Community engagement
Community engagement
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Community engagement with research, evaluation, quality improvement and innovation is central to its success. NHS Norfolk and Waveney Integrated Care Board (ICB) works system-wide to meaningfully increase community engagement. We work closely with the ICB’s own infrastructure, for example the Community Voices pilot and local VCSE organisations.
We aim to have empathy and be inclusive in our research and conversations with communities in Norfolk and Waveney. Our approach is underpinned by cultural humility*, a process that recognises uniqueness and adopts empathy, self-reflection, kindness and compassion in creating spaces for research conversations. In doing so, we also adhere to the principles of the NIHR Equality, Diversity and Inclusion Strategy 2022-2027.
*informed by Mabadiliko CIC’s Cultural Humility Framework.
Patient and Public Involvement and Engagement (PPIE) in Research
Patient and Public Involvement and Engagement (PPIE) in Research
If you would like to get involved in research:
If you would like to get involved in research:
Have a look at our resources for getting involved.
You could find out more on our Research in primary care website
The National Institute of Health and Care Research (NIHR) Be Part of Research and Join Dementia Research websites have a lot of information on different ways to take part in research.
The NIHR website has more information on national and local ways to get involved in research.
If you are a researcher and would like advice about PPIE in your research:
If you are a researcher and would like advice about PPIE in your research:
This good practice guide provides practical insights for researchers on how to engage more diverse participants in health research.
NIHR Equality, Diversity and Inclusion (EDI) Toolkit was developed to support researchers to better understand how to embed EDI in research design and to meet the NIHR’s EDI requirements.
The Citizens Academy (based within the UEA Faculty of Medicine and Health) represents a coordinated approach to involving members of the public, patients, and experts with relevant experience across all aspects research and support researchers with PPIE.
Research Engagement Network
Research Engagement Network
In 2022, we were awarded funding from NHS England to enhance opportunities for people in Norfolk and Waveney to become more engaged in research. Research engagement can range from showing interest in research to taking an active role, such as participation in a research study. Our work in this respect involves three linked projects:
Project 1
Project 1
Enhancing opportunities for research engagement within diverse coastal communities in Great Yarmouth and Waveney
Project 2
Project 2
Building on Project 1 by further increasing opportunities to engage with research in a broader geographical area (Breckland, North Norfolk, Norwich, West Norfolk and Waveney)
Project 3
Project 3
Developing transferable recommendations to address the inclusion barrier of older people with impaired capacity towards the end of life across care settings
Projects 1 and 2 partnered with the Community Voices programme, the Voluntary Community Social Enterprise (VCSE) sector and the NIHR Clinical Research Network’s Research Ready Communities programme. Activity included:
Training staff and volunteers from VCSE organisations to have conversations with their communities about health and care research.
Imparting knowledge about health and health research by supporting many research conversations.
Acting on these conversations by sharing and discussing potential research opportunities and enabling participants to consider where health and care research may fit in with their lives.
One of our partner organisations, Opening Doors, have produced a report outlining the barriers to research experienced by people with leanring difficulties:
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