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Brief overview
Brief overview
'No research about us without us' - a collaborative research project led by people with learning disabilities, academic researchers and community partners. The project explored what true partnership in research looks like, the barriers that prevent people with learning disabilities from being equal research partners, and what needs to change. During the webinar, the research team share key learning from the project, practical takeaways and recommendations for future research, and next steps for creating more inclusive and equitable research practice.
Presenter information
Presenter information
Gary Bourlet - co-founder, Learning Disability England
Dr Amy Russell – Associate Professor of Health Inequalities, University of Leeds
Max Clark – Think Inclusive
Samantha Clark - CEO, Learning Disability England
Anna Balding – Learning Disability England
Top tips and resources
Top tips and resources
Top tips: You’ll notice in the slide deck (time stamp 03:15) each slide has a little photo of the speaker, this helps the team to organise the slides and helps the viewer know who is speaking. At 11:48 in the webinar the team share their Matrix of Support model – this role models both how good communication happens within teams and serves to visually show processes leading to costing project time and resources.
Introductory resources
Introductory resources
Introductory resources are housed on the Learning Disability England website 'No research about us without us' - Learning Disability England
Resources and tools developed during the course of the project are hosted on an intranet site Work - you might like to explore the following resources, and more, which are hosted as open access e-prints.
Open access pre-prints
Open access pre-prints
Easy read application for funding; ‘No Research About, Us Without Us’ - White Rose Research Online
Terms of Reference - No Research About Us, Without Us - White Rose Research Online
Visual Timeline: No Research About Us Without Us - White Rose Research Online
Resource for including people with learning disabilities in research projects:
Including People with Learning Disabilities in Research Projects - White Rose Research Online
Top tip: Watch the Parable of the Blobs and the Squares, does this chime with your own experiences? Keeping Blobs Blobby: Inclusive Research with People with Learning Disabilities. A Comic - White Rose Research Online and associated YouTube short film The Parable of the Blobs and Squares - YouTube
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