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Definition: HCBS are services that help individuals with disabilities, chronic conditions, or older adults to live in their homes and communities rather than in institutions like nursing homes or intermediate care facilities.
Purpose: To provide necessary support, care, and rehabilitation in the most integrated and least restrictive environment possible, promoting independence, dignity, and quality of life.
Funding: Primarily funded through Medicaid waivers, allowing states to offer services outside of traditional institutional settings.
HCBS are built upon a foundation of person-centered values and aims to achieve specific outcomes:
Person-Centered Planning: Services are tailored to the individual's unique needs, preferences, strengths, and goals, with the individual (and/or their authorized representative) actively involved in all planning decisions.
Community Integration: Promoting opportunities for individuals to live, work, and participate fully in their communities, fostering social connections and reducing isolation.
Choice and Control: Empowering individuals to make informed decisions about their lives, services, and who provides their care.
Independence and Self-Determination: Supporting individuals to achieve their highest level of independence and to direct their own lives.
Health and Safety: Ensuring that individuals receive services in a safe environment that meets their health and safety needs, while respecting their autonomy.
HCBS encompass a wide range of services designed to meet diverse needs. Examples include:
Personal Care: Assistance with daily living activities (e.g., bathing, dressing, eating).
Homemaker Services: Help with household tasks (e.g., cleaning, meal preparation).
Skilled Nursing: Medical care provided by licensed nurses in the home.
Therapies: Physical, occupational, and speech therapy.
Behavioral Support Services: Strategies and interventions to address challenging behaviors.
Case Management/Support Coordination: Assistance with navigating services, coordinating care, and developing service plans.
Respite Care: Temporary relief for family caregivers.
Transportation: Assistance with getting to appointments or community activities.
Employment Supports: Assistance with job searching, training, and maintaining employment.
Environmental Modifications: Adaptations to the home to improve accessibility and safety.
Improved Quality of Life: Individuals can remain in familiar surroundings, maintain relationships, and pursue personal interests.
Greater Independence: Supports are designed to foster self-sufficiency and skill development.
Enhanced Dignity and Respect: Emphasizes individual choice and control over their lives.
Cost-Effectiveness: Often more cost-efficient than institutional care, benefiting both individuals and state budgets.
Community Inclusion: Reduces isolation and promotes active participation in community life.
The Centers for Medicare & Medicaid Services (CMS) issued the HCBS Settings Rule to ensure that individuals receiving HCBS have full access to the benefits of community living and that services are provided in settings that are truly integrated and person-centered.
This rule emphasizes that HCBS settings must:
Be integrated into the community.
Ensure individual choice regarding services and who provides them.
Provide opportunities for community engagement and control over personal resources.
Be chosen by the individual.
DSPs and providers are at the heart of successful HCBS delivery:
Implementing Person-Centered Plans: DSPs directly implement the goals and strategies outlined in Individualized Service Plans (ISPs), ensuring services align with individual preferences.
Promoting Independence: Encouraging and facilitating opportunities for individuals to learn new skills, make choices, and engage in meaningful activities.
Upholding Rights: Ensuring that individuals' human rights, dignity, and privacy are respected in all interactions and service delivery.
Documentation: Accurately documenting services provided, progress, and any changes in the individual's needs or preferences.
Communication: Maintaining open communication with individuals, families, and the care team to ensure coordinated and effective support.