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CARECOACH STUDY ( CPMS: 61261/ IRAS: 338454)
CARECOACH STUDY ( CPMS: 61261/ IRAS: 338454)
UPDATED - 27/06/2025
STUDY SUMMARY
People who care for people living with dementia (who we refer to as carers or caregivers) need to have information and skills to manage and support the day-to-day care they provide. The aim of this study is to test the effects of using an online support package for carers called CareCoach. In other words, the study will test whether CareCoach has an effect on carer’s sense of being able to care well, their mood and quality of life. We must test this before we can make it available to people across the UK. This study is part of a larger research programme (The CareCoach Research Programme). This study is the final study of the programme and has been informed by a previous pilot study which aimed to test whether running a randomised trial using CareCoach was feasible. The results from the pilot (or feasibility) study indicated that the study was feasible. Therefore, the funder has approved this larger randomised controlled trial. This trial aims to recruit 404 family carers. Carers will be randomly allocated to either the CareCoach intervention group or the 'control' group where they will continue to receive usual care. The intervention (CareCoach) combines learning modules (via an online platform) with support from a ‘coach’ (eg., health/social care worker) remotely. Carers in the intervention group will use CareCoach for 8-weeks with support from a 'coach'. All carers in the study will be asked to complete a questionnaire either online or via post at the beginning of the trial (before being allocated into a group), and 10-weeks and 6-months after allocation. We will recruit the carers via recruiting sites, via self-referral (e.g., via social media, newsletter, other communications), community groups, and charities. There will be an embedded qualitative study (e.g., group discussions, interviews) exploring carer and coach experiences using CareCoach
INCLUSION CRITERIA
- Currently care/support (e.g., informally, unpaid*) for a person living with dementia (may be a partner, family member, in-law, close friend or neighbour).
- The person living with dementia (all subtypes) has been diagnosed within the last 5 years.
- 18 years or over.
- Living in the UK.
- Access to a device with a camera and microphone which connects to the internet (e.g., laptop, tablet, smartphone).
- Seeking to learn new skills and knowledge to cope well while caring for a person living with dementia.
- Able to engage in and understand the programme delivered in English (with the help of a family interpreter if required). *Family carers claiming carer’s allowance are not excluded.
EXCLUSION CRITERIA
- Currently care/support (e.g., informally, unpaid*) for a person living with dementia (may be a partner, family member, in-law, close friend or neighbour).
- The person living with dementia (all subtypes) has been diagnosed within the last 5 years.
- 18 years or over.
- Living in the UK.
- Access to a device with a camera and microphone which connects to the internet (e.g., laptop, tablet, smartphone).
- Seeking to learn new skills and knowledge to cope well while caring for a person living with dementia.
- Able to engage in and understand the programme delivered in English (with the help of a family interpreter if required). *Family carers claiming carer’s allowance are not excluded.
Study Resources
Access for the SystmOne and EMIS study resources can be requested below.
For further guidance on using the resources, please refer to the guidance documents and further useful information on the PRIDES page.
The searches have been created with the study specific inclusion and exclusion criteria.
If you require any further information or help, please contact the IT Specialists:
EMIS: Jodie Button – jodie.button@nihr.ac.uk
SystmOne: James Baslington – james.baslington@nhs.net
Disclaimer:
Please note the resources provided are designed to assist with the identification of potentially suitable patients and to appropriately code these patients if required.
These resources have been developed based on the criteria provided by the relevant study team and whilst every effort has been made to make them universally implementable they rely on read codes and the data stored in the individual practice's clinical system. These resources are intended to assist with identification but should be used in conjunction with clinical oversight and a clear understanding of the study parameters.
While we endeavour to keep the information, tools and resources provided up to date and correct, we make no representations or warranties of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the tools provided for any purpose. Any reliance you place on such information is therefore strictly at your own risk.
In no event will we be liable for any loss or damage including without limitation, indirect or consequential loss or damage, or any loss or damage whatsoever arising from loss of data or profits arising out of, or in connection with, the use of the tools provided.
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