Healthcare Privacy

The increasing use of digital records in healthcare organizations and the desire of governments in US and Europe to link these records in a regional or national electronic health record (EHR) increases the risk that private patient data may be revealed to others even though perhaps unintended. These resources address electronic healthcare privacy issues. There are a host of inter-twined technological and social issues that have yet to be resolved to balance benefit with the rights of patients for privacy.

Interesting Posts and News

Should Drug Companies Get to See What Your Doctor Is Prescribing?

Cost of a Data Breach. A blog post by Entegration Inc. summarizes a study by The Ponemon Institute on the cost of a data breach identifying different kinds of losses that have a financial impact.

Online Personal Health Records and Pharma Search Engine Marketing (link)

The United States Department of Commerce/NIST awarded Booz Allen Hamilton a $400,000 contract to develop a framework for electronic health record certification. (link) (link to document "Justification for Other than Free and Open Competition")

Ethics of Electronic Health Records should consider autonomy, justice, beneficence/non-maleficence, privacy and confidentiality (link)

Re-identified (reconstructing de-identified) EMR Records readily available (link to Fortune Magazine article)

Patient Data Exposed - report by Ponemon Institute

Interesting Blogs on Healthcare Privacy

Electronic Data Records Law | How to Win E-Discovery

Post on EHR

Articles

Finding A Cure: The Case For Regulation And Oversight Of Electronic Health Record Systems (pdf)

Angst, CM & Agarwal, R 2009, 'Adoption of Electronic Health Records in the Presence of Privacy Concerns: The Elaboraiton Likelihood Model and Individual Persuasion', MIS Quarterly, Vol. 33, no. 2, pp. 339-70.

Dimitropoulos, LL 2007, Privacy and Security Solutions for Interoperable Health Information Exchange, 0209825.000.009, Agency for Healthcare Research and Quality (U.S. Department of Health and Human Services).

Greenberg, MD, Ridgely, MS & Bell, DS 2004, 'Electronic Prescribing and Hipaa Privacy Regulation', RAND Health, Vol. 41, pp. 461-8.

Holland, M 2006, Consumer Attitudes toward Emrs, Ehrs, and the Privacy of Health Information.

McGraw, D, Dempsey, JX, Harris, L & Goldman, J 2009, 'Privacy as an Enabler, Not an Impediment: Building Trust into Health Information Exchange', Health Affairs, Vol. 28, no. 2, pp. 416-27.

Muralidhar, K & Sarathy, R 2005, 'Can You Have Your Cake and Eat It Too? Sharing Healthcare Data without Compromising Privacy and Confidentiality', paper presented to Eleventh Americas Conference on Information Systems, Omaha, NE, USA, August 11th-14th.

Nakashima, E 2008, 'Prescription Data Used to Assess Consumers; Records Aid Insurers but Prompt Privacy Concerns', The Washington Post, Monday, August 4, p. A.1.

Peel, D 2007, E-Prescribing Invades Privacy, Crain Communications Inc. (MI), 01607480,

Randeree, E & Buffalo, S 2005, 'Secure Health Knowledge: Balancing Security, Privacy and Access', paper presented to Eleventh Americas Conference on Information Systems, Omaha, NE, USA, August 11th-14th.

Reeder, FS, Balutis, AP, Christopherson, GA, Lyles, CA & Payton, S 2009, A National Dialogue on Health Information Technology and Privacy, U.S. Office of Management and Budget, the General Services Administration, and the Federal Chief Information Officers Council.

Wallis, K & Rice, RE 2006, 'Technology and Health Information Privacy: Consumers and the Adoption of Digital Medical Records ', in M Murero & RE Rice (eds), The Internet and Health Care: Theory, Research and Practice, Lawrence Erlbaum Associates, Mahwah, NJ.

Westin, AF 2007, Iom Project Iom Project Survey Findings Survey Findings on Health on Health Research and Research and Privacy.

Yanjiang, Y, Xiaoxi, H, Feng, B & Deng, RH 2004, 'A Smart-Card-Enabled Privacy Preserving E-Prescription System', IEEE Transactions on Information Technology in Biomedicine, Vol. 8, no. 1, pp. 47-58

My Publications

King NE, “Availability of Prescription Information for Secondary Usage – Impact of Outpatient E-prescribing”, Presentation - Summer Institute in Nursing Informatics 2008 (pdf)

King NE, Abi Saad M, El Wazzi T, BBA, El Yafi T, Chedid R, Sayeh J, “Privacy and Security Considerations in a Loosely Coupled Wireless Hand-held Nursing Assessment Tool: Some Architectural Tradeoffs”, Poster - Summer Institute in Nursing Informatics, 2008