Lived experiences of mothers of children with Down syndrome in selected areas of Cavite
Michaellenia L. Andrade
Roselle N. Caranto
Maria Luisa S. Papica
Psychology Department, St. Dominic College of Asia
Dino T. Ubalde
School of Arts, Sciences, and Education, St. Dominic College of Asia
Abstract
Down Syndrome, also known as Trisomy 21 is commonly recognized disorder found in children. It is a genetic disorder resulting in an extra 21st chromosome. This error in the "blueprint" of the body usually causes delays and limitations in physical and intellectual development. The extra chromosomes may be derived from the egg or sperm. According to the Down Syndrome Association of the Philippines, Inc. (DSAPI), one in every 800 Filipino babies have Down Syndrome-and with 1.5 million live births, this makes up about 1,875 new cases in the country. In fact, more than 100,000 Filipino families are living with a person with Down Syndrome. The purpose of the study is to expose the coping strategies of the mothers to overcome parenting stress and become an inspiration and give hope to newly parents and future mothers that will have a child for Down Syndrome. Ten mothers were invited to have an in-depth interview to know their lived experiences for having a child with Down Syndrome and discuss the stressful events that they experience in parenting their children. The researchers found out through interview that their common stressors were non-acceptance of birth of aberrant child, worried about the unpredictable future of the child, societal acceptance, and spiritual doubt were in common experiences of mothers. It was also reported that mothers of children with Down Syndrome has a positive outlook in life and build closer family ties.
Keywords: Coping strategies, parenting stress, Down Syndrome.