Directories

Join Dementia Research

Are you interested in Dementia Research? 

As long as you are over the age of 18, you can sign up to Join Dementia Research and the information you provide will then be matched with studies for you to take part in online, locally or nationally. 

This service connects registered volunteers with dementia research across the UK who are looking for people to join their studies. 

Just because you have registered, doesn't mean you have to take part. You will be able to review any matches before making that decision. 

Click here for more information - Join Dementia Research

Clinical Practice Research Datalink

Clinical Practice Research Datalink (CPRD) is a real-world research service supporting retrospective and prospective public health and clinical studies. CPRD research data services are delivered by the Medicines and Healthcare products Regulatory Agency with support from the National Institute for Health and Care Research (NIHR), as part of the Department of Health and Social Care.

CPRD collects anonymised patient data from a network of GP practices across the UK. Primary care data are linked to a range of other health related data to provide a longitudinal, representative UK population health dataset. The data encompass 60 million patients, including 18 million currently registered patients

Click here for more information - Clinical Practice Research Datalink | CPRD 

Be Part of Research

Better care and treatments start with you.

Health and care research can only improve and save lives with the help of people like you. You can create a free account and make taking part in research a little bit easier. This will also mean that you will be matched to suitable studies. Click HERE for more information.  


RCGP Research and Surveillance Centre (RSC)

The RCGP RSC is an internationally renowned source of information, analysis and interpretation of primary care data.

Established in 1957, the RSC is one of Europe's oldest general practice sentinel networks. It is an active research and surveillance unit that collects and monitors data from over 1700 practices across England and Wales.

The RCGP collaborates with the University of Oxford, and Public Health England in the running of the RSC.


Click here for more information - Welcome — Orchid (ox.ac.uk) 

Kidney Beam App

The East of England Renal Clinical Network have funded access to Kidney Beam for the entire region. Kidney Beam is NOW FREE to access for all people living with kidney disease within the East if England region.

Imperial Health Knowledge Bank (IHKB)

Imperial Health Knowledge Bank (IHKB) offers patients the opportunity to participate in research. 

Imperial College Healthcare NHS Trust has launched a new research resource that will provide every patient with an easy opportunity to be part of research and contribute to the advancement of medical science. 

The Imperial Health Knowledge Bank (IHKB) is a database of patients who are willing to be contacted directlly about clinical trials and studies that could be relevant to them and who have agreed for the Trust to collect and store their health information and samples for research. 

The Patients Association

Supporting patient engagement and revitalising Patient Participation Groups.