IBHO (CPMS 57264, IRAS 313104)

UPDATED - 24/04/2025

The aim of the IBHO BioResource is to research the social and biological causes, and impacts, of a broad range of health conditions and illnesses in people from Black communities in the United Kingdom (UK). These include disorders that affect people from Black communities at increased rates,such as diabetes and pregnancy/childbirth complications,but also conditions that almost exclusively affect those from Black communities such as sickle cell disease. The IBHO Bioresource is also designed to examine some conditions such as anxiety, depression, and dermatological problems, about which not enough is known in Black communities. The IBHO BioResource aims to improve our understanding of how and why these different health conditions that affect the Black community occur. We also want to help researchers understand what the best assessments are to use to accurately identify these conditions in Black people, and how to use research findings to improve and develop treatments that meet the specific health needs of Black communities.

PARTICIPANT INCLUSION CRITERIA

The Study Team are recruiting people from Black Communities with or without health conditions to join the IBHO BioResource.

For the IBHO BioResource Black communities refers to the below self-reported Ethnicity category;

Black, Black British, Black Welsh, Caribbean, African, Other Black 

• Caribbean 

•  African 

• Any other Black, Black British, or Caribbean background

 Mixed or multiple ethnic groups 

• White and Black Caribbean 

• White and Black African 

• Any other Mixed or multiple ethnic background

In addition, people with Sickle Cell Disease or Thalassemia are invited to join IBHO BioResource regardless of their ethnicity.

PARTICIPANT EXCLUSION CRITERIA

Participants who do not meet the above criteria.

Study Resources

Access for the SystmOne and EMIS study resources can be requested below.

For further guidance on using the resources, please refer to the guidance documents and further useful information on the PRIDES page.

The searches have been created with the study specific inclusion and exclusion criteria. 

If you require any further information or help, please contact the IT Specialists:

Jodie Button – jodie.button@nihr.ac.uk (EMIS)

James Baslington – james.baslington@nhs.net (SystmOne)

Disclaimer:

Please note the resources provided are designed to assist with the identification of potentially suitable patients and to appropriately code these patients if required.

These resources have been developed based on the criteria provided by the relevant study team and whilst every effort has been made to make them universally implementable they rely on read codes and the data stored in the individual practice's clinical system. These resources are intended to assist with identification but should be used in conjunction with clinical oversight and a clear understanding of the study parameters.

While we endeavour to keep the information, tools and resources provided up to date and correct, we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the tools provided for any purpose. Any reliance you place on such information is therefore strictly at your own risk.

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