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Featured Module (Archived)
A welcome message and a new educational offering from the Inclusion, Diversity, Equity, & Accessibility section of the curriculum wheel has been posted (1-1.5 hours of primary open access content).
This website will be updated every Monday (by 12:00 PM Eastern) or Tuesday (if Monday is a holiday). Given that the design, implementation, and management of pragmatic trials is a non-linear process, featured modules will relate to various sections of the curriculum wheel over time.
Welcome from the Executive Director (Clinical Trials, CIHR): 1-min video.
Summary: Dr. Megan Bettle (Canadian Institutes of Health Research) welcomes learners to the program.
Inclusion, Diversity, Equity, & Accessibility Section
Introduction to IDEA in health research & pragmatic trials
Primary content:
Primary content:
Inclusion, Diversity, Equity, & Accessibility - Definitions & Principles for Working Together. (2023). HDRN Canada. (6-page document)
Summary: Provides definitions of inclusion (I), diversity (D), equity (E), and accessibility (A) and generalizable guidance for how to practice each principle in a health research setting.
NIH Pragmatic Trials Collaboratory - Why Is Health Equity Important in Pragmatic Clinical Trials? (June 25, 2021): 13-min webinar (9-slide presentation, slides 1-9)
Summary: Dr. Jonathan Jackson describes equality vs. equity, equity considerations using the PRECIS-2 tool (e.g., selection bias at enrolment, intervention delivery and adherence, outcome selection and assessment), and measures of equity in designing pragmatic trials.
Inclusion, Diversity, Equity & Accessibility (IDEA) Good Practices for Researchers. (2021). Canadian Commission for UNESCO, Ottawa, Canada. (11-page toolkit)
Summary: A toolkit to assist Canadian research groups in achieving an inclusive culture free of racism and discrimination and to foster deeper respect and appreciation for different perspectives, merits, and skills. Includes ten practices to help change the established ways of doing, while positioning researchers as bold equity leaders in their teams.
NIH Pragmatic Trials Collaboratory - Equitable Language Guide (June 13, 2024): 2-page document.
Summary: Provides examples of inclusive language when referring to specific people, groups, and communities (i.e., age groups, race/ethnicity, gender, differing abilities, drug/substance use, people who are underserved, and partners/populations of focus). Indicates that, when referencing the identity of a specific person or community, ask how they identify and defer to their preference (i.e., researchers should start by consulting the community they are working with to learn their preferences).
Optional content:
Optional content:
Schwartz AL, et al. (2023). Why Diverse Clinical Trial Participation Matters. N Engl J Med. 388(14):1252-1254. (3-page paper)
Summary: Describes goals related to increasing diversity in clinical trials (i.e., earning and building trust, promoting fairness, and producing generalizable knowledge) and describes key challenges and implications associated with each goal.
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