data sharing

Overview

Each U01 IRB protocol has been set up so that data may be shared with the NRMN Coordination Center, allowing for all U01 project data to be included in aggregate overview materials. In addition, participants in each study have the option to consent into allowing their data and/or personal contact information to be used in future research studies, allowing for ongoing research.

Collective progress

All U01 projects have finalized their IRB consent forms and protocols.
Proper data sharing language ensures the following:
- allows data to be used in the future
- allows for the NRMN CC to report aggregate information
- future collaboration options

Collective Roles

Resources

IRB Protocol Overview and Language
IRB Approval Letter for NRMN Coordination Center
IRB Protocol for NRMN Coordination Center
DPC Data Sharing Agreement: Contact Jonathan Mendez at jamendez@mednet.ucla.edu for access to the DPC intranet
NRMN Phase II Internal Data Sharing Plan
Guidelines for Use of Common Data

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