SNOMED Codes

1771641000000107 | Fully specified name: Dissent to receive invitation from general practitoner practice to participate in research. 

1771651000000105 | Fully specified name: Dissent withdrawn to receive from general practioner practice to participate in research. 

These new codes will be added to the Clinical Research Network (CRN) Research coding templates in EMIS and SystemOne shortly. To access a short animation explaining this change on approach, please visit the PRIDES website here. 

Reasons for the new change of codes:

• These codes aim to improve the ability for people to participate in research and widen opportunities for people to be involved in research. 

• This approach assumes everyone registered at a practice could be invited unless they explicitly dissent from being contacted for this purpose. 

These codes reflect the relationship between a GP practice and a patient who is dissenting from contact for the purpose of research. It has no implications for data sharing or opt-out. However, no code has previously existed for this reson, so in some areas/cases a type one opt-out or local code may have been used as a surrogate marker for this dissent insteas. The type one opt-out code means that no patient data leaves the practice (there are some rare exclusions e.g. public health/Control of Patient Information). 

The new codes will provide consistent standards for research, underpinning good governance and public confidence, support a relationship between care providers and their patients and empower by giving them a choice. The code reducs the risk of bias by respecting patients' choices and will assume invitation to research unless someone dissents. This change approach is supported by the Information Commissioner's Office (ICO) and the Health Research Authority (HRA).

How this change affects your Research Network - Reserach Networks should be aware of the following:

• Be aware that any external providers such as CPRD may not include this code in their health informatics. 

• If any health informatics do not include this code GP sites should be informed so that they can take the necessary steps. 

• The wider remit of type one opt-outs and National Data opt-outs (NDO). 

• Patients may choose to record a type one opt-out. If they do not want their data shared outside the practice. Patients may also record an NDO instead of, or as well as, the type 1 opt-out. 

How this change affects your LCRN - You may wish to take the following action:

• Anyone who creates HI tools for the Research Network should use this dissent code and no other surrogate codes for dissent to research invitation, ensuring this accounts for the patients current status (either dissent or retractionb of dissent). 

• Review any ongoing study HI tools being utilised for studies in your Research Network that may need updating. 

• Inform GP sites of the new code and to the presence of research coding templates in SystemOne and EMIS. 

• Explain implications to sites that may wish to audit/review historical codes.