way we identify tics in the future. Right now, doctors figure out if a person has a tic disorder by asking questions and watching the person’s movements. This process has some limitations. For example, different doctors might notice different tics, or a person’s tics might be different in the doctor’s office than at home. One goal of this study is to develop a digital tool that can help us reliably measure tics. Our hope is that a tool like this could improve the healthcare experience of people with tics.

Who Can Join?

• People with tics ages 18 and older

• Parents of children with tics aged 4-17 years

• Adult participants or parents who read English

• People who have access to an internet connected devices that can record videos, like a computer, phone, or tablet with webcam

• People who are signed up for the MnTiC Registry

• People from almost every country across the globe

Study Flow

1. Find this page: This is a completely online study. Our website is the bridge between us!

2. Join the MnTiC Registry: By signing up for the registry, you can be invited to participate in studies that apply to you, both online and in-person. You must join the registry to start Tic Clips.

3. Consent to be in the study: You can choose to stop participating at any time.

4. Submit forms and a video: Participation includes telling us about yourself through surveys and submitting two short videos of yourself.

5. Stay connected: Make sure you are subscribed to our newsletter to learn about new findings in tic research