Embedded Files
Laughing at My Nightmare by Shane Burcaw
Born with spinal muscular atrophy (SMA), Shane Burcaw is physically stymied by the most basic tasks, such as going to the bathroom, using a computer mouse, or feeding himself. Despite these physical limits, however, this sharp, savvy, and perceptive 21-year-old with an acerbic wit refuses to be constrained by the state of his body. Shane's memoir about life with SMA does not shy away from the harsh realities of his condition, but neither does it hide his zest for living and unparalleled ability to poke fun at the reactions of both himself and others. Teens of all different abilities and backgrounds will relish Shane's infectious humor and startling candidness.
Review from School Library Journal:
Burcaw is like any other 21-year-old guy. He loves sports, video games, and bathroom humor; enjoys hanging out with his friends; and has had several girlfriends. The only thing that makes him different is that he has done all of this while in a wheelchair. Burcaw was born with a rare neuromuscular disease known as spinal muscular atrophy (SMA), which hinders his muscles' ability to grow and repair themselves. Instead of growing bigger and stronger with age, he becomes weaker and smaller. As a result of the disease, Burcaw depends on his friends and family when it comes to completing everyday tasks. Throughout, he shares many humorous and touching stories about growing up and living with his disease. These tales leave nothing to the imagination, including descriptions of how he uses the bathroom or has sexual interactions, and the author occasionally employs some graphic language. Burcaw's narrative will resonate with readers, who will laugh along with the funny stories, cringe at the awkward moments, and tear up at the emotionally charged parts. A poignant story that provides a fresh perspective on life.
Page updated
Report abuse