Complex Regional Pain Syndrome
In my practice role (2006-2013) at the Royal National Hospital for Rheumatic Diseases, I worked with people who were learning to live with Complex Regional Pain Syndrome (CRPS). This is a chronic pain condition characterized by excessive pain that is disproportionate to the initial injury. Chronic CRPS can be both distressing and debilitating and has a considerable impact on the lives of both the person with CRPS and those closest to them. Since leaving practice I have continued to research and write about CRPS and have developed a variety of resources that might be helpful including leaflets and a book.
Publications
Gavin, J., Rodham, K., Coulson, N. & Watts, L. (2014) Meeting the support needs of patients with Complex Regional Pain Syndrome through innovative use of wiki technology: A mixed methods study. NIHR. DOI 10.3310/hsdr02240.
We collaborated with people living with CRPS the develop three leaflets for:
Friends & family,
Employers and
Health Professionals
These can be accessed via CRPS UK Network .
Book
Rodham, K. (2014) Learning to cope with CRPS: Putting life first and pain second. Singing Dragon: London. (ISBN: 978-1-84819-240-9)
Useful Sites
Royal National Hospital for Rheumatic Diseases - a national centre for the management of CRPS: Click here
CRPS UK - a patient-led organisation for people with CRPS: click here
CRPS Community - a website set up by a person with CRPS for people with CRPS: click here
CRPS Guidelines can be accessed via the Royal College of Physicians website: click here
CRPS UK Network - a collaboration between a number of UK NHS trusts and academic institutions with an interest in CRPS click here There is also a resource library. Click HERE.
The Pain Toolkit : A super useful resource for people living with persistent pain