Participate in our Mini Wire Lafora Disease Progression Survey

Post date: Apr 11, 2014 9:2:31 AM

We are working in conjunction with Dr Clare Rusbridge, one of the Veterinary Neurologists who first recognized Lafora symptoms in Mini Wires to gather more information about the onset and progression of the condition, and the level of veterinary knowledge,/awareness, an area of particular concern given the very low diagnosis rate in affected dogs identified by the first survey conducted in 2012.

To take part, please complete the new LAFORA SURVEY for each of your dogs that may be or is definitely affected. You will also be asked whether you would be prepared to complete the survey again periodically, which will be invaluable in monitoring and identifying progression patterns. Thank you so much in anticipation. PLEASE NOTE, ONLY COMPLETE THIS SURVEY IF:

  1. YOU ARE IN THE UK OR YOUR DOG IS FROM UK BREEDING

  2. YOU HAVE A CONFIRMED DNA TESTED RESULT SHOWN ON THE WHDC DATABASE OR:

  3. YOUR DOG HAS BEEN TESTED BY ANOTHER PROVEN RELIABLE DNA TEST

  4. OR: YOUR DOG FITS CATEGORY 1, IS A MINI WIRE, NOT TESTED BUT SHOWING DEFINITE SYMPTOMS OF LAFORA

If your dog falls into either category 3 or 4, we will be in touch to ask for further details. Your information is vital to help inform the research but may also be used for some data analysis. IF YOU ARE NOT UK BASED BUT WOULD LIKE MORE INFORMATION OR TO GET INVOLVED, PLEASE CONTACT laforadogs@btinternet.com.