<<<<<<<<<<<<<<<< - Reports On Activities

Reports On Activities

2005- 2017

REPORT ON ACTIVITIES

Some of our volunteers have been actively providing free services to residents and health care professionals for over 20 years. We do not receive government grants to assist with our special projects or daily efforts. Our main source of funding is out-of-pocket. We do not charge for educational literature or charge fees to attend support group meetings.

Occasionally, a local support group will hold a small fundraising event and some may have a donation jar set up at meetings to help defray costs. We would like to thank all who donate their time, energy and money to help educate others about Lyme and tick borne diseases.

Lucy Barnes

AfterTheBite@gmail.com

2010- Report on Activities

Maryland Lyme-related Websites and Online Support Groups- 6

Supporting Groups/Individuals- 12

Designated Phone Support Lines- 1

Total Estimated Hours-

2007-2009 Total Estimated Volunteer Hours- Summary

1. Total estimated volunteer hours- 15,500

Total volunteers and groups included- 74

2. Total estimated volunteer hours- 9,130

Total volunteers and groups included- 42

3. Total estimated volunteer hours- 8,900

Total volunteers and groups included- 40

Total Hours (2007-2009)- 33,530 hours

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Lyme Disease Education and Support Groups of Maryland

Annual (June 2005- June 2006) Activity Reports

The partial list below includes support activities from three Maryland volunteer support groups.

LDA and ILADS Conference, Philadelphia, PA; October 2005

Lyme Disease Conference, Maryland; March 2006

Answered phone calls from public on Lyme Disease

Mailing of educational information and Guidelines to 800 physicians in Maryland.

Support Group Meetings- 340 people attended

Arranged special guest speakers for meetings for the public-8

Mailed 160 information packets to patients, businesses, groups

Mailed over 100 extensive information packets to doctors

Meetings with Maryland DHMH- 3

Made DVD's of two Fox 45 News Specials on Lyme and handed them out to people at various meetings/church

Provided educational materials for other support groups - 6

Interviewed for TV news show-Fox 45 10 o’clock news- 3 minute segment

Attended out of town conferences, meetings- 6

Lyme related phone calls...from Lyme patients needing help- Total 148

Hand out literature to local stores, businesses, offices- 109

Lyme related e-mails to/from patients, groups- 600-800

Personal contacts in community .... 30 Local families with Lyme

Research hours- 120

Several interviews on TV news programs- guests on morning talk show.

Promos on preventing Lyme disease (continuously aired, every day, by local TV)

Produced a 22 minute program on Lyme disease- airs several times a week

Guest on a Clear Channel station for 1 hour production on LD. This was broken into three 20 minute programs and airs on several local Clear Channel stations. Arranged for guests to be interviewed on local Public Radio.

Advocated for many articles on Lyme disease in the "Daily Times" and "Worcester County Times". Wrote letters to the editor on controversial issues and for LD awareness.

Arranged for a public meeting the last Monday night of each month. Attendance ranges from 15 to 60 people- total approximately 400.

During the monthly meetings we have also shown videos of seminars on Lyme disease. Speakers on these DVD's are some of the most authoritative doctors on Lyme disease in the United States.

Meet with public officials to discuss the issues of Lyme disease, and sponsored legislation on Lyme disease. Attended meetings of the Maryland DHMH Committee on Lyme Disease.

Set up booths, fairs, festivals and banquets: Wild Turkey Club Banquet; Assateague Sportsmen's Show, Salisbury, Maryland; Chicken Festival, Snow Hill, Maryland

Attended Seminars for updates on Lyme disease research: Reston, Virginia; April 2005 and 2006

Programs for: Special Events, various school groups, fall festivals, various church programs, senior citizen groups, local county fairs, Scouts, 4-H, local malls

Assisted Baltimore County Lyme Fund-raiser for Kids (LDA)

Fund-raisers for support groups

4 Letters to Editor- 4 articles published

Monthly press releases and announcements- 16

Assist other support groups with projects/information- 22

Provide state wide Lyme disease HOTLINE

Members assisting others with Lyme information and support- 1,400

Attend National Lyme Rights Rally- CT

Mail out Lyme information- 82 sets

Emails- 14,400

Phone calls- 820

Write articles and reports on Lyme and TBD’s for meetings, news, etc.

Assist in preparing 6- 200 page books for documentation of LD research

Research hours- 260

Attend out-of-state medical board hearings to support LLMD’s- NC and CT

Attend National Lyme Patients Rally- Harford, CT

Attend National and International Conferences- 2 in PA

Letters to Editor/reporters- various states across US- 130

Politically oriented letters sent- 860

Meetings with DHMH and legislators- 5

Local contacts in person- education/assistance- 180

Dropping off literature to stores/businesses/doctors offices- 120 locations/times

Donations to assist Lyme patients in need- children & adults- $4,060.00

Organize Lyme trips for support of doctors/patients- 2

Published articles various newspapers- 11

Photograph and distribute color photos of LD events- 60 photos

Assist physicians with requests - 18

Assist newspaper reporters, TV news, doctors with media assistance- 16

Assist with local support group programs- 3

Maryland Lyme 8/20/10- 12/31/10 = 3,700

2017 Report

2017 Report on Volunteer Activities

After The Bite-

Lucy Barnes

Lyme & TBD Educational & Support Sites

Establish, Design, Financially Support and Maintain

The Following Sites

(No grants, federal or state assistance- all costs out of pocket)

Tribute to Those We Love

Maryland Lyme

Virginia Lyme

Del-Mar-Va Lyme

Washington DC Lyme

Military Lyme Info

Lyme Vaccine- Say NO!

Florida Lyme

Citrus County

Ticks & Lyme Disease

IDSA On Lyme

McStupid

FaceBook (new in 2017)

TOTAL- 2017 Site Visitors- 3,099,066

Assisting & Educating Support Groups, Advocates & Leaders

Locally, Statewide, Nationally & Internationally

Total Estimated Hours- 2,550

Emails Sent- Responses to Patients, Group Leaders, Advocates, Legislators, Officials, Media

and/or Educational Information/News- 1,271

Emails Incoming- Private Doctor & Advocate Groups- 4,999

Total Emails- 6,270

Lyme & TBD Related Posts On Public Boards (Current Count)- TOTAL 84,626

Distribute Educational Literature To Businesses, Offices, Health Care Professionals, Public, etc.- (LDA brochures, SEPA LDA Books, AFTER THE BITE Printable Handouts)- TOTAL Items 920

Articles, Letters to The Editor, Legislation Testimony, etc.

TOTAL NUMBER- 23

Selected Publications (Partial List)- Lucy Barnes

Take a Tick to Lunch Study

Neither Snow, Sleet, Rain or Hail Will Stop A Tick Attack

Rarely Fatal Disease Claims More Lives

Overlooked Infections Associated With Lyme Disease

Missed The Mark- Editorial- Baltimore Sun

Looks Like Lyme, But It Is Not Lyme

Local Lawmakers In Favor of Lyme Disease Bill- August 19, 2009

Study Suggests Sexual Transmission of Lyme

Editorial- Hope for Lyme Disease Sufferers- June 5, 2015