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About this path
About this path
Here you will see how we approached patient partnering and teamwork. You can follow our trail-markers, and probably carve out some new paths as you go.
All Truths are easy to understand once they are discovered.
The point is to discover.
Engagement of stakeholder community members in the conduct of patient centered outcomes research is a journey into a changing landscape.
So how do you introduce change?
Advertise Your Goal. Confirm with all team members, including leadership, of your planned engagement of stakeholders.
Emphasize the Benefits. Create a sense of possibilities and enthusiasm toward the coming changes by pointing out the benefits of achieving successful engagement.
Make Change Possible. Create and provide training, opportunities and resources to achieve full participation of all team members.
Listen. Care. Create. Connect.
So what are some of the benefits of successfully engaging community members in the conduct of *patient centered outcomes research?
Increased:
Feasibility, Interest, Novelty, Ethics and Relevance of research (FINER)
Equity in healthcare
Activated patients and clinicians as informed decision makers
Trust in research
*2019 article :Same same or different?
Eklund, Jakob Håkansson, Inger K. Holmström, Tomas Kumlin, Elenor Kaminsky, Karin Skoglund, Jessica Höglander, Annelie J. Sundler, Emelie Condén, and Martina Summer Meranius. "
A review of reviews of person-centered and patient-centered care. Patient Education and Counseling 102, no. 1 (2019): 3-11.
This article defines patient-centered care as “good medicine.” It goes on to describe “person-centered care” as potentially different than patient-centered care and this person-centered care is taking in an “ethical perspective, underscoring the need to know the person behind the illness, in order to engage the person in his/her own care.” It does go on to say that both perspectives share: empathy, respect, engagement, relationship, communication, shared decision-making, holistic focus, individualized focus, coordinated care.
So maybe it's possible to take that leap beyond patient-centered care as "good medicine" to include knowing the patient beyond their symptoms to further engage them in managing their care as well as in transforming systems of care so they truly are at the center.
So how do I begin?
A well planned journey begins with a roadmap.
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