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December 2017- The Centers for Disease Control recently removed from its website the majority of references to and its support of the Infectious Diseases Society of America and its Lyme disease treatment guidelines.
One can only speculate as to why, after over a decade of strongly supporting the disastrous IDSA Lyme disease treatment guidelines to the exclusion of all others and amidst fiery protests from sick patients, the public, doctors, scientists, organizations, the media and even Congressional members wherein the CDC wouldn't budge an inch, this sudden change in their policy?
The question now is... what do we do about it?
1. Celebrate a long overdue victory at least until specific motives for this unusual action are revealed.
2. Inform everyone you know (and even those you don't) that doctors hands are no longer tied and they can now treat patients as they see fit and not be bound by a failed, aging and conflicted set of treatment guidelines that clearly put profits before patients and caused much more harm than good.
3. Share with everyone, especially those in the medical field, links to and/or the actual documents listed below so they know they have choices and also have the up-to-date science behind them when discussing treatment options with their patients. NOW is the time to push forward by educating others! And to do it right so we can save ourselves and our future generations we all need to be involved!
Adults- One Page Document
Print & Take to Your Local Doctor
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Children- One Page Document
Print & Take to Your Local Doctor
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Treatment Guidelines (Full Set)
Lyme & Tick Borne Diseases
Evidence assessments and guideline
Evidence assessments and guideline
recommendations in Lyme disease:
recommendations in Lyme disease:
The clinical management of known tick bites,
The clinical management of known tick bites,
erythema migrans rashes and persistent disease
erythema migrans rashes and persistent disease
You may give one last salute to the
USS Infectious Diseases Society of America
And the 2006 Lyme disease guideline authors as they go floating by.
Or not...
It appears the American Lyme Disease Foundation (Phil Baker, Auwaerter, Shapiro, Marques, Fish, Wormser, Hu, Barbour, Krause, etc.) is currently removing references to CDC.
Also note the last entry stating the ALDF is NOT a patient support organization.
Source: http://www.aldf.com
Why does the CDC only link to one set of treatment guidelines?
Why does the CDC only link to one set of treatment guidelines?
This CDC mention & link, one of a very few left on the site, goes to the NEW page automatically that doesn’t give IDSA guidelines any credit.
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Lyme disease vaccine
Lyme disease vaccine
A Lyme disease vaccine is no longer available. The vaccine manufacturer discontinued production in 2002, citing insufficient consumer demand. Protection provided by this vaccine diminishes over time. Therefore, if you received the Lyme disease vaccine before 2002, you are probably no longer protected against Lyme disease.
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The IDSA guidelines, which are posted on the ALDF website [rather than saying the CDC website], are almost universally accepted by experts on Lyme disease, and are in agreement with those of: the European Federation of Neurological Societies; the European Union of Concerted Action on Lyme Borreliosis; the American Academy of Neurology; the Canadian Public Health Network; and, the German Society for Hygiene and Microbiology. They also are in agreement with recommendations made by expert panels from 10 European countries, i.e., The Czech Republic, Denmark, Finland, France, The Netherlands, Norway, Poland, Slovenia, Sweden, and Switzerland.
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"The Foundation is not a patient support organization. Consequently, it does not give medical advice, recommend specific physicians, or provide information on various medical or financial services related to the treatment/management of Lyme disease."
Lucy Barnes
December 2, 2017
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