Embedded Files
Books
Books
Pawlyn J & Carnaby S (2009) (eds) Profound Intellectual and Multiple Disabilities: Nursing Complex Needs. Oxford: Wiley-Blackwell.
Chapters in book
Chapters in book
Pawlyn J, Dalton C and Caples M (2022) Physical Disabilities. In Atherton, H. and Crickmore, D.J. (Eds) Intellectual Disabilities: Toward Inclusion (7th ed). Elsevier Ltd. pp.
Pawlyn J (in press) Profound Intellectual and Multiple Disabilities (PIMD/ PMID/ PMLD). In: Barksby, J. And Charnock, C. Learning Disability Case Studies. McGraw-Hill. pp.
Sharpe R & Pawlyn J (2008) The role of the tutor in blended e-learning: experiences from interprofessional education. In Donnelly R and McSweeney F (eds) Applied eLearning and eTeaching in Higher Education. Hershey, PA: Information Science Reference, pp18-34.
Turner J (2004) A partnership for health: respecting choice as part of a healthy lifestyle. In: Turnbull J (ed). Learning Disability Nursing. Oxford: Blackwell Publishing, pp 28 - 42.
Journal articles
Journal articles
Clark S and Pawlyn J (2019) Inhaler and Nebuliser Technique for Individuals with a Learning Disability. Learning Disability Practice. 22(1) http://oro.open.ac.uk/58384/
Pawlyn J (2012) The use of e-learning in continuing professional development. Learning Disability Practice. 15(1): 33- 37. https://www.dora.dmu.ac.uk/xmlui/handle/2086/9765
Tremayne P and Pawlyn J (2019) Care and management of indwelling urinary catheters. Learning Disability Practice. 22(4) http://oro.open.ac.uk/58668/
Noronha MT and Pawlyn J (2019) Caring for People with Learning Disabilities: Attitudes and Perceptions of Nurses - a literature review. Learning Disability Practice. (22)3. http://oro.open.ac.uk/58383/
Reports, Guidelines and Protocols
Reports, Guidelines and Protocols
Tyson, M., McElduff, S., Pawlyn, J., McElduff, P., Fleeman, J., and Kellett, S. (2017) The Views of Carers of Adults with Intellectual Disabilities on Annual Health Checks - Final Report. Chesterfield: Learning Disability Carers Community.
This report presents data from a survey of carers about Annual Health Checks for people with learning/intellectual disabilities.
The main aims of this study were to discover what factors cause the low uptake of Annual Health Checks (AHCs) by people with learning disabilities. For those who have had AHCs they explored the level of carers' satisfaction with these.
This report presents data from a survey of carers. There is quantitative data from answers to standardized survey questions and qualitative data was also collected about carers' opinions and experiences.
Findings identify, people with ID were more likely to have an AHC if cared for by a paid carer rather than by the family. The number of people with ID attending and being invited for an AHC needs to be increased. Increased training, awareness, advertising, correspondence and coordination of and between healthcare professionals, carer organisations and social services is necessary.
A transformation from reactive responses to health change and health decline to a proactive approach with health checking and health protection and promotion needs to happen.
Pawlyn J (2013) How-to guide 4: Health. Raising our Sights. London: PMLD Network, Mencap.
In 2011 I began working on the Health Guides to accompany Raising our Sights, these guides were published in 2013. The booklet is available to download via the Mencap website.
Oxfordshire County Council and Oxford Health NHS Foundation Trust (2011) Joint Working Protocol For The Delivery Of Shared Care Services For Adults Living In Their Own Homes. Oxford: Oxfordshire County Council and Oxford Health NHS Foundation Trust.
Contributed to the development of the Shared Care Protocols, developed to standardise joint working arrangements to ensure that clients receive a fully integrated and consistent health and social care service across the county.
Book reviews
Book reviews
Cerebral Palsy: From Diagnosis to Adult Life. Learning Disability Practice. 16(3) p.p 9-9
Conference presentations
Conference presentations
Pawlyn J (2013) ‘How to’ meet the needs of people with Profound Intellectual and Multiple Disabilities: the PMLD network and Mencap approach.
Abstract: The PMLD Network and Mencap in the United Kingdom have produced a series of how-to guides and films to help local areas meet the needs of people with profound intellectual and multiple disabilities. The eleven how-to guides, aimed at families, commissioners and others who are responsible for supporting or developing services for people with profound intellectual and multiple disabilities, address the recommendations made in the Raising our sights report (Mansell, 2010), which looked at services and support for people with profound intellectual and multiple disabilities in the United Kingdom. Each guide has been developed by a lead author drawing on specialist knowledge and expertise and illustrated with case studies. The intention of the poster presentation is to provide and an overview of the development of the how-to guides, identifying key contributors, dissemination and potential evaluation approaches. 48th Annual ASID Conference, Sydney, NSW, Australia. 6-8 November 2013 Twitter announcement Poster image
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